Making data portability more effective for the digital economy

Making data portability more effective for the digital economy

Author: Jan Krämer

Publisher: Centre on Regulation in Europe asbl (CERRE)

Published: 2020-06-15

Total Pages: 103

ISBN-13:

DOWNLOAD EBOOK

This study provides recommendations on how to make personal data portability more effective. This will truly empower consumers to use the services they want and share their data with whoever they wish and stimulate innovation in Europe. With the entry into force of the GDPR, European citizens gained new rights, notably with data portability. But two years later, there is still little sign of people exercising this right, and of companies offering an easy and convenient service for data portability. While the European Commission is finalising its evaluation of the GDPR and closes its consultation on the European data strategy, the authors, professors Jan Krämer, Pierre Senellart and Alexandre de Streel*, warn that the current legal framework requires clarifications to better empower European citizens in a data-driven society. In this study, they identify barriers to data portability, including the lack of possibilities to import data as well as the lack of common standards and tools to access data as easy as the click of a button. The ability to provide users with a centralised dashboard for monitoring and controlling the flow of their data is also critically missing. “Today, consumers do not widely use data portability for reasons that can and should be overcome. Making data portability more effective is better for competition, for innovation and to empower users,” stress the authors. “There should be no second-guessing on whether to make data portability more effective, the time to act is now.” The current EU framework encourages data portability, but there are legal gaps that the EU should fill. The authors insist on the need for detailed guidance on how data portability can be facilitated and on which data is subject to data portability without violating privacy rights. They advocate that data provided by users when using a service, such as search history (i.e. “observed data”) should clearly be included under the scope of data portability. The authors consider it essential that the obligation to offer standardised Application Programming Interfaces (APIs) be much more widespread to enable consumers to continuously port their data. “We believe that standardised APIs that enable continuous data portability is a prerequisite for encouraging more organisations to import personal data, and for encouraging more consumers to initiate such transfers,” explain the authors. Projects, such as the Data Transfer Project have highlighted that continuous data portability is technically feasible. The authors argue that Personal Management Information Systems (PIMSs) facilitate the complex consent management and offer users a centralised dashboard for monitoring and controlling the flow of their data will have a crucial role to play for the wider adoption of data portability. “It must be as easy as clicking a button for consumers to continuously share data they created with one provider to another provider. This may also require educating and informing users on their rights through information campaigns alongside clear policy measures,” explain the authors. Nevertheless, they stress that PIMSs are not likely to find a sustainable business model, and thus, policy makers should support the emergence of open-source projects by setting common standards for data transfers, consent management, and identity management.


Regulating the Collaborative Economy in the European Union Digital Single Market

Regulating the Collaborative Economy in the European Union Digital Single Market

Author: Marco Inglese

Publisher: Springer Nature

Published: 2019-11-11

Total Pages: 198

ISBN-13: 3030300404

DOWNLOAD EBOOK

This book critically assesses how the rise of the collaborative economy in the European Union Digital Single Market is disrupting consolidated legal acquisitions, such as classical internal market categories, as well as the applicability of consumer protection, data protection, and labour and competition law. It argues that the collaborative economy will, sooner or later, require some sort of regulatory intervention from the European Union. This regulatory intervention, far from stifling innovation, will benefit online platforms, service providers and users by providing them with a clearer and more predictable environment in which to conduct their business. Although primarily intended for academics, this book also appeals to a wider readership, including, but not limited to, national and international regulators, private firms and lobbies as well as online platforms, consumer associations and trade unions.


Regulating New Technologies in Uncertain Times

Regulating New Technologies in Uncertain Times

Author: Leonie Reins

Publisher: Springer

Published: 2019-03-21

Total Pages: 314

ISBN-13: 9462652791

DOWNLOAD EBOOK

This book deals with questions of democracy and governance relating to new technologies. The deployment and application of new technologies is often accompanied with uncertainty as to their long-term (un)intended impacts. New technologies also raise questions about the limits of the law as the line between harmful and beneficial effects is often difficult to draw. The volume explores overarching concepts on how to regulate new technologies and their implications in a diverse and constantly changing society, as well as the way in which regulation can address differing, and sometimes conflicting, societal objectives, such as public health and the protection of privacy. Contributions focus on a broad range of issues such as Citizen Science, Smart Cities, big data, and health care, but also on the role of market regulation for new technologies.The book will serve as a useful research tool for scholars and practitioners interested in the latest developments in the field of technology regulation. Leonie Reins is Assistant Professor at the Tilburg Institute for Law, Technology, and Society (TILT) in The Netherlands.


The Economics and Implications of Data

The Economics and Implications of Data

Author: Mr.Yan Carriere-Swallow

Publisher: International Monetary Fund

Published: 2019-09-23

Total Pages: 50

ISBN-13: 1513514814

DOWNLOAD EBOOK

This SPR Departmental Paper will provide policymakers with a framework for studying changes to national data policy frameworks.


The Elements of Big Data Value

The Elements of Big Data Value

Author: Edward Curry

Publisher: Springer Nature

Published: 2021-08-01

Total Pages: 399

ISBN-13: 3030681769

DOWNLOAD EBOOK

This open access book presents the foundations of the Big Data research and innovation ecosystem and the associated enablers that facilitate delivering value from data for business and society. It provides insights into the key elements for research and innovation, technical architectures, business models, skills, and best practices to support the creation of data-driven solutions and organizations. The book is a compilation of selected high-quality chapters covering best practices, technologies, experiences, and practical recommendations on research and innovation for big data. The contributions are grouped into four parts: · Part I: Ecosystem Elements of Big Data Value focuses on establishing the big data value ecosystem using a holistic approach to make it attractive and valuable to all stakeholders. · Part II: Research and Innovation Elements of Big Data Value details the key technical and capability challenges to be addressed for delivering big data value. · Part III: Business, Policy, and Societal Elements of Big Data Value investigates the need to make more efficient use of big data and understanding that data is an asset that has significant potential for the economy and society. · Part IV: Emerging Elements of Big Data Value explores the critical elements to maximizing the future potential of big data value. Overall, readers are provided with insights which can support them in creating data-driven solutions, organizations, and productive data ecosystems. The material represents the results of a collective effort undertaken by the European data community as part of the Big Data Value Public-Private Partnership (PPP) between the European Commission and the Big Data Value Association (BDVA) to boost data-driven digital transformation.


Big Data and Global Trade Law

Big Data and Global Trade Law

Author: Mira Burri

Publisher: Cambridge University Press

Published: 2021-07-29

Total Pages: 407

ISBN-13: 110884359X

DOWNLOAD EBOOK

An exploration of the current state of global trade law in the era of Big Data and AI. This title is also available as Open Access on Cambridge Core.


Clinical Practice and Unmet Challenges in AI-Enhanced Healthcare Systems

Clinical Practice and Unmet Challenges in AI-Enhanced Healthcare Systems

Author: Liu, Haipeng

Publisher: IGI Global

Published: 2024-08-05

Total Pages: 407

ISBN-13:

DOWNLOAD EBOOK

As the demand for advanced technologies to revolutionize patient care intensifies, the medical industry faces a pressing need to confront challenges hindering the assimilation of AI-enhanced healthcare systems. Issues such as data interoperability, ethical considerations, and the translation of AI advancements into practical clinical applications pose formidable hurdles that demand immediate attention. It is within this context of challenges and opportunities that the book, Clinical Practice and Unmet Challenges in AI-Enhanced Healthcare Systems promises to pave the way for a transformative era in healthcare. The book serves as a comprehensive guide for academic scholars, researchers, and healthcare professionals navigating the dynamic landscape of data-driven, AI-enhanced healthcare. By showcasing the latest advancements, the book empowers its readers to not only comprehend the existing frontiers in data sciences and healthcare technologies but also to actively contribute to overcoming obstacles. Through detailed case studies and practical guidance, the publication equips its audience with the skills necessary to implement AI in various clinical settings.


Sharing Clinical Trial Data

Sharing Clinical Trial Data

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2015-04-20

Total Pages: 236

ISBN-13: 0309316324

DOWNLOAD EBOOK

Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.


Human Aspects of Information Security and Assurance

Human Aspects of Information Security and Assurance

Author: Nathan Clarke

Publisher: Springer Nature

Published: 2020-08-21

Total Pages: 363

ISBN-13: 3030574040

DOWNLOAD EBOOK

This book constitutes the proceedings of the 14th IFIP WG 11.12 International Symposium on Human Aspects of Information Security and Assurance, HAISA 2020, held in Mytilene, Lesbos, Greece, in July 2020.* The 27 full papers presented in this volume were carefully reviewed and selected from 43 submissions. They are organized in the following topical sections: privacy and COVID-19; awareness and training; social engineering; security behavior; education; end-user security; usable security; security policy; and attitudes and perceptions. *The symposium was held virtually due to the COVID-19 pandemic.