South Africa has the world's largest number of people living with HIV. This book offers a history of AIDS activism in South Africa from its origins in gay and anti-apartheid activism to the formation and consolidation of the Treatment Action Campaign (TAC), including its central role in the global HIV treatment access movement.
Speech and Song at the Margins of Global Health tells the story of a unique Zulu gospel choir comprised of people living with HIV in South Africa, and how they maintained healthy, productive lives amid globalized inequality, international aid, and the stigma that often comes with having HIV. By singing, joking, and narrating about HIV in Zulu, the performers in the choir were able to engage with international audiences, connect with global health professionals, and also maintain traditional familial respect through the prism of performance. The focus on gospel singing in the narrative provides a holistic viewpoint on life with HIV in the later years of the pandemic, and the author’s musical engagement led to fieldwork in participants’ homes and communities, including the larger stigmatized community of infected individuals. This viewpoint suggests overlooked ways that aid recipients contribute to global health in support, counseling, and activism, as the performers set up instruments, waited around in hotel lobbies, and struck up conversations with passersby and audience members. The story of the choir reveals the complexity and inequities of global health interventions, but also the positive impact of those interventions in the crafting of community.
AIDS, Sex, and Culture is a revealing examination of the impact the AIDS epidemic in Africa has had on women, based on the author's own extensive ethnographic research. based on the author's own story growing up in South Africa looks at the impact of social conservatism in the US on AIDS prevention programs discussion of the experiences of women in areas ranging from Durban in KwaZulu Natal to rural settlements in Namibia and Botswana includes a chapter written by Sibongile Mkhize at the University of KwaZulu Natal who tells the story of her own family’s struggle with AIDS
This book explores the normalization of HIV and AIDS, reflecting upon the intended and unintended consequences of the multifarious "AIDS industry." The Normalization of the HIV and AIDS Epidemic in South Africa deals with the manner in which the HIV and AIDS epidemic has become such a well-known disease with such wide-ranging ramifications. With its focus on the "AIDS industry," this book examines issues such as the framing of the HIV and AIDS epidemic in a manner that greatly fostered notions of stigmatization and moralization. This book looks at the complexities of dealing with the epidemic in contemporary South Africa, examining the difficulties of addressing the social aspects of a disease in the context of increased focus on technological quick-fix solutions. De Wet explores these issues thoroughly, looking at the social determinants of the spread of the disease as well as the configuration and the nature of the responses to it, and their increasing marginalization as factors to address in an era of increased biomedicalization and concomitant normalization. This book will intrigue scholars and students of public health, global health care, medical sociology, and African Studies.
In the decades since it was identified in 1981, HIV/AIDS has devastated African American communities. Members of those communities mobilized to fight the epidemic and its consequences from the beginning of the AIDS activist movement. They struggled not only to overcome the stigma and denial surrounding a "white gay disease" in Black America, but also to bring resources to struggling communities that were often dismissed as too "hard to reach." To Make the Wounded Whole offers the first history of African American AIDS activism in all of its depth and breadth. Dan Royles introduces a diverse constellation of activists, including medical professionals, Black gay intellectuals, church pastors, Nation of Islam leaders, recovering drug users, and Black feminists who pursued a wide array of grassroots approaches to slow the epidemic's spread and address its impacts. Through interlinked stories from Philadelphia and Atlanta to South Africa and back again, Royles documents the diverse, creative, and global work of African American activists in the decades-long battle against HIV/AIDS.
An ethnographic account of the South African AIDS movement and activists From the historical roots of AIDS activism in the struggle for African liberation to the everyday work of community education in Khayelitsha, Sustaining Life tells the story of how the rights-based South African AIDS movement successfully transformed public health institutions, enabled access to HIV/AIDS treatment, and sustained the lives of people living with the disease. Typical accounts of the South African epidemic have focused on the political conflict surrounding it, Theodore Powers observes, but have yet to examine the process by which the national HIV/AIDS treatment program achieved near-universal access. In Sustaining Life, Powers demonstrates the ways in which non-state actors, from caregivers to activists, worked within the state to transform policy and state-based institutions in order to improve health-based outcomes. He shows how advocates in the South African AIDS movement channeled the everyday experiences of poor and working-class people living with HIV/AIDS into tangible policy changes at varying institutional levels, revealing the primacy of local action for expanding treatment access. In his analysis of the transformation of the state health system, Powers addresses three key questions: How were the activists of the movement able to overcome an AIDS-dissident faction that was backed by government power? How were state health institutions and HIV/AIDS policy transformed to increase public sector access to treatment? Finally, how should the South African campaign for treatment access inform academic debates on social movements, transnationalism, and the state? Based on extended participant observation and in-depth interviews with members of the South African AIDS movement, Sustaining Life traces how the political principles of the anti-apartheid movement were leveraged to build a broad coalition that changed national HIV/AIDS policy norms and highlights how changes in state-society relations can be produced by local activism.
The story of America's unlikeliest, least-known, yet greatest achievement this millennium: containing AIDS in Africa. As of 2003, there were nearly 27 million men, women, and children suffering from AIDS in sub-Saharan Africa. Today that number has been reduced by more than half. The number of people with access to antiretroviral drugs--a treatment which renders AIDS survivable rather than fatal--has gone from around 50,000 to more than 11 million. All of this is thanks to a Bush administration program known as PEPFAR. Even on the day of its launch during the 2003 State of the Union, no one much noticed it. It cost a fraction of a percentage of the overall budget and was far less expensive than the Iraq war, effectively announced on the same day. Yet PEPFAR is, according to journalist Emily Bass, "the best thing America has done beyond our borders in this century." To End a Plague is not merely a history of this extraordinary program; it describes the cost of success in our broken political system. PEPFAR was likely a cynical political ploy--a "legislative trophy" as the New York Times described it--and its overseers, including the now-famous Coronavirus Task Force leader Deborah Birx--had to make moral and political compromises to keep it from being shut down. Yet the program has persevered and made an enormous improvement in millions of lives. This is the story of true change and what it takes to make it.
Viewing contemporary history from the perspective of the AIDS crisis, Jennifer Brier provides rich, new understandings of the United States' complex social and political trends in the post-1960s era. Brier describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy, even in the face of the expansion of the New Right. Infectious Ideas places recent social, cultural, and political events in a new light, making an important contribution to our understanding of the United States at the end of the twentieth century.
The global expansion of HIV programming (HIV "scale-up") and the growth of global health in the past decade reshaped politics, power, civic relations, and citizen subjectivities in countries across the globe. This book draws on interdisciplinary research from numerous sites in the Global South to examine the political dimensions of HIV and global health programming. The chapters reflect extensive methodological diversity and geographic range, yet exhibit striking resonance with the book’s core themes. Collectively, the authors paint a complex global portrait of a unique period in the social history of HIV, as the pandemic enters its fourth decade, and the global response reaches its peak. The book contemplates "scale-up" (and, subsequently, "scale-down") as an object of analysis and an historical shift in the politics of response to global crisis. Ultimately, HIV/AIDS campaigns provide a template for the broader expansion of global health projects and institutions. These transnational shifts and expansions necessitate further critical evaluations across social science and public health disciplines. By collecting diverse perspectives on the political legacies of HIV and global health, this book provides a unique history of the present, cataloguing emerging practices and policies that will have long-term social impacts. This book was originally published as a special issue of Global Public Health.