In recent years the study of illness as experienced by patients has emerged as an approach to understanding sickness. Descriptions of the everyday situations of people with particular diseases, provide a commentary upon the nature of symptoms and upon the relation of the body to society. This approach stresses the biographical and cultural contexts in which illness arises and is borne by individuals and those who care for them. It emphasises the need to understand illness in terms of the patients own interpretation, of its onset, the course of its progress and the potential of the treatment for the condition. Worlds of Illness examines people's experience of illness and their understanding of what it means to be healthy. The contributors are the first to offer this biographic and cultural approach in one volume, redefining the perspective further and drawing attention to its potential for questioning theoretical assumptions about health and illness.
What is illness? Is it a physiological dysfunction, a social label, or a way of experiencing the world? How do the physical, social and emotional worlds of a person change when they become ill? And can there be well-being within illness? In this remarkable and thought-provoking book, Havi Carel explores these questions by weaving together the personal story of her own serious illness with insights and reflections drawn from her work as a philosopher. Carel's fresh approach to illness raises some uncomfortable questions about how we all - whether healthcare professionals or not - view the ill and challenges us to become more thoughtful. 'Illness' unravels the tension between the universality of illness and its intensely private, often lonely, nature. It offers a new way of looking at a matter that affects every one of us.
This book discusses the languages of illness which we use to present our discomforts to others through an exploration of the child's world of illness. It looks at how illness concepts are introduced to children, how the causes of illness and 'germ' rationales are incorporated into the socialisation of children, and how a particular morality about health and illness is expressed.
Medical practitioners and the ordinary citizen are becoming more aware that we need to understand cultural variation in medical belief and practice. The more we know how health and disease are managed in different cultures, the more we can recognize what is "culture bound" in our own medical belief and practice. The Encyclopedia of Medical Anthropology is unique because it is the first reference work to describe the cultural practices relevant to health in the world's cultures and to provide an overview of important topics in medical anthropology. No other single reference work comes close to marching the depth and breadth of information on the varying cultural background of health and illness around the world. More than 100 experts - anthropologists and other social scientists - have contributed their firsthand experience of medical cultures from around the world.
Can You Help Me?: Living in the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it. With a brief history of Huntington Disease and the occasional scientific detail, the true heart of the book is the human experience of the disorder: � The man who cannot stay out of prison because he is addicted to being a burglar. � Another man shoots and kills his roommate while watching television and cannot explain why he did it. � The woman with Huntington Disease copes with her depression by using Texas line dancing. � A twelve year old girl with juvenile Huntington Disease who can barely walk and talk, but her classmates rally around with touching and heartfelt support. � And the 72 year old man with late onset Huntington Disease and severe depression is made worse by ECT, but improved (for a while) with Transcranial Magnetic Stimulation. These are just some of the compelling stories of people of all ages and in all walks of life who feel trapped by a progressive degenerative brain disease from which there is no escape.
From one of the world's foremost physicians and researchers comes a monumental work that radically redefines conventional conceptions of health and illness to offer new methods for living a long, healthy life.
A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
Global Public Health Vigilance is the first sociological book to investigate recent changes in how global public health authorities imagine and respond to international threats to human health. This book explores a remarkable period of conceptual innovation during which infectious disease, historically the focus of international disease control, was displaced by "international public health emergencies," a concept that brought new responsibilities to public health authorities, helping to shape a new project of global public health security. Drawing on research conducted at the World Health Organization, this book analyzes the formation of a new social apparatus, global public health vigilance, for detecting, responding to and containing international public health emergencies. Between 1995 and 2005 a new form of global health surveillance was invented, international communicable disease control was securitized, and international health law was fundamentally revised. This timely volume raises critical questions about the institutional effects of the concept of emerging infectious diseases, the role of the news media in global health surveillance, the impact of changes in international health law on public health reasoning and practice, and the reconstitution of the World Health Organization as a power beyond national sovereignty and global governance. It initiates a new research agenda for social science research on public health.
Epidemics and the Modern World uses "biographies" of epidemics such as plague, tuberculosis, and HIV/AIDS to explore the impact of diseases on society from the fourteenth century to the twenty-first century.
In recent years the study of illness as experienced by patients has emerged as an approach to understanding sickness. Descriptions of the everyday situations of people with particular diseases provide a commentary upon the nature of symptoms and upon the relation of the body to society. This approach stresses the biographical and cultural contexts in which illness arises and is borne by individuals and those who care for them. It emphasizes the need to understand illness in terms of the patients' own interpretation, of its onset, the course of its progress and the potential of the treatment for the condition. Worlds of Illness examines people's experience of illness and their understanding of what it means to be healthy. It brings together for the first time in one volume contributors from a variety of fields who use a biographic and cultural approach. Worlds of Illness will be invaluable to all social science researchers, especially to lecturers and students of medical sociology, psychology and anthropology.
