On Pluto: Inside the Mind of Alzheimer's
On Pluto: Inside the Mind of Alzheimer's

Author: Greg O'Brien

Publisher: Good Night books

Published: 2018-02-27

Total Pages: 332

ISBN-13: 0991340191

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This is a book about living with Alzheimer’s, not dying with it. It is a book about hope, faith, and humor—a prescription far more powerful than the conventional medication available today to fight this disease. Alzheimer’s is the sixth leading cause of death in the US—and the only one of these diseases on the rise. More than 5 million Americans have been diagnosed with Alzheimer’s or a related dementia; about 35 million people worldwide. Greg O’Brien, an award-winning investigative reporter, has been diagnosed with early-onset Alzheimer's and is one of those faceless numbers. Acting on long-term memory and skill coupled with well-developed journalistic grit, O’Brien decided to tackle the disease and his imminent decline by writing frankly about the journey. O’Brien is a master storyteller. His story is naked, wrenching, and soul searching for a generation and their loved ones about to cross the threshold of this death in slow motion. On Pluto: Inside the Mind of Alzheimer’s is a trail-blazing roadmap for a generation—both a “how to” for fighting a disease, and a “how not” to give up!

On Pluto: Inside the Mind of Alzheimer's
On Pluto: Inside the Mind of Alzheimer's

Author: Greg O'Brien

Publisher: Good Night Books

Published: 2014-09-23

Total Pages: 160

ISBN-13: 0991340116

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This is a book about living with Alzheimer’s, not dying with it. It is a book about hope, faith, and humor—a prescription far more powerful than the conventional medication available today to fight this disease. Alzheimer’s is the sixth leading cause of death in the US—and the only one of these diseases on the rise. More than 5 million Americans have been diagnosed with Alzheimer’s or a related dementia; about 35 million people worldwide. Greg O’Brien, an award-winning investigative reporter, has been diagnosed with early-onset Alzheimer's and is one of those faceless numbers. Acting on long-term memory and skill coupled with well-developed journalistic grit, O’Brien decided to tackle the disease and his imminent decline by writing frankly about the journey. O’Brien is a master storyteller. His story is naked, wrenching, and soul searching for a generation and their loved ones about to cross the threshold of this death in slow motion. On Pluto: Inside the Mind of Alzheimer’s is a trail-blazing roadmap for a generation—both a “how to” for fighting a disease, and a “how not” to give up!

On Pluto
On Pluto

Author: Greg O'Brien

Publisher: Manjul Publishing

Published: 2018

Total Pages: 416

ISBN-13: 9387383660

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This highly acclaimed book is an international award winner and is written by an investigative journalist, Greg O’Brien, who is afflicted by early onset Alzheimer’s disease. O’Brien goes into his own mind to chronicle the progress of his own disease and presents a moving, but practical account of what’s it like to lose your mind, to see slices of your own identity slowly drifting away like blow balls. He likens the journey to a flyby of the dwarf planet Pluto, as seen through the lens of NASA’s intrepid spacecraft New Horizons. This is a book about living with Alzheimer’s, not dying with it. It is a book about hope, faith and humour—a prescription far more powerful than the conventional medication available today to fight this disease. Acting on long-term memory and skill, coupled with well-developed journalistic grit, O’Brien decided to tackle the disease and his imminent decline by writing frankly about the journey. He is a master storyteller. His story is naked, wrenching and soul searching for a generation and their loved ones about to cross the threshold of this death in slow motion. On Pluto: Inside the Mind of Alzheimer’s is a trail-blazing roadmap for a generation—both a “how to” for fighting a disease and a “how not” to give up.

A Tattoo on my Brain
A Tattoo on my Brain

Author: Daniel Gibbs

Publisher: Cambridge University Press

Published: 2023-03-16

Total Pages: 227

ISBN-13: 1009333585

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Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In this highly personal account, Dr Gibbs documents the effect his diagnosis has had on his life and explains his advocacy for improving early recognition of Alzheimer's. Weaving clinical knowledge from decades caring for dementia patients with his personal experience of the disease, this is an optimistic tale of one man's journey with early-stage Alzheimer's disease. Soon to be a documentary film on MTV/Paramount +.

The Forgetting
The Forgetting

Author: David Shenk

Publisher: Anchor

Published: 2003-05-20

Total Pages: 306

ISBN-13: 1400075580

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NATIONAL BESTSELLER A powerfully engaging, scrupulously researched, and deeply empathetic narrative of the history of Alzheimer’s disease, how it affects us, and the search for a cure. Afflicting nearly half of all people over the age of 85, Alzheimer’s disease kills nearly 100,000 Americans a year as it insidiously robs them of their memory and wreaks havoc on the lives of their loved ones. It was once minimized and misunderstood as forgetfulness in the elderly, but Alzheimer’s is now at the forefront of many medical and scientific agendas, for as the world’s population ages, the disease will touch the lives of virtually everyone. David Shenk movingly captures the disease’s impact on its victims and their families, and he looks back through history, explaining how Alzheimer’s most likely afflicted such figures as Jonathan Swift, Ralph Waldo Emerson, and Willem de Kooning. The result is a searing and graceful account of Alzheimer’s disease, offering a sobering, compassionate, and ultimately encouraging portrait.

Decoding Darkness
Decoding Darkness

Author: Rudolph E Tanzi

Publisher: Hachette UK

Published: 2008-01-07

Total Pages: 304

ISBN-13: 0465012337

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Working from the intriguing hypothesis that Alzheimer's dementia is the result of a renegade protein-beta amyloid-Tanzi and others set out to find the gene responsible for its production. Decoding Darkness takes us deep into the minds and far-flung labs of many a prominent researcher, offering an intimate view of the high stakes of molecular genetics, the revolution that propels it, the obstacles that threaten to derail it, and the families whose lives are so dependent upon it. Tanzi and Parson ultimately reveal that Alzheimer's, like heart disease, may be effectively treated-even prevented.

Love Anthony
Love Anthony

Author: Lisa Genova

Publisher: Simon and Schuster

Published: 2012-09-27

Total Pages: 344

ISBN-13: 1471113280

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'Remember how you couldn't put down Still Alice? Well, clear your schedule-because you're going to feel the same way' Jodi Picoult From the bestselling author of Still Alice and Every Note Played comes a heartfelt novel about friendship and a mother coping with the loss of her autistic son. Olivia Donatelli's dream of a 'normal' life was shattered when her son, Anthony, was diagnosed with autism at age three. He didn't speak. He hated to be touched. He almost never made eye contact. And just as Olivia was starting to realise that happiness and autism could coexist, Anthony died. Now she's alone in a cottage on Nantucket, separated from her husband, desperate to understand the meaning of her son's short life, when a chance encounter with another woman facing her own loss brings Anthony alive again for Olivia in a most unexpected way. In a piercing story about motherhood, love and female friendship, Lisa Genova offers us two unforgettable women on the verge of change who discover the small but exuberant voice that helps them both find the answers they need. Fans of The Reason I Jump and The Curious Incident of the Dog in the Night-time will love Lisa Genova's story: always authentic and utterly moving.

A Path Revealed
A Path Revealed

Author: Carlen Maddux

Publisher: Paraclete Press

Published: 2016-09-01

Total Pages: 129

ISBN-13: 1612618766

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Just days after turning fifty, Martha Maddux, a spirited mother and civic activist, was told she had Alzheimer’s disease. She and husband Carlen felt as though they’d been shoved out of a plane 10,000 feet up, with nothing to grab but themselves. A Path Revealed is not about the fallout from an insidious disease that extended over seventeen years. It is the story of a path of hope emerging during the darkest hours - a path that lifted Carlen and Martha above the devastating symptoms of this disease. Carlen traveled with Martha to the backwoods of Kentucky, where the quiet presence of a Catholic nun revealed a hidden path. He was forced to slow down as he traced this path halfway around the world to Australia, retreated weekends to a monastery, embraced meditation, and landed all alone in Thomas Merton’s cabin. This story conveys a message of hope and joy in the midst of an almost overwhelming tragedy.

Helping Yourself Help Others
Helping Yourself Help Others

Author: Rosalynn Carter

Publisher: University of Arkansas Press

Published: 2023-07-17

Total Pages: 259

ISBN-13: 1682262340

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"In Helping Yourself Help Others, former first lady Rosalynn Carter draws upon her own experiences and those of hundreds of others to offer reassuring, practical advice to caregivers. Long before the COVID-19 pandemic inspired national conversations about the vast undervaluing of unpaid caregiving, the dangers of burnout, and the merits of self-care for relief, Rosalynn Carter was shining a light on these matters and everything else that caregivers confront"--

Ten Thousand Joys & Ten Thousand Sorrows
Ten Thousand Joys & Ten Thousand Sorrows

Author: Olivia Ames Hoblitzelle

Publisher: Penguin

Published: 2010-09-30

Total Pages: 354

ISBN-13: 1101443669

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"Ten Thousand Sorrows & Ten Thousand Joys offers a vision of lives well-led, and of love in the thick of crisis and loss. Beyond inspiring."-Daniel Goleman, author of Emotional Intelligence "This beautiful book is unlike any other personal account of living with Alzheimer's disease that I have ever read . . . it offers patients and families practical insights into how they can live their lives more fully amidst the heartbreak of a mind-robbing illness."- Paul Raia, Director of Patient Care and Family Support, Alzheimer's Association, Massachusetts Chapter "A story of courage, love, and growing wisdom in the face of Alzheimer's."-Joseph Goldstein, author of One Dharma, Founder / Director of Insight Meditation Society In this profound and courageous memoir, Olivia Ames Hoblitzelle describes how her husband's Alzheimer's diagnosis at the age of seventy-two challenged them to live the spiritual teachings they had embraced during the course of their life together. Following a midlife career shift, Harrison Hobliztelle, or Hob as he was called, a former professor of comparative literature at Barnard, Columbia, and Brandeis University, became a family therapist and was ordained a Dharmacharya (senior teacher) by Thich Nhat Hanh. Hob comes to life in these pages as an incredibly funny and brilliant man who never stopped enjoying a good philosophical conversation-even as his mind, quite literally, slipped away from him. And yet when they first heard the diagnosis, Olivia and Hob's initial reaction was to cling desperately to the life they had had. But everything had changed, and they knew that the only answer was to greet this last phase of Hob's life consciously and lovingly. Ten Thousand Joys & Ten Thousand Sorrows provides a wise and compassionate vision for maintaining hope and grace in the face of life's greatest challenges. (This memoir was originally self-published as The Majesty of Your Loving.)