Caring for a person with dementia is a difficult and often- overwhelming task. In addition to the inevitable decline in memory and physical function, most persons with dementia develop one or more troublesome behavior problems, such as depression, fearfulness, sleep disturbances, paranoia, or physical aggression at some point in their disease. Behavioral challenges in dementia are highly idiosyncratic. No two patients are alike, and interventions that work well with one person are often ineffective with another. Caregivers often become stuck: either unable to figure out how best to help their loved one, or unable to consistently implement positive practices they know would improve their situation. This book offers caregivers a set of practical and flexible tools to enable them become more resilient in the face of difficulty and change. McCurry teaches caregivers how to take advantage of their own creativity and inner resources to develop strategies that will work in their unique situations. She presents her set of five core principles and then brings them to life through vignettes. Anyone who lives, works, or comes in contact with a person who has dementia will benefit from this volume.
Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
If you are facing the unique challenges of caring for a parent with dementia, you are not alone. What do you do when your loved one so plainly needs assistance, but is confused, angry, or resistant to your help? Where can you find the vital information you need, when you need it? Journalist Thomas Harrison and leading geriatric psychiatrist Brent Forester show that you don’t have to be a medical expert to be a good care provider in this authoritative guide. They explain the basics of dementia and offer effective strategies for coping with the medical, emotional, and financial toll. With the right skills, you can navigate changing family roles, communicate better with your parent, keep him or her safe, and manage difficult behaviors. Learn how to "care smarter, not harder"--and help your loved one maintain the best possible quality of life. Winner (Second Place)--American Journal of Nursing Book of the Year Award, Consumer Health Category Winner (Third Place)--Foreword INDIES Book of the Year Award, Family & Relationships Category
Your needs as a caregiver are just as important as those your family member with Alzheimer's Disease or dementia. This book will provide just the insight and guidance you need. Caregiving for a loved one with Alzheimer's disease or dementia is hard. It's hard whether you're caring for your spouse, parent, grandparent, sibling, other family member, or friend. Even if you had an extra ten hours each day to do it, it's hard to manage all the problems that come with dementia. And caring for a loved one with dementia can sometimes feel like a long, lonely journey. Six Steps to Managing Alzheimer's Disease and Dementia can help, addressing concerns such as: · Is the problem Alzheimer's, dementia, or something else? · How do you approach problems in dementia? · How do you manage problems with memory, language, and vision? · How do you cope with emotional and behavioral problems? · What are the best ways to manage troubles with sleep and incontinence? · Which medications can help? · Which medications can actually make things worse? · How do you build your care team? · Why is it important to care for yourself? · How do you sustain your relationship with your loved one? · How do you plan for the progression of dementia? · How do you plan for the end and beyond? Six Steps to Managing Alzheimer's Disease and Dementia is comprehensive yet written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer's disease and dementia.
The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
'Inspiring' GUARDIAN 'Heartbreaking' INDEPENDENT 'I loved it' ADAM KAY 'Beautiful' MATT HAIG 'Luminous' NICCI GERRARD 'Essential reading' MADELEINE BUNTING 'A celebration' CHRISTIE WATSON ----- A Best Book for Summer in The Times, Guardian and The i Independent Book of the Month ----- Caring is an issue that affects us all - as bestselling novelist Kate Mosse knows all too well. Kate has cared in turn for her father and mother, and for Granny Rosie, her 90-year-old mother-in-law. Along the way she has experienced the joys, challenges and frustrations shared by an invisible army of carers. At the heart of this care lie everyday acts of love, and the realisation that, sooner or later, most of us will come to rely on an extra pair of hands. ----- 'Lifts the spirits without pulling punches' IAN RANKIN 'Irresistible' RACHEL JOYCE 'Questions how and why we fetishise independence when the reality of human experience is always interdependence' GUARDIAN, BOOK OF THE DAY 'Heartfelt, funny and at times heartbreaking. 10/10' INDEPENDENT 'Utterly beautiful' FRANCESCA SEGAL
