This book presents the lives of people with intellectual disabilities as a series of transitions and offers us a view of the world that is as complex as any other. The contributors have extensive research experience in this field and provide a comprehensive review of their research, drawing out the implications for policy and practice.
One claim made for the policy of care in the community was that it would rescue people with intellectual disabilities from social marginality. To what extent has this promise been fulfilled and their lives transformed? David May presents the lives of people from this group as a series of transitions and offers us a view of the world that is as complex and changeable as any other. Each section covers a different aspect of choice, opportunity and transition on the lifepath, for example, * moving from home to school * leaving school * employment * living independently and * growing old The contributors have extensive research experience in the field of intellectual disabilities and provide a comprehensive review of this research, drawing out the implications for policy and practice. This book will be an invaluable resource for professionals and carers working with those with intellectual disabilities, as well as their families.
This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.
As much as everyone groans from time to time about the humdrum and stresses of work, retirement is an unsettling prospect for most people. It's a major transition in anyone's life and change of this magnitude often arouses anxiety. This is much more so for people with disability, particularly intellectual disability. But, as this manual shows, it doesn't have to be like that. The Transition to Retirement (TTR) program has been developed in response to a genuine problem: the need for an effective approach to supporting older employees to build an active, socially inclusive lifestyle after retirement. The approach mapped out in this manual may not be the solution for all workers with disability, but it will certainly assist quite a few. The TTR program emphasises social inclusion. It is consistent with the focus of the National Disability Insurance Scheme (NDIS) on building community participation and independence. It is also consistent with the National Disability Strategy's emphasis on promoting social inclusion in mainstream community settings and service systems. The TTR program supports ageing people with disability to develop new interests, skills and social networks, and facilitates their participation in mainstream community groups. With the manual comes a series of video clips which makes the idea of inclusive activities in retirement easily understandable to people with disability, their families and community organisations.
"This book provides an interdisciplinary approach to the challenges of the interface between disability & culture. Twelve papers discuss the following topics: Towards a cultural model of disability. Disability Values, Representations & Realities. Labeling "
Part 1: Philosophical, theoretical and rights based framework of inclusion -- From institutionalisation to inclusion / Patricia O'Brien and Michelle L. Bonati -- Widening higher education opportunities for students with intellectual disabilities: An overview of program issues and policy implications / Barrie O'Connor, Deborah Espiner and Molly O'Keeffe -- Setting the scene for people with disability to experience university life / Roger Slee -- Part 2: Evidence-based outcomes arising from inclusive university programs across international boundaries -- Inclusive post-secondary education: 30 years: scope, challenges and outcomes / Anne Hughson and Bruce Uditsky -- Inclusive higher education for people with intellectual disability in the United States: An overview of policy, practice, and outcomes / Meg Grigal, Debra Hart and Clare Papay -- Developing an inclusive model of postsecondary education for students with intellectual disability: challenges and outcomes / Anthony J. Plotner, Kathleen J. Marshall, Chelsea Vanhorn Stinnett and Kimberly Teasley.
The transition from high school is challenging for any student, but for young adults with disabilities, it can be even more difficult. In addition to adjusting to increased academic demands in an environment where there is less structure and support, students have to navigate a disability services system that is very different from the one they knew in high school. But with the proper preparation, students can enjoy success! This practical guide explains how the system for accommodations works, describes students' rights and responsibilities within that system, and employs the voices of seasoned professionals and college students to explain the skills and strategies students should develop while they are in high school to ensure success when they reach college. As a bonus, it also offers answers to questions students with disabilities frequently ask about disclosing their disability in the admissions process.
