A funny, moving, and true story of an ordinary boy with an extraordinary face that's perfect for fans of Wonder—now available in the U.S. When Robert Hoge was born, he had a tumor the size of a tennis ball in the middle of his face and short, twisted legs. Surgeons removed the tumor and made him a new nose from one of his toes. Amazingly, he survived—with a face that would never be the same. Strangers stared at him. Kids called him names, and adults could be cruel, too. Everybody seemed to agree that he was “ugly.” But Robert refused to let his face define him. He played pranks, got into trouble, had adventures with his big family, and finally found a sport that was perfect for him to play. And Robert came face to face with the biggest decision of his life, he followed his heart. This poignant memoir about overcoming bullying and thriving with disabilities shows that what makes us “ugly” also makes us who we are. It features a reflective foil cover and black-and-white illustrations throughout.
Terry Healey was a junior at the University of California at Berkeley. At the age of twenty, his life had been smooth sailing, seldom interrupted with adversity or difficulty. Terry was confident and not concerned much with his appearance. But out of nowhere, a lump formed behind his right nostril. Cancer. He fought it and survived. But after multiple surgeries and radiation treatment, Terry would discover that he hadn't even begun to deal with what would become his greatest struggle for years to come -- the disfigurement that resulted from it.
A Schneider Family Book Award Honor Book for Teens "Raw and unflinching . . . A must-read!" --Marieke Nijkamp, #1 New York Times-bestselling author of This Is Where It Ends "[It] cuts to the heart of our bogus ideas of beauty." –Scott Westerfeld, #1 New York Times-bestselling author of Uglies I am ugly. There's a mathematical equation to prove it. At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.
A CBC BOOKS BEST NONFICTION OF 2020 AN ENTROPY MAGAZINE BEST NONFICTION 2020/21 A NEW YORK PUBLIC LIBRARY BOOK OF THE DAY (07/23/2022) Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? If every disabled character is mocked and mistreated, how does the Beast ever imagine a happily-ever-after? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference. "Historically we have associated the disabled body image and disabled life with an unhappy ending” – Sue Carter, Toronto Star "Leduc persuasively illustrates the power of stories to affect reality in this painstakingly researched and provocative study that invites us to consider our favorite folktales from another angle." – Sara Shreve, Library Journal "She [Leduc] argues that template is how society continues to treat the disabled: rather than making the world accessible for everyone, the disabled are often asked to adapt to inaccessible environments." – Ryan Porter, Quill & Quire "Read this smart, tenacious book." – The Washington Post "A brilliant young critic named Amanda Leduc explores this pernicious power of language in her new book, Disfigured … Leduc follows the bread crumbs back into her original experience with fairy tales – and then explores their residual effects … Read this smart, tenacious book." – The Washington Post "Leduc investigates the intersection between disability and her beloved fairy tales, questioning the constructs of these stories and where her place is, as a disabled woman, among those narratives." – The Globe and Mail "It gave me goosebumps as I read, to see so many of my unexpressed, half-formed thoughts in print. My highlighter got a good workout." – BookRiot "Disfigured is not just an eye-opener when it comes to the Disney princess crew and the Marvel universe – this thin volume provides the tools to change how readers engage with other kinds of popular media, from horror films to fashion magazines to outdated sitcom jokes." – Quill & Quire “It’s an essential read for anyone who loves fairy tales.” – Buzzfeed Books "Leduc makes one thing clear and beautifully so – fairy tales are fundamentally fantastic, but that doesn’t mean that they are beyond reproach in their depiction of real issues and identities." – Shrapnel Magazine "As Leduc takes us through these fairy tales and the space they occupy in the narratives that we construct, she slowly unfolds a call-to-action: the claiming of space for disability in storytelling." – The Globe and Mail "A provocative beginning to a thoughtful and wide-ranging book, one which explores some of the most primal stories readers have encountered and prompts them to ponder the subtext situated there all along." – LitHub "a poignant and informative account of how the stories we tell shape our collective understanding of one another.” – BookMarks "What happens when we allow disabled writers to tell stories of disability within fairytales and in magical and supernatural settings? It is a reimagining of the fairytale canon we need. Leduc dares to dream of a world that most stories envision is unattainable." – Bitch Media
In Democracy Disfigured, Nadia Urbinati diagnoses the ills that beset the body politic in an age of hyper-partisanship and media monopolies and offers a spirited defense of the messy compromises and contentious outcomes that define democracy. Urbinati identifies three types of democratic disfiguration: the unpolitical, the populist, and the plebiscitarian. Each undermines a crucial division that a well-functioning democracy must preserve: the wall separating the free forum of public opinion from governmental institutions that enact the will of the people. Unpolitical democracy delegitimizes political opinion in favor of expertise. Populist democracy radically polarizes the public forum in which opinion is debated. And plebiscitary democracy overvalues the aesthetic and nonrational aspects of opinion. For Urbinati, democracy entails a permanent struggle to make visible the issues that citizens deem central to their lives. Opinion is thus a form of action as important as the mechanisms that organize votes and mobilize decisions. Urbinati focuses less on the overt enemies of democracy than on those who pose as its friends: technocrats wedded to procedure, demagogues who make glib appeals to "the people," and media operatives who, given their preference, would turn governance into a spectator sport and citizens into fans of opposing teams.
This book is open access under a CC-BY 4.0 license. This book examines social and medical responses to the disfigured face in early medieval Europe, arguing that the study of head and facial injuries can offer a new contribution to the history of early medieval medicine and culture, as well as exploring the language of violence and social interactions. Despite the prevalence of warfare and conflict in early medieval society, and a veritable industry of medieval historians studying it, there has in fact been very little attention paid to the subject of head wounds and facial damage in the course of war and/or punitive justice. The impact of acquired disfigurement —for the individual, and for her or his family and community—is barely registered, and only recently has there been any attempt to explore the question of how damaged tissue and bone might be treated medically or surgically. In the wake of new work on disability and the emotions in the medieval period, this study documents how acquired disfigurement is recorded across different geographical and chronological contexts in the period.
The portrayal of disfigurement in the UK media must change. This policy brief is based on recent research that found a general negative and sensationalised attitude towards disfigurement in the media. Disfigurement is a condition that can affect anyone at any time in life regardless their social or demographic background due to accidents or health conditions or be congenital. In the UK, one in 111 people have facial disfigurements. In order to improve the ways in which media portray disfigurement, this policy brief argues that media should move away from sensationalised coverage on disfigurement and focus instead on the lived experiences of individuals with this condition. It recommends strengthening diversity-oriented editorial practices and training as well as media literacy education. In addition, it addresses the lack of guidelines on the portrayal of disfigurement and urges regulatory bodies to be more efficient in handling complaints.
A severely burned teenager. A guitar. Punk rock. The chords of a rock 'n' roll road trip in a coming-of-age novel that is a must-read story about finding your place in the world . . . even if you carry scars inside and out. In attempting to describe himself in his college application essay—to "help us to become acquainted with you beyond your courses, grades, and test scores"—Harbinger (Harry) Jones goes way beyond the 250-word limit and gives a full account of his life. The first defining moment: the day the neighborhood goons tied him to a tree during a lightning storm when he was 8 years old, and the tree was struck and caught fire. Harry was badly burned and has had to live with the physical and emotional scars, reactions from strangers, bullying, and loneliness that instantly became his everyday reality. The second defining moment: the day in eighth grade when the handsome, charismatic Johnny rescued him from the bullies and then made the startling suggestion that they start a band together. Harry discovered that playing music transported him out of his nightmare of a world, and he finally had something that compelled people to look beyond his physical appearance. Harry's description of his life in his essay is both humorous and heart-wrenching. He had a steeper road to climb than the average kid, but he ends up learning something about personal power, friendship, first love, and how to fit in the world. While he's looking back at the moments that have shaped his life, most of this story takes place while Harry is in high school and the summer after he graduates.
An exploration of the relations between medical and religious discourse and practice in medieval culture, focussing on how they are affected by gender.
"I spent five years of my life being treated for cancer, but since then I've spent fifteen years being treated for nothing other than looking different from everyone else. It was the pain from that, from feeling ugly, that I always viewed as the great tragedy of my life. The fact that I had cancer seemed minor in comparison." At age nine, Lucy Grealy was diagnosed with a potentially terminal cancer. When she returned to school with a third of her jaw removed, she faced the cruel taunts of classmates. In this strikingly candid memoir, Grealy tells her story of great suffering and remarkable strength without sentimentality and with considerable wit. Vividly portraying the pain of peer rejection and the guilty pleasures of wanting to be special, Grealy captures with unique insight what it is like as a child and young adult to be torn between two warring impulses: to feel that more than anything else we want to be loved for who we are, while wishing desperately and secretly to be perfect.
