"We do not need care!" is a rallying cry for disability movements. It is informed by a recognition that a lack of choice over simple care decisions - like what to eat or what to wear - is a subtle yet pervasive form of violence endured by many disabled people. Disability Politics and Care examines an independent living program to explore what happens when people with disabilities take control of their own care arrangements. Christine Kelly documents responses by a wide range of stakeholders of this program and reflects on some of its broader social and political implications.
An accessible introduction to disability studies, Disability Politics and Theory provides a concise survey of disability history, exploring the concept of disability as it has been conceived from the late 19th century to the present. Further, A.J. Withers examines when, how and why new categories of disability are created and describes how capitalism benefits from and enforces disabled people’s oppression. Critiquing the model that currently dominates the discipline, the social model of disability, this book offers an alternative: the radical disability model. This model builds on the social model but draws from more recent schools of radical thought, particularly feminism and critical race theory, to emphasize the role of intersecting oppressions in the marginalization of disabled people and the importance of addressing disability both independently and in conjunction with other oppressions. Intertwining theoretical and historical analysis with personal experience this book is a poignant portrayal of disabled people in Canada and the U.S. – and a radical call for social and economic justice.
This powerful book presents a series of perspectives on the process of self-organisation of disabled people which has taken place over the last thirty years. The 1980s saw a transformation in our understanding of the nature of disability, and consequently the kinds of policies and services necessary to ensure the full economic and social integration of disabled people. At the heart of this transformation has been the rise in the number of organisations controlled and run by disabled people themselves. Through a series of interviews with disabled people who have been centrally involved in the rise of the disability movement, the authors present a new collective history which throws light on the politics of the 1980s, and offers insights into future political developments in the 1990s and on into the twenty-first century.
Disability is of central concern to the developing world but has largely been under-represented in global development debates, discourses and negotiations. Similarly, disability studies has overlooked the theorists, or the social experience, of the global South and there has been a one-way transfer of ideas and knowledge from the North to the South in this field. This volume seeks to redress the processes of scholarly colonialism by drawing together a diverse set of understandings, theorizing and experiences. The chapters situate disability within the Southern context and support the work of Southern disabled scholars and activists seeking to decolonize Southern experiences, knowledges and absences in the field while simultaneously attempting to make an intervention into able-bodied (mainstream) development discourses, practices and politics. This book was originally published as a special issue of Third World Quarterly.
This book addresses the ways in which individualised, market-based models of disability support provision have been mobilised in and across different countries through cross-national investigation of individualised funding (IF) as an object of neoliberal policy mobility. Combining rich theoretical and interdisciplinary perspectives with extensive empirical research, the book provides a timely examination of the policy processes and mechanisms driving the spread of IF amongst countries at the forefront of disability policy reform. It is argued that IF’s mobility is not attributable to neoliberalism alone but to the complex intersections between neoliberal and emancipatory agendas and to the transnational networks that have blended the two agendas in new ways in different institutional contexts. The book shows how disability rights struggles have synchronised with neoliberal agendas, which explains IF’s propensity to move and mutate between different jurisdictions. Featuring first-hand accounts of the activists and advocates engaged in these struggles, the book illuminates the consequences and risks of the dangerous liaisons and political trade-offs that seemed necessary to get individualised funding on the policy agenda for disabled people. It will be of interest to all scholars and students working in disability studies, social policy, sociology and political science more generally.
Disability Politics and Care examines a provincial direct-funding program to illuminate what happens when people with disabilities take control of their own care arrangements. In addition to investigating responses from a wide range of stakeholders, Christine Kelly reflects on the broader social and political implications of these types of programs. She probes the divide that exists between rejections of care by disability activists, on the one hand, and attempts by feminists to value gendered forms of labour, on the other. Rather than trying to find common ground between these viewpoints, Kelly explores how maintaining a tension between them could positively transform the understanding and practice of care. Enlivened by the voices of disabled people, attendants, and informal supports, this book uses one independent living program as a starting point for untangling much larger philosophical, theoretical, and material questions about (self) determination, (inter)dependence, governance, and justice.
In today’s world, responsible biocitizenship has become a new way of belonging in society. Individuals are expected to make “responsible” medical choices, including the decision to be screened for genetic disease. Paradoxically, we have even come to see ourselves as having the right to be responsible vis-à-vis the proactive mitigation of genetic risk. At the same time, the concept of genetic disease has become a new and powerful way of defining the boundaries between human groups. Tay-Sachs, an autosomal recessive disorder, is a case in point—with origins in the period of Eastern European Jewish immigration to the United States and United Kingdom that spanned the late nineteenth and early twentieth centuries, it has a long and fraught history as a marker of Jewish racial difference. In Testing Fate, Shelley Z. Reuter asks: Can the biocitizen, especially one historically defined as a racialized and pathologized Other, be said to be exercising authentic, free choice in deciding whether to undertake genetic screening? Drawing on a range of historical and contemporary examples—doctors’ medical reports of Tay-Sachs since the first case was documented in 1881, the medical field’s construction of Tay-Sachs as a disease of Jewish immigrants, YouTube videos of children with Tay-Sachs that frame the disease as tragic disability avoidable through a simple genetic test, and medical malpractice suits since the test for the disease became available—Reuter shows that true agency in genetic decision-making can be exercised only from a place of cultural inclusion. Choice in this context is in fact a kind of unfreedom—a moral duty to act that is not really agency at all.
Despite the widespread belief that Canada is a country of liberty, equality, and inclusiveness, many persons with disabilities experience social exclusion and marginalization. In this book, twenty-four scholars from a variety of disciplines contend that achieving equality for the disabled is not fundamentally a question of medicine or health, nor is it an issue of sensitivity or compassion. Rather, it is a question of politics, and of power and powerlessness. This book argues that we need a new understanding of participatory citizenship that encompasses the disabled, new policies to respond to their needs, and a new vision of their entitlements.
While the civil rights movement has put disability issues centre-stage, there has been minimal discussion of disabled people's sexuality. This book, based on first-hand accounts, takes a close look at questions of identity, relationships, sex, love, parenting and abuse and demolishes the taboo around disability and sex. It shows the barriers to disabled people's sexual rights and sexual expression, and also the ways in which these obstacles are being challenged. Variously moving, angry, funny and proud, The Sexual Politics of Disability is about disabled people sharing their stories and claiming their place as sexual beings. It is a pioneering work, and essential reading for anyone interested in disability or sexual politics.
