Registries for Evaluating Patient Outcomes
Registries for Evaluating Patient Outcomes

Author: Agency for Healthcare Research and Quality/AHRQ

Publisher: Government Printing Office

Published: 2014-04-01

Total Pages: 385

ISBN-13: 1587634333

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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Patient Safety
Patient Safety

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2003-12-20

Total Pages: 551

ISBN-13: 0309090776

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Americans should be able to count on receiving health care that is safe. To achieve this, a new health care delivery system is needed â€" a system that both prevents errors from occurring, and learns from them when they do occur. The development of such a system requires a commitment by all stakeholders to a culture of safety and to the development of improved information systems for the delivery of health care. This national health information infrastructure is needed to provide immediate access to complete patient information and decision-support tools for clinicians and their patients. In addition, this infrastructure must capture patient safety information as a by-product of care and use this information to design even safer delivery systems. Health data standards are both a critical and time-sensitive building block of the national health information infrastructure. Building on the Institute of Medicine reports To Err Is Human and Crossing the Quality Chasm, Patient Safety puts forward a road map for the development and adoption of key health care data standards to support both information exchange and the reporting and analysis of patient safety data.

A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases
A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2011-08-26

Total Pages: 200

ISBN-13: 0309212197

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Chronic diseases are common and costly, yet they are also among the most preventable health problems. Comprehensive and accurate disease surveillance systems are needed to implement successful efforts which will reduce the burden of chronic diseases on the U.S. population. A number of sources of surveillance data-including population surveys, cohort studies, disease registries, administrative health data, and vital statistics-contribute critical information about chronic disease. But no central surveillance system provides the information needed to analyze how chronic disease impacts the U.S. population, to identify public health priorities, or to track the progress of preventive efforts. A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases outlines a conceptual framework for building a national chronic disease surveillance system focused primarily on cardiovascular and chronic lung diseases. This system should be capable of providing data on disparities in incidence and prevalence of the diseases by race, ethnicity, socioeconomic status, and geographic region, along with data on disease risk factors, clinical care delivery, and functional health outcomes. This coordinated surveillance system is needed to integrate and expand existing information across the multiple levels of decision making in order to generate actionable, timely knowledge for a range of stakeholders at the local, state or regional, and national levels. The recommendations presented in A Nationwide Framework for Surveillance of Cardiovascular and Chronic Lung Diseases focus on data collection, resource allocation, monitoring activities, and implementation. The report also recommends that systems evolve along with new knowledge about emerging risk factors, advancing technologies, and new understanding of the basis for disease. This report will inform decision-making among federal health agencies, especially the Department of Health and Human Services; public health and clinical practitioners; non-governmental organizations; and policy makers, among others.

Making Health Communication Programs Work
Making Health Communication Programs Work

Author:

Publisher: DIANE Publishing

Published: 1992

Total Pages: 144

ISBN-13: 0788100807

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Discusses key principles relative to specific steps in health communications program development, and includes examples of their use. Covers: planning and strategy selection, selecting channels and materials, developing materials and pretesting (pretesting -- what it can and cannot do, pretesting methods, plan and conduct pretests), implementing your program, assessing effectiveness, feedback to refine program and more. Each chapter includes a 3selected readings2 section. Includes: information sources, sample forms, glossary, bibliography, etc. Photos and drawings.

Dictionary of Health Information Technology and Security
Dictionary of Health Information Technology and Security

Author: Hope Rachel Hetico, RN, MHA, CMPTM

Publisher: Springer Publishing Company

Published: 2007-04-30

Total Pages: 449

ISBN-13: 0826101062

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Over 10,000 Detailed Entries! "There is a myth that all stakeholders in the healthcare space understand the meaning of basic information technology jargon. In truth, the vernacular of contemporary medical information systems is unique, and often misused or misunderstoodÖ Moreover, an emerging national Heath Information Technology (HIT) architecture; in the guise of terms, definitions, acronyms, abbreviations and standards; often puts the non-expert medical, nursing, public policy administrator or paraprofessional in a position of maximum uncertainty and minimum productivity ÖThe Dictionary of Health Information Technology and Security will therefore help define, clarify and explain...You will refer to it daily." -- Richard J. Mata, MD, MS, MS-CIS, Certified Medical Planner© (Hon), Chief Medical Information Officer [CMIO], Ricktelmed Information Systems, Assistant Professor Texas State University, San Marcos, Texas An Essential Tool for Every Health Care Industry Sector: layman, purchaser, and benefits manager physician, provider and healthcare facility payer, intermediary and consulting professional Key Benefits & Features Include: New HIT, HIPAA, WHCQA, HITPA, and NEPSI terminology Abbreviations, acronyms, and slang-terms defined Illustrations and simple examples Cross-references to current research

The Palgrave Handbook of Global Health Data Methods for Policy and Practice
The Palgrave Handbook of Global Health Data Methods for Policy and Practice

Author: Sarah B. Macfarlane

Publisher: Springer

Published: 2019-03-05

Total Pages: 563

ISBN-13: 113754984X

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This handbook compiles methods for gathering, organizing and disseminating data to inform policy and manage health systems worldwide. Contributing authors describe national and international structures for generating data and explain the relevance of ethics, policy, epidemiology, health economics, demography, statistics, geography and qualitative methods to describing population health. The reader, whether a student of global health, public health practitioner, programme manager, data analyst or policymaker, will appreciate the methods, context and importance of collecting and using global health data.