This book is designed to provide a comprehensive insight unto the key and most prevalent contemporary issues associated with palliation. The reader will find viewpoints that are challenging and sometimes discerning, but at the same time motivating and thought-provoking in the care of persons requiring palliation. This book is divided into three sections. Section 1 examines contemporary practice; Section 2 looks at the challenges in practice; Section 3 discusses models of care. This book is an excellent resource for students, practising clinicians and academics. By reading the book, reflecting on the issues, challenges and opportunities ahead, we hope it will create within the reader a passion to take on, explore and further develop their palliative care practice.
Providing much-needed focus on hospice projects in the context of unprecedented rates of societal ageing, this new reference book presents an overview of major recent developments in this rapidly evolving building type. The authors present an overview of the historical origins of the contemporary hospice and the diverse variations on the basic premise of hospice care, and offer a series of case studies of exemplary hospices. The most innovative work in this area over the past decade has been in Japan, the US, Canada and the UK, and the authors describe and analyze examples both as individual projects and as comparable yet differing approaches. Hospice Architecture will be essential reading for anyone involved in the planning, design and construction of hospices.
This book offers a comprehensive overview of the compatibility of palliative care with the vision of human dignity in the Catholic moral and theological traditions. The unique value of this book is that it presents expert analysis of the major domains of palliative care and how they are compatible with, and enhanced by, the holistic vision of the human person in Catholic health care. This volume will serve as a critically important ethical and theological resource on palliative care, including care at the end of life, for bioethicists, theologians, palliative care specialists, other health care professionals, Catholic health care sponsors, health care administrators and executives, clergy, and students. Patients receiving palliative care and their families will also find this book to be a clarifying and reassuring resource.
The new global cancer data suggests that the global burden has risen to 18.1 million new cases per year and 9.6 million cancer deaths per year. A number of factors appear to be driving this increase, in particular, a growing and aging global population and an increase of exposure to cancer risk factors linked to social and economic development. For rapidly-growing economies, the data suggests a shift from poverty- or infection-related cancers to those associated with lifestyles more typical in industrialized countries. There is still large geographical diversity in cancer occurrence and variations in the magnitude and profile of the disease between and within world regions. There are specific types of cancer that dominate globally: lung, female breast and colorectal cancer, and the regional variations in common cancer types signal the extent to which societal, economic and lifestyle changes interplay to deferentially impact on the profile of this most complex group of diseases. Unfortunately, despite advances in cancer care, a significant proportion of patients at home, experience sub-optimal outcomes. Barriers to successful treatment outcomes include, but are not limited to: access to oncologists in the primary health centers, non-adherence, lack of experienced oncology and palliative care nurses in the community, inadequate monitoring and the lack of training of family and pediatric physicians. Telemedicine approaches, including telephone triage/education, telemonitoring, teleconsultation and status tracking through mobile applications, have shown promise in further improving outcomes, in particular for chronic cancer patients following their hospitalization. Lessons can be learned from existing hospices in North America, the United Kingdom, Australia, Centers of Excellence in African (Uganda) and modern community services in India (Kerala). An important goal of this book is to describe and encourage professionals to develop new community programs in palliative care, which include training and empowering physicians and nurses in the community on the principles of palliative care. The Middle East Cancer Consortium (MECC) together with the American Society of Clinical Oncology (ASCO) and the American Oncology Nursing Society (ONS) have conducted multiple courses ranging from basic palliative care to more specialized training in palliative care for multiple nationalities in Europe, Asia and Africa. Our experience clearly indicates that, to promote such activities, one needs strong leadership and confirmed political will to support the endeavor. The new book will emphasize the importance of having a core of multiple stakeholders including community leaders, government, NGOs and media to be actively involved in advocating for the cause and generating public awareness. This text will provide the reader with a comprehensive understanding of the outside-of-the-hospital treatment of cancer patients by medical, paramedical and volunteer personnel. In doing so, this text will encourage the creation of new palliative care services improving upon the existing ones and stimulate further research in this field. Part 1 of the text will begin with an overview of the current state of affairs of services provided to cancer patients while being cared for by primary health centers. It will also review the current literature regarding medical and psychological-based therapy options in the community for cancer patients at different stages of their disease. Part 2 will address the unique role of the community nurse, within the framework of the multidisciplinary team treating the patient, in the attempt to provide optimal evaluation and care in very challenging situations (such as with terminal patients). Part 3 will provide insightful models of this new discipline and serve as a valuable resource for physicians, nurses, social workers and others involved in the care of cancer patients. The book will take a multidisciplinary approach, integrating clinical and environmental data for practical management to enhance the efficacy of treatment while relieving suffering. Part 4 will also discuss the application of modern technological approaches to track symptoms, quality of life, diet, mobility, duration of sleep and medication use (including pain killers) in chronic cancer patients in the community. Part 5 of the book will also be devoted to modes of developing a collaborative program between governmental and non-governmental organization sectors. This includes volunteer workers in close collaboration with medical professionals for providing emotional and spiritual support, nursing care, nutritional support and empowering family caregivers. Such a model makes palliative care in the community a “people’s movement”, thus transferring part of the responsibility and ownership to the community.
Ageing population poses a set of complex policy and dilemmas for social security systems, intensifying the concerns about rising expenditures in health care and long-term care for elderly. In this context, ageing societies has many valuable lessons to learn by studying Japan's experience dealing with its hyper-aged society and particularly from its strategies to ensure the financial sustainability of the Long-Term Care Insurance (LTCI) system. Based on an exhaustive literature review, and the results from six original researches on long-term care expenditures in Japan (LTCE) conducted during a doctoral program, the book provides a comprehensive view in analyzing trends and factors associated with increasing expenditures in the Long-Term Care Insurance system in Japan. The book address relevant topics such as; the main socio-demographic changes experienced by the Japanese society during the last three decades, predictors of the LTCE, measuring efficiency in nursing homes, the impact of the LTCI 2005-reform to contain expenditures, cost-effectiveness of the in-home and community based services and institutional LTCE in the last year of life. The book end with a discussion on futures challenges and strategies oriented to contribute with the sustainability of LTCI system in Japan.
"Advance care planning (ACP) conversations and goals of care (GOC) discussions prepare patients and their substitute decision makers for medical decision making. When rooted in a patient's values and person-centred in approach, ACP and GOC discussions can optimize the likelihood a person receives care that is concordant with their goals. This chapter explores the definitions and clinical processes for ACP and GOC discussions and describes how a patient's values and goals can directly inform medical decision making. Differences in ACP among healthy individuals and seriously ill, common communication challenges and the pitfalls of a treatment-centered approach are described. We underscore the importance of illness understanding and provide tips on addressing prognosis. Finally, health care system impacts of ACP and GOC are considered"--
Specifically designed to enhance your knowledge and skills within generalist palliative care, this informative textbook provides a comprehensive overview of the principle areas you may encounter whilst working with adult palliative and end-of-life patients, and their families. The development of the text has been backed by Macmillan Cancer Support and each chapter has been written by a range of specialist and generalist authors. The topics covered include approaches to palliative care and symptom management in a wide range of conditions and populations, with chapters linked to case studies to encourage interactive learning and understanding. Communication skills are also highlighted to help aid confidence when engaging in open and difficult conversations. The text is in line with Scottish Palliative Care Guidelines and the NES Framework for Palliative and End of Life Care. The book may either be used as course reading for relevant training programmes, such as the Enhanced Palliative Care course, as well as by healthcare professionals hoping to develop their skills and practice. It is aimed at anyone involved in management and prescribing within non-specialist palliative care, both in hospitals and in the community, including paramedics, nurses, doctors, pharmacists, and other key health professionals.
Volunteers will have a vital role in delivering the services of the future. This book explores volunteering in hospice and palliative care worldwide, analysing how and why volunteering is changing. Key topics discussed include influences of culture, legislation, and the place of volunteering within the multi-professional team.
This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning
This book explores the implications and significant ethical, social, economic and health challenges that an ageing world population presents. It provides valuable insights on concerns related to providing, organizing, planning and managing care for older persons in both formal and informal settings. As the number of older persons increases rapidly around the globe, caring for them is a very important aspect of all ageing and aged societies. While in most countries the care of older persons is provided informally by family members, the changing social scene, family structures and work and employment patterns are leading many nations to create provisions for formal care through institutions or paid services of caregivers. This book offers perspectives on formal and informal care from countries such as Japan, the Netherlands, the USA, India, South Africa and Poland, among others. The essays in this book underline a rights-based approach and focus on ethical, social, economic, health and legal aspects of care as they pertain to the universal phenomena of ageing as well as the specific demographic and epidemiological realities of the selected countries. They discuss concerns such as long-term care provisions, catering to the needs of people affected by dementia, providing residential care, taking the needs of family care providers into account, the growing requirement for paid care workers and channelizing training of both skilled and semi-skilled care providers to suit the needs of older people. This volume would be of interest to scholars and those working in the fields of sociology, health studies, age and ageing, psychology, social work, medical sciences, nursing and public policy. It will also be useful to NGO sector workers, administrators, as well as grassroots workers involved with the care of older persons.
