This international collection of personal and professional perspectives takes a fresh look at deinstitutionalization. It addresses the key steps towards deinstitutionalization as they have been experienced by people with intellectual disabilities: living inside total institutions, moving out, living in the community and moving on to new forms of both institutionalization and community life. Many of the chapters are contributions from people with intellectual disabilities. They are based on a life history approach and give a unique personal account of the lived experiences of institutional life and deinstitutionalization by the people who were subject to it. The life story of Tom Allen (1912-1991) is interspersed throughout the book, providing a powerful testimony of the way institutions and deinstitutionalization have affected one individual over the course of almost a century. Researchers and practitioners will find this book an insightful and accessible reflection on deinstitutionalization, and a source of encouragement for improving the lives of people with intellectual disabilities.
What is life like for women with learning disabilities detained in a secure unit? This book presents a unique ethnographic study conducted in a contemporary institution in England. Rebecca Fish takes an interdisciplinary approach, drawing on both the social model of disability and intersectional feminist methodology, to explore the reasons why the women were placed in the unit, as well their experiences of day-to-day life as played out through relationships with staff and other residents. She raises important questions about the purpose of such units and the services they offer. Through making the women’s voices heard, this book presents their experiences and unique perspectives on topics such as seclusion, restraint, and resistance. Exploring how the ever present power disparity works to regulate women’s behaviour, the book shows how institutional responses replicate women’s bad experiences from the past, and how women’s responses are seen as pathological. It demonstrates that women are not passive recipients of care, but shape their own identity and futures, sometimes by resisting the norms expected of them (within allowed limits) and sometimes by transgressing the rules. These insights thus challenge traditional institutional accounts of gender, learning disability and deviance and highlight areas for reform in policy, practice, methodology, and social theory. This ground-breaking book will be of interest to scholars, students, policymakers and advocates working in the fields of learning disability and disability studies more widely, gender studies and sociology.
"The editors have brought together a range of eminent contributors who present a range of issues throughout the life cycle. The book asserts that it hopes to 'assist readers to anticipate change and discontinuity in people's lives and think about strategies to support them' through the many challenges that they may face in their lives. In my view this book certainly does that and the editors and contributors are to be congratulated on the production of a relevant and contemporary text that I have no hesitation in both endorsing and recommending to all involved in supporting and or caring for people with learning disabilities." Professor Bob Gates, Project Leader - Learning Disabilities Workforce Development, NHS Education South Central, UK "The editors have gathered an authoritative faculty to present and discuss a range of contemporary issues; both practical and ethical. The text is well grounded in the lived experience of people with disability and draws on the evidence-base of contemporary science. Each chapter includes thought provoking exercises. This is a seminal text for students and practitioners, researchers and policy makers." Associate Professor Keith R. McVilly, Deakin University, Australia "I currently own a copy of the first edition and it has proved an invaluable resource time and time again. There is not an essay I complete that does not make reference to the book and I can consistently use it to reflect back on my practice as a student nurse and social worker. Having read several extracts from the new edition it does appear to include very high quality content covering learning disabilities over the lifespan ... if I were to personally recommend any book for budding or current learning disability professionals then this would be it." James Grainger, Student Nurse/Social Worker, Sheffield Hallam University, UK "I like the way it has primary and secondary information from a range of sources. The exercises in the book also get you to think about the situation in question which helps us think about our values and anti-oppressive practice ... This book really does start with the basics and having a learning disability from birth and the effects, to in depth knowledge and literature ... This book would be very helpful to me as it brings in literature policies and models from both a health and social side, which is important for my course and collaborative working." Laura Jean Lowe, Student Nurse, Sheffield Hallam University, UK "It is written with a clearly conveyed in-depth knowledge and in a way that has professional lived experience within the context of the work. The authors have taken into account the emotional, client-centred approach to the modern practitioner's practice ... The book gives a true wealth of good practice scenarios that can only help practitioners be good at what they do and aspire to be." Lee Marshall, Student Nurse, Sheffield Hallam University, UK With its spread of chapters covering key issues across the life cycle this text has established itself as the foundational primer for those studying the lived experiences of people with learning disabilities and their families, and outcomes achieved through services and support systems. Recognising learning disability as a lifelong disability, this accessible book is structured around the life cycle. The second edition is refreshed and expanded to include seven new chapters, covering: Aetiology Breaking news (about disability) and early intervention Transition to adulthood The sexual lives of women Employment Personalisation People with hidden identities With contributions from respected figures from a range of disciplines, the book draws heavily upon multidisciplinary perspectives and is based on the latest research and evidence for practice. The text is informed by medical, social and legal models of learning disability, exploring how "learning disability" is produced, reproduced and understood. Extensive use is made of real-life case studies, designed to bring theory, values, policy and practice to life. Narrative chapters describe, in the words of people with learning disabilities themselves, their lives and aspirations. They helpfully show readers the kinds of roles played by families, advocates and services in supporting people with learning disabilities. New exercises and questions have been added to encourage discussion and reflection on practice. Learning Disability is core reading for students entering health and social care professions to work with people with learning disabilities. It is a compelling reference text for practitioners as it squarely addresses the challenges facing people with learning disability, their loved ones and the people supporting them. Contributors Dawn Adams, Kathryn Almack, Dorothy Atkinson, Nigel Beail, Christine Bigby, Alison Brammer, Jacqui Brewster, Hilary Brown, Jennifer Clegg, Lesley Cogher, Helen Combes, Clare Connors, Bronach Crawley, Eric Emerson, Margaret Flynn, Linda Gething, Dan Goodley, Peter Goward, Gordon Grant, Chris Hatton, Sheila Hollins, Jane Hubert, Kelley Johnson, Gwynnyth Llewellyn, Heather McAlister, Michelle McCarthy, Alex McClimens, Roy McConkey, David McConnell, Keith McKinstrie, Fiona Mackenzie, Ghazala Mir, Ada Montgomery, Lesley Montisci, Elizabeth Murphy, Chris Oliver, Richard Parrott, Paul Ramcharan, Malcolm Richardson, Bronwyn Roberts, Philippa Russell, Kirsten Stalker, Martin Stevens, John Taylor, Irene Tuffrey-Wijne, Sally Twist, Jan Walmsley, Kate Woodcock
This book is a comprehensive analysis of the relationship between feminist theories and the law, and the way in which developments of the former have affected, and been affected by, the latter. The book takes as its starting point a study of women and culture on an international level, which demonstrates how religious and cultural influences have been fundamental in establishing contemporary legal and social mores. This provides the setting for an investigation into legal and social discrimination and inequality, and how this has been addressed by the emergence of feminism. A number of critiques and developments are examined.
Inclusion, is a topical notion which underpins contemporary human service practices and policies within Western Judeo-Christian societies. Inclusion is most often considered within socio-historical and socio-political contexts, whereby technical and legislative responses are sought. However, this book explores the question, "How ethically defensible is the notion of inclusion in relation to people with intellectual disability?"
Disability and the Life Course, first published in 2001, explores the global experience of disability using a novel life course approach. The book explores how disabling societies impact on disabled people's life experiences, and highlights the ways in which disabled people have acted to take more control over their own lives. It provides a unique combination of analysis, policy issues and autobiography, offering the reader a rare opportunity to make links between the theoretical, the political and the personal in a single volume. The material is set in a truly international context, with contributions from thirteen different countries bringing together established and emerging writers, both disabled and non-disabled. The book bridges some important gaps in the existing disability literature by including issues relevant to disabled people of all ages and with different kinds of impairments and also by offering a unique analysis of the relationship between disability and generation in a changing world.
Just as newspapers do not, typically, engage with the ordinary experiences of people′s daily lives, so organizational studies has also tended largely to ignore the humdrum, everyday experiences of people working in organizations. However, ethnographic approaches provide in-depth and up-close understandings of how the ′everyday-ness′ of work is organized and how, in turn, work itself organizes people and the societies they inhabit. Organizational Ethnography brings contributions from leading scholars in organizational studies that serve to unpack an ethnographic perspective on organizations and organizational research. The authors explore the particular problems faced by organizational ethnographers, including: - questions of gaining access to research sites within organizations; - the many styles of writing organizational ethnography; - the role of friendship relations in the field; - problems of distance and closeness; - the doing of at-home ethnography; - ethical issues; - standards for evaluating ethnographic work. This book is a vital resource for organizational scholars and students doing or writing ethnography in the fields of business and management, public administration, education, health care, social work, or any related field in which organizations play a role.
In a challenge to current thinking about cognitive impairment, this book explores what it means to treat people with intellectual disabilities in an ethical manner. Reassessing philosophical views of intellectual disability, Licia Carlson shows how we can affirm the dignity and worth of intellectually disabled people first by ending comparisons to nonhuman animals and then by confronting our fears and discomforts. Carlson presents the complex history of ideas about cognitive disability, the treatment of intellectually disabled people, and social and cultural reactions to them. Sensitive and clearly argued, this book offers new insights on recent trends in disability studies and philosophy.