My Life with TSC, written and illustrated by 10-year-old Evan Moss, tells the story of what it's like to live with tuberous sclerosis complex (TSC). Evan takes a whimsical approach to explaining the daily challenges he faces. He takes a serious topic, infuses his own sense of humor and wit and leaves the reader with a smile on their face and a sense of hope.A portion of the proceeds from this book will be donated to the Tuberous Sclerosis Alliance to fund TSC Research.
One in a Million - Navigating Life with Tuberous Sclerosis Complex is a compelling and inspiring book that sheds light on the realities of living with a rare disease. This insightful guide illuminates the challenges and struggles faced by those living with Tuberous Sclerosis Complex (TSC) and offers practical advice on how to navigate life's many obstacles. From managing symptoms to coping with the emotional impact of a rare disease, this book provides readers with the tools they need to thrive in the face of adversity. Written by a TSC patient and advocate, One in a Million is a comprehensive and compassionate guide that offers hope and encouragement to those struggling with TSC. With its insightful advice, practical tips, and inspiring stories, this book is a must-read for anyone affected by TSC, as well as their loved ones and caregivers. Whether you are facing a recent diagnosis or are a long-time TSC patient, One in a Million is the ultimate guide to living your best life with this rare disease.
Paul Henderson will forever be recognized and remembered for his goal with 34 seconds remaining in the 8th game of the 1972 Summit Series. This goal gave Canada the lead and won them the series and with that the team became known as "the Team of the Century." And Paul's goal as, "the Goal of the Century." But there is more to Paul Henderson than just that one goal and in The Goal of My Life, Henderson opens up about scoring both on and off the ice. A family man and man with deep faith, Henderson lives each day with tremendous appreciation for the gifts life has rewarded him and has not allowed his recent diagnosis with cancer to alter his positive demeanor. Henderson takes fans back to the moment 1972 when Canada won the Summit Series, though additionally shares memories from his entire life and his early days playing hockey through to his retirement from the game and his personal challenges with Leukemia. Henderson is a hero and his book is one that all fans of hockey and life will enjoy.
This book is for the woman who wants to feel good about herself and her body, and learn how to start incorporating healthy habits into her life. It's for the woman who doesn't want to trade in her champagne for skinny jeans. It's for the woman who is done with dieting, and ready to start paying attention to her health before that number on the scale. It's for the woman who is ready to stop letting her weight define her, and is ready to understand why it always did. This is not a diet book. This is a lifestyle guide. This book will change the way you view your weight and yourself forever. You will walk away feeling empowered, inspired, and downright sexy (and probably craving a glass of bubbly). You will learn how to celebrate yourself and your body. You will learn to make your health a priority, always. And most importantly - you will learn to love yourself, exactly as you are. So get ready to embark on a complete dieting and lifestyle overhaul, sister. You are now on The Champagne Diet! "The Champagne Diet will resonate with every woman with it's realistic and simple approach to dieting. Alwill delivers a personal, relatable, and funny guide to shedding pounds without deprivation." - Kim Barnouin Co-Author, Skinny Bitch
Loving Tiara is a compelling memoir that will encompass your every thought, break your heart, fill you with hope, and leave you with a sense of awe. "I have found the quiet. At forty-five years old, my life's mission was complete. If I died tomorrow, I would be proud of the life I lived." - Loving Tiara When Tiffani married the love of her life, Lou, after graduating from college, she assumed she would continue to live the affluent life she had always known, having grown up in Newport Beach, California. She never imagined she would soon be stalked by creditors, driving a car on the repossession list and forced to worry about providing basic necessities for her family, such as buying diapers and groceries. This increasingly desperate situation forced her to decide to return home to her parents with her baby and husband. After getting their life back on track, and with Tiffani in her final year of law school, they decided to have another baby. At eight months old, however, they discovered that their new daughter Tiara had Tuberous Sclerosis, a rare genetic disorder resulting in intractable epilepsy, developmental delay, chronic hospital admissions, and uncontrollable violent behaviors. So how did Tiffani cope with her new reality? She chose to fight. She challenged the doctors, battled the insurance companies, and refused to give up caring for Tiara even when her own life was at risk The author's story of unconditional love, unimaginable challenges, and, ultimately, triumph, is a compelling one, which will take hold of your heart and not let go. This memoir will inspire you to tackle fear, encourage you never to give up, and remind you always to trust your gut instincts.
Tuberous Sclerosis is a genetic disease characterized by lesions of the skin and central nervous system, seizures, and sometimes sever mental retardation. Infants with this disease may appear overactive, autistic, or socially impaired. Because tuberous sclerosis involves abnormal cellular differentiation, aberrant neuronal migration, and excessive cell proliferation, this thoroughly revised edition will be of interest to a wide range of professionals involved in the study of biological mechanisms underlying many genetically determined neurological disorders.
In this updated edition of his classic book, New York Times bestselling author Dr. David Jeremiah offers biblically based, practical instruction for living a confident life in a world filled with chaos and crisis. Confidence can be hard to come by these days as millions of people experience immeasurable, unanticipated challenges. People are losing their jobs, their houses, and their life savings at an unprecedented rate. Violence, natural disasters, and moral depravity seem to be skyrocketing. In the midst of all this chaos, we need to know . . . what on earth should we do now? Bible teacher Dr. David Jeremiah brings a message of hope and confidence from the priceless counsel of the Word of God. If we rely on God's Word to advise us, calm us, and fill us with hope and trust in the One who understands what is happening, we can weather any storm. Dr. Jeremiah answers our most urgent questions, including: How can we weather this storm with a calm heart? What does it truly mean to “wait on the Lord”? What is Jesus saying to our chaotic world today? How on earth did we get into this mess? Can we take a broken world and rebuild it into something fruitful? Living with Confidence in a Chaotic World shows us all that with the power and love of Almighty God, we can live with confidence in this age of turmoil.
The only comprehensive overview of the molecular basis and clinical features of the genetic disorder tuberous sclerosis, which affects approximately 50,000 people in the US alone. Special focus is placed on novel insights into the signal transduction pathways affected by the disease as well as genotype phenotype correlations, while existing and potential therapies are also discussed in depth. The editors are leading experts in research and treatment of the disease as well as the Vice President of the Tuberous Sclerosis Alliance, the only voluntary health organization for TSC in the US.
