Mary B. Walsh and her husband made a promise to his grandmother that she would never be placed in a nursing home. After the family moved to Pennsylvania, she was diagnosed with Alzheimer's, and the family held to its promise of care. Told with humor, love, and compassion, this is the story of how that decision affected the entire family. It is a book that will encourage anyone in a similar situation and show that despite the illness, the rest of life does not stop.
How can one become a parent to one's parent? Moskowitz probes the heart of our culture--one that refuses to comprehend the inevitable process of aging.
"Imagine the heart-wrenching devastation that is experienced by a family when a parent is diagnosed with Alzheimer's disease! Author Diane Currie shares her candid and personal reflections about her mother's struggle with this disease as she copes with the reality of the present but always honors the memory of her past. Through a series of moving vignettes, she remains connected with her mother in a creative way as the strong bond between them slowly dissolves as the disease progresses. From the first moment of her mother's diagnosis, Currie conveys in a captivating manner the intense feelings of loss and hopelessness one experiences when dealing with this dreadful disease. She is able to protray the subtle changes in her mother's behavior and personality throughout her decline, all in a deeply human way. While Before My Eyes describes one family's touching and painful journey, in essence Currie's reflective account may typify the Alzheimer's experience, while offering support and validation to all those who walk its arduous path"--Page 4 of cover.
The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.
'Keeper' is a very humane and honest exploration of living with Alzheimer's, giving an illuminating account of the disease itself. Gillies tells about the time she and her family spent living with someone with dementia, in a big Victorian house in the far, far north of Scotland.
Caring for someone who has Alzheimer's or other forms of dementia is a daunting task that can leave most caregivers drained, strained, and depressed. Many find comfort in knowing they are not alone and in being able to share their experiences with someone who understands what they are going through. They want assurance that it's normal to "lose it" occasionally and that feeling "less than" is common. Caregivers need all the support and tools they can garner to help them survive this experience. Such was the reason for writing "I Love You Always," which is an honest account of one family's experiences from diagnosis and beyond.Lottie has survived seemingly insurmountable tragedies in her life, emerging stronger after each one. When she is diagnosed with Alzheimer's and vascular dementia, at the age of eighty, she becomes determined to live until ninety, longer than anyone in her immediate family. Her children join forces to help Lottie reach her goal while ensuring she remains in her beloved home. I Love You Always is her daughter LaBena's account of their tumultuous journey, sharing practical tips for caregivers, as well as the lessons of love, laughter, and faith that were learned along the way.You are not alone and the more we share our stories, the more people will understand. May there soon be a cure!
This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.
Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.
