Post-polio Syndrome

Post-polio Syndrome

Author: Julie K. Silver

Publisher:

Published: 2001

Total Pages: 280

ISBN-13: 9780300088076

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The effects of polio that occur decades after the disease has run its course -- weakness, fatigue, pain, intolerance to cold, difficulty with breathing and swallowing -- are often more devastating than the original disease. This book on the diagnosis and management of polio-related health problems is an essential resource for polio survivors and their families and health care providers. Dr. Julie K. Silver, who has both personal and professional experience with post-polio syndrome, begins the book by defining and describing PPS and providing a historical overview of its diagnosis and treatment. Chapters that follow discuss finding good medical care, dealing with symptoms, maintaining proper nutrition and weight, preventing osteoporosis and falls, and sustaining mobility. Dr. Silver reviews the latest in braces, shoes, assistive devices, and wheelchairs and scooters. She also explores issues involving managing pain, surgery, complementary and alternative medicine, safe and comfortable living environments, insurance and disability, and sex and intimacy.


The Polio Paradox

The Polio Paradox

Author: Richard L. Bruno

Publisher: Grand Central Publishing

Published: 2009-02-28

Total Pages: 275

ISBN-13: 0446556904

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Although the threat of polio ended with the Salk vaccine in 1954, many polio survivors are now experiencing the onset of post-polio syndrome (PPS), a complication with new but related symptoms such as chronic fatigue and joint pain.


Living with Polio

Living with Polio

Author: Daniel J. Wilson

Publisher: University of Chicago Press

Published: 2008-11-15

Total Pages: 313

ISBN-13: 0226901068

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Polio was the most dreaded childhood disease of twentieth-century America. Every summer during the 1940s and 1950s, parents were terrorized by the thought that polio might cripple their children. They warned their children not to drink from public fountains, to avoid swimming pools, and to stay away from movie theaters and other crowded places. Whenever and wherever polio struck, hospitals filled with victims of the virus. Many experienced only temporary paralysis, but others faced a lifetime of disability. Living with Polio is the first book to focus primarily on the personal stories of the men and women who had acute polio and lived with its crippling consequences. Writing from personal experience, polio survivor Daniel J. Wilson shapes this impassioned book with the testimonials of more than one hundred polio victims, focusing on the years between 1930 and 1960. He traces the entire life experience of the survivors—from the alarming diagnosis all the way to the recent development of post-polio syndrome, a condition in which the symptoms of the disease may return two or three decades after they originally surfaced. Living with Polio follows every physical and emotional stage of the disease: the loneliness of long separations from family and friends suffered by hospitalized victims; the rehabilitation facilitieswhere survivors spent a full year or more painfully trying to regain the use of their paralyzed muscles; and then the return home, where they were faced with readjusting to school or work with the aid of braces, crutches, or wheelchairs while their families faced the difficult responsibilities of caring for and supporting a child or spouse with a disability. Poignant and gripping, Living with Polio is a compelling history of the enduring physical and psychological experience of polio straight from the rarely heard voices of its survivors.


Breath of Life

Breath of Life

Author: Irene S. Gilgoff

Publisher: Scarecrow Press

Published: 2001

Total Pages: 290

ISBN-13: 9780810834880

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Approximately 90 percent of deaths from Duchenne Muscular Dystrophy (DMD) are the result of chronic respiratory failure and/or concurrent respiratory infection. Respiratory failure in neuromuscular diseases is of the restrictive type, resulting from progressive weakness of breathing muscles. The ventilator simply replaces or augments the failed bellows mechanism of the respiratory system. The use of assisted ventilation by individuals with Duchenne Muscular Dystrophy has been in effect for the past 25 to 30 years. As in other management issues of DMD, there is, and probably will continue to be, recurrent debate regarding the cost/benefit ratio of various treatment regimes. The authors come to this issue from an emotional, psychosocial, and ethical perspective, as well as a financial point of view. A necessary volume in any library's consumer health collection.


Polio and Its Aftermath

Polio and Its Aftermath

Author: Marc Shell

Publisher: Harvard University Press

Published: 2009-06-30

Total Pages: 335

ISBN-13: 0674043545

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In this book, Shell, himself a victim of polio, offers an inspired analysis of the disease. Part memoir, part cultural criticism and history, part meditation on the meaning of disease, Shell's work combines the understanding of a medical researcher with the sensitivity of a literary critic. He deftly draws a detailed yet broad picture of the lived experience of a crippling disease as it makes it way into every facet of human existence.


Twin Voices

Twin Voices

Author: Janice Flood Nichols

Publisher: iUniverse

Published: 2008-09-30

Total Pages: 288

ISBN-13: 0595632726

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Today, more than fifty years after the Salk vaccine was declared safe and effective against polio, the virus remains an active killer and crippler in several Third World countries-a fact that most of us around the globe have forgotten. But Janice Flood Nichols will never forget. A childhood victim of the 1953 Dewitt, New York, polio epidemic, her personal and professional life have been profoundly shaped by her experience. Nichols lost her twin brother, Frankie, to the disease and suffered temporary paralysis, leading her to choose a career as a rehabilitation counselor. Despite setbacks, Nichols has never lost her optimism. In this heartwarming memoir, she offers an intimate account of her miraculous steps to healing, the simple ways she continues to celebrate her brother's short but joyous life, and her unwavering determination to help eradicate the virus from the world. Twin Voices provides a unique and timely glimpse into one of the twentieth century's most deadly diseases.