Alongside the major narratives of ethics in the tradition of Western philosophy, a reader with an eye to the vague and the peripheral, to the turbulent and shifting, will spy minor lines of thinking – and with them, new histories and thus new futures. Minor Ethics develops a new approach to reading texts from the history of philosophical ethics. It aims to enliven lines of thought that are latent and suppressed within the major ethical texts regularly studied and taught, and to include texts and ideas that have been excluded from the canon of Western ethics. The editors and contributors have put Gilles Deleuze’s concepts – such as affect, assemblage, and multiplicity – into conversation with a range of ethical texts from ancient thought to the present. Rather than aiming for a coherent whole to emerge from these threads, the essays maintain a vigilant alertness to difference, to vibrations and resonances that are activated in the coupling of texts. What emerges are new questions, new problems, and new trajectories for thinking, which have as a goal the liberation of ethical questioning. Minor Ethics takes up a range of canonical ethical questions and thinks through concrete ethical problems relating to drug addiction, environmental responsibility, xenophobia, trauma, refugees, political parties, and cultural difference. The responses to these concerns demonstrate the minoritarian promise of the opening up of ethical thinking.
Research involving minors is an area of controversy within medical ethics and medical law. Minors represent a vulnerable group, for whom particular protective measures are required and who should be excluded from research that does not offer the prospect of direct benefit. However, the exclusion of minors from research into disorders of relevance to their age group precludes the potential for beneficial medical advances. Furthermore, effective prevention strategies for common medical conditions with an origin in childhood and adolescence, such as mental disorders, require the delineation of those who are at increased risk. This volume considers the ethical challenges of research with minors for the researchers, but also for the involved research ethics committees. In particular, it reflects how minors can be more involved in the decision-making-processes and reports about the experiences in conducting the European multicentric research project IMAGEMEND.
Ethical and Legal Issues in Counseling Children and Adolescents provides counselors and other professionals with clinical cases and accurate, up-to-date information on both ethical standards and case law. Chapters take a comprehensive, developmental approach to legal and ethical decision making when counseling children and adolescents, one that presents each chapter topic from the perspective of an adult and then explores accommodations important to children and adolescents. The book is a vital resource for faculty who recognize the limited scope with which other texts cover the topic and for practitioners looking to better understand the legal and ethical concerns around working with young people.
What should happen when doctors and parents disagree about what would be best for a child? When should courts become involved? Should life support be stopped against parents' wishes? The case of Charlie Gard, reached global attention in 2017. It led to widespread debate about the ethics of disagreements between doctors and parents, about the place of the law in such disputes, and about the variation in approach between different parts of the world. In this book, medical ethicists Dominic Wilkinson and Julian Savulescu critically examine the ethical questions at the heart of disputes about medical treatment for children. They use the Gard case as a springboard to a wider discussion about the rights of parents, the harms of treatment, and the vital issue of limited resources. They discuss other prominent UK and international cases of disagreement and conflict. From opposite sides of the debate Wilkinson and Savulescu provocatively outline the strongest arguments in favour of and against treatment. They analyse some of the distinctive and challenging features of treatment disputes in the 21st century and argue that disagreement about controversial ethical questions is both inevitable and desirable. They outline a series of lessons from the Gard case and propose a radical new 'dissensus' framework for future cases of disagreement. - This new book critically examines the core ethical questions at the heart of disputes about medical treatment for children. - The contents review prominent cases of disagreement from the UK and internationally and analyse some of the distinctive and challenging features around treatment disputes in the 21st century. - The book proposes a radical new framework for future cases of disagreement around the care of gravely ill people.
In this edited volume, a diverse group of scholars present and discuss challenging cases in the field of pediatric research ethics. After years of debate and controversy, fundamental questions about the morality of pediatric research persist: Is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research that involves young children? What should be the role of the older child in decisions about research participation? How do the dynamics of hope and desperation influence decisions about research involving dying children? Should children or their parents be paid for participation in research? What about economic incentives for doctors, researchers and the pharmaceutical industry? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled? Following an introductory overview by editor Eric David Kodish, the book is divided into three sections of case studies: Research Involving Healthy Children, Research Involving At Risk Children, and Research Involving Children with Serious Illness. Each case raises compelling ethical issues, and the analysis presented in each chapter illuminate the challenges posed across a wide spectrum of both research protocols and stories of individual case-based approach, this book provides a balanced and through account of the enduring dilemmas that arise when children become research subjects.
Three questions of novelistic form preoccupied Fyodor Dostoevsky throughout his career: how to build suspense, how to end a narrative effectively, and how to distribute attention among major and minor characters. For Dostoevsky, these were much more than practical questions about novelistic craft; they were ethical questions as well. Dostoevsky and the Ethics of Narrative Form traces Dostoevsky’s indefatigable investigations into the ethical implications of his own formal choices. Drawing on his drafts, notebooks, and writings on aesthetics, Greta Matzner-Gore argues that Dostoevsky wove the moral and formal questions that obsessed him into the fabric of his last three novels: Demons, The Adolescent, and The Brothers Karamazov. In so doing, he anticipated some of the most pressing debates taking place in the study of narrative ethics today.
In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
“Doing Ethical Research with Children is an invaluable resource for all student and practitioner-researchers who wish to honour children as active agents and significant voices in research. The book guides the reader through the processes of ethical research with (not on!) children, positioning the child as competent and capable. It includes practical guidance and examples of research so that issues that may emerge during a research project can be anticipated. My advice is – do not embark on an Early Years research project before reading it!” Lyn Trodd, Chair of the National Sector-Endorsed Foundation Degree in Early Years Network (SEFDEY), University of Hertfordshire, UK “Doing Ethical Research with Children provides an invaluable guide to understanding and managing the ethical implications of research projects with children. The highly accessible format includes useful case-study examples, questions and checklists and the four-phased approach supports the reader to reflect on ethical considerations at every stage of the research process. This book is a welcome and essential resource that positions ethical perspectives at the heart of research activity with children.” Shirley Allen, Senior Lecturer Early Childhood Studies, Middlesex University, UK "This is an admirably clear and well-structured book that will be invaluable for anyone serious about research with children. The authors write from long experience, and provide a very helpful ‘step by step’ guide that is always underpinned by deeply principled, insightful considerations that exemplify good practice and respect for children. The use of real examples along with the authors’ questions, invite the reader to reflect on their own thinking and actions, and the extensive checklists and sample documentation provide clear guidance that will be a valuable support for students and their supervisors, researchers, and practitioners alike. I look forward to making good use of this book in my own work and in my work with students of early childhood." Sue Robson, Principal Lecturer, Subject Leader for Early Childhood Studies University of Roehampton, London, UK This book provides a step-by-step guide to approaching your research project and will support you in developing, conducting and disseminating research relating to children and childhood with an ethical imperative. Doing Ethical Research with Children will help you focus and identify many of the key issues surrounding research with children. The book presents an overview of both contemporary and traditional perspectives relating to child related research practices. The authors combine relevant theoretical and practical information, offering a guide to the essential elements for conducting ethical research with children. You are prompted to consider and systematically address these elements, with the help of: Real world ’points to ponder’, offering unique insights ‘Over to you’ reflection activities Case studies considering ethical dilemmas Written specifically as a guide and reflection tool for beginning researchers studying early years and childhood, the book follows the research journey from conceptualisation to dissemination and looks at the unique considerations for research involving children.
Ethical Practice in Child and Adolescent Analysis and Psychotherapy addresses core issues in ethical practice in working with children and their parents, with attention to unconscious motives and defenses that render the therapist most vulnerable to ethical lapses.
Deleuze is perhaps best known for his influential works in philosophical interpretation; epistemology; metaphysics; and political economy. The essays in this collection explore, uncover, and trace the ethical dimension of Deleuzian philosophy along divers
