Living Well with Chronic Illness
Living Well with Chronic Illness

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2011-06-30

Total Pages: 350

ISBN-13: 0309221277

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In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.

How to Live Well with Chronic Pain and Illness
How to Live Well with Chronic Pain and Illness

Author: Toni Bernhard

Publisher: Simon and Schuster

Published: 2015-10-06

Total Pages: 355

ISBN-13: 1614292639

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Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

You Don't Look Sick!
You Don't Look Sick!

Author: Joy H. Selak

Publisher: Demos Medical Publishing

Published: 2013

Total Pages: 199

ISBN-13: 1936303426

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Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.

Living Well with Chronic Illness
Living Well with Chronic Illness

Author: Richard Cheu

Publisher:

Published: 2012-12

Total Pages: 240

ISBN-13: 9781457513435

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Learn how to overcome limiting thoughts and feelings and expand your life beyond your chronic illness! A chronic illness can bring on strong negative emotions of shock, fear, and despair. You can't allow these feelings to overwhelm you. This book will help you to: o Answer Yes to life: Expand your vision beyond your illness o Take control of shock, stress and grief o Understand that life is change and change is good o Let go of your excess baggage that is holding you back o Overcome loneliness o Change your perspective to live a larger life o Be inspired by others to overcome adversity o Find meaning in your life story o Free your spirit and continue your spiritual journey Richard Cheu is an author, ordained deacon and hospital chaplain in the Archdiocese of New York, stress-management consultant, and caregiver. He provides pastoral counseling at Bellevue Hospital, the Visiting Nurse Service inpatient hospice, and other New York City medical facilities. He formerly was a neurophysiologist and Emergency Medical Technician.

Life Disrupted
Life Disrupted

Author: Laurie Edwards

Publisher: Bloomsbury Publishing USA

Published: 2011-02-01

Total Pages: 288

ISBN-13: 0802779735

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Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

How to Be Sick
How to Be Sick

Author: Toni Bernhard

Publisher: Simon and Schuster

Published: 2010-05-10

Total Pages: 217

ISBN-13: 0861719263

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This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our limitless inner freedom, even under high degrees of suffering and pain. The author - who became ill while a university law professor in the prime of her career - tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice - and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are ill or not, we can learn these vital arts from Bernhard's generous wisdom in How to Be Sick.

A Delicate Balance
A Delicate Balance

Author: Susan Milstrey Wells

Publisher: Da Capo Press, Incorporated

Published: 1998-03-21

Total Pages: 320

ISBN-13:

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A sensitive, hopeful exploration of maximizing your quality of life while living with chronic illness.

Sick And Tired Of Feeling Sick And Tired
Sick And Tired Of Feeling Sick And Tired

Author: Paul J Donoghue

Publisher: W. W. Norton & Company

Published: 2000-10-10

Total Pages: 310

ISBN-13: 9780393320657

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Invisible chronic illness (ICI) can manifest itself in chronic fatigue, chronic pain, and many other miseries that are often perceived and dismissed negatively, even by doctors. This book offers "an invaluable source of help and comfort" (Katharina Dalton, M.D.) to those who suffer from ICI. "Today" feature.

Living Well at the End of Life
Living Well at the End of Life

Author: Joanne Lynn

Publisher: RAND Corporation

Published: 2003

Total Pages: 32

ISBN-13:

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Self-care deficits and a slowly dwindling course to death, which usually results from frailty or dementia. Effective and reliable care for persons coming to the end of life will require changes in the organization and financing of care to match these trajectories, as well as compassionate and skillful clinicians. (Available from the publisher or libraries holding the journal.).