Becoming Disabled
Becoming Disabled

Author: Jan Doolittle Wilson

Publisher: Rowman & Littlefield

Published: 2021-06-28

Total Pages: 327

ISBN-13: 1793643709

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Using an autoethnographic approach, as well as multiple first-person accounts from disabled writers, artists, and scholars, Jan Doolittle Wilson describes how becoming disabled is to forge a new consciousness and a radically new way of viewing the world. In Becoming Disabled, Wilson examines disability in ways that challenge dominant discourses and systems that shape and reproduce disability stigma and discrimination. It is to create alternative meanings that understand disability as a valuable human variation, that embrace human interdependency, and that recognize the necessity of social supports for individual flourishing and happiness. From her own disability view of the world, Wilson critiques the disabling impact of language, media, medical practices, educational systems, neoliberalism, mothering ideals, and other systemic barriers. And she offers a powerful vision of a society in which all forms of human diversity are included and celebrated and one in which we are better able to care for ourselves and each other.

Being Heumann
Being Heumann

Author: Judith Heumann

Publisher: Beacon Press

Published: 2020-02-25

Total Pages: 458

ISBN-13: 080701950X

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A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."— Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy’s struggle for equality began early in life. From fighting to attend grade school after being described as a “fire hazard” to later winning a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, Judy’s actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples’ rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann’s memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.

Disability Visibility
Disability Visibility

Author: Alice Wong

Publisher: Vintage

Published: 2020-06-30

Total Pages: 338

ISBN-13: 1984899422

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“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

How I Became a Human Being
How I Became a Human Being

Author: Mark O'Brien

Publisher: University of Wisconsin Pres

Published: 2003-05-15

Total Pages: 278

ISBN-13: 0299184331

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In September 1955 six-year-old Mark O’Brien moved his arms and legs for the last time. He came out of a coma to find himself enclosed from the neck down in an iron lung, the machine in which he would live for much of the rest of his life. For the first time in paperback, How I Became a Human Being is O’Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O’Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O’Brien crafts a narrative that is as rich and vivid as the life he led.

War and Embodied Memory
War and Embodied Memory

Author: Maria Berghs

Publisher: Routledge

Published: 2016-02-17

Total Pages: 275

ISBN-13: 1317000552

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How do you become an 'amputee', 'war-wounded', 'victim' or 'disabled' person? This book describes how an amputee and war-wounded community was created after a decade long conflict (1991-2002) in Sierra Leone. Beginning with a general socio-cultural and historical analysis of what is understood by impairment and disability, it also explains how disability was politically created both during the conflict and post-conflict, as violence became part of the everyday. Despite participating in the neoliberal rebuilding of the nation state, ex-combatants and the security of the nation were the government’s main priorities, not amputee and war-wounded people. In order to survive, people had to form partnerships with NGOs and participate in new discourses and practices around disability and rights, thus accessing identities of 'disabled' or 'persons with disabilities'. NGOs, charities and religious organisations that understood impairment and disability were most successful at aiding this community of people. However, since discourse and practice on disability were mainly bureaucratic, top-down, and not democratic about mainstreaming disability, neoliberal organisations and INGOs have caused a new colonisation of consciousness, and amputee and war-wounded people have had to become skilled in negotiating these new forms of subjectivities to survive.

The Future of Disability in America
The Future of Disability in America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2007-10-24

Total Pages: 619

ISBN-13: 0309104726

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The future of disability in America will depend on how well the U.S. prepares for and manages the demographic, fiscal, and technological developments that will unfold during the next two to three decades. Building upon two prior studies from the Institute of Medicine (the 1991 Institute of Medicine's report Disability in America and the 1997 report Enabling America), The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. This book offers a comprehensive look at a wide range of issues, including the prevalence of disability across the lifespan; disability trends the role of assistive technology; barriers posed by health care and other facilities with inaccessible buildings, equipment, and information formats; the needs of young people moving from pediatric to adult health care and of adults experiencing premature aging and secondary health problems; selected issues in health care financing (e.g., risk adjusting payments to health plans, coverage of assistive technology); and the organizing and financing of disability-related research. The Future of Disability in America is an assessment of both principles and scientific evidence for disability policies and services. This book's recommendations propose steps to eliminate barriers and strengthen the evidence base for future public and private actions to reduce the impact of disability on individuals, families, and society.

Being Seen
Being Seen

Author: Elsa Sjunneson

Publisher: Simon and Schuster

Published: 2021-10-26

Total Pages: 288

ISBN-13: 1982152419

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A deafblind writer and professor explores how the misrepresentation of disability in books, movies, and TV harms both the disabled community and everyone else. As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they’re whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be. As a media studies professor, she’s also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Sight Unseen
Sight Unseen

Author: Georgina Kleege

Publisher:

Published: 1999

Total Pages: 233

ISBN-13: 9780300076806

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Describes what it is like to be blind, or to be thought of as blind by sighted society, discusses how blindness has been portrayed in literature and film, and recounts the author's experiences adjusting to macular degeneration, learning braille, and coping with the inability to establish eye contact

Being Disabled, Becoming a Champion
Being Disabled, Becoming a Champion

Author: Nicolas Bancel

Publisher: Routledge

Published: 2020-06-29

Total Pages: 181

ISBN-13: 0429588941

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Being Disabled, Becoming a Champion is an accessible presentation of current European research on the most recent evolutions in sports for people with disabilities, demonstrating knowledge developed from the field of sports practices of people with disabilities. It covers three interrelated themes. First, it covers the different facets of the history of sports organizations set up during the 1950s for athletes with motor or intellectual impairments. The second part focuses on the athletes themselves. Voices are given to the top-level athletes in adapted sports: people with intellectual impairment; the pioneers of wheelchair racing who invented a new discipline, off-road wheelchair racing; and a former Paralympic athlete who has become a researcher and a defender of specific sports practices. Finally, the third part interrogates the way support for disabled people can modify the existing definitions and conceptions of the body, of disability, of what is human, and of sports performance. This is an ideal text for students and researchers studying and working in the areas of Disability Studies, Sport Sciences and Paralympic Studies. This book was originally published as a special issue of Sport in Society.