Living the Invisible Disability
Living the Invisible Disability

Author: Hannah Andrusky

Publisher:

Published: 2014-04-21

Total Pages: 108

ISBN-13: 9781478729006

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"This portrait of many months recovering has much to teach the physicians as well as lay readers. The condition she struggled with is neither rare nor trivial, but unfortunately, remains medically unaddressed." - Bruce Beutler Nobel Prize Winner & Laureate 2011. "As a close friend to Hannah and no stranger to brain injuries after playing in the NFL as a wide receiver for the Buffalo Bills for sixteen years and being ranked 10th in NFL history, I watched Hannah regress slowly. I had just lost my friend, Junior Seau, to suicide resulting from a brain injury. I couldn't sit back and let her fall too. Today, the controversy over concussions and post concussion syndrome is growing rapidly. This timely book sheds a light for all those who have suffered from it." - Andre Reed NFL Hall of Fame 2014.

Easy to Love But Hard to Live with
Easy to Love But Hard to Live with

Author: Tricia Bliven-Chasinoff

Publisher:

Published: 2014-10-10

Total Pages: 318

ISBN-13: 9781933084046

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This book contains 35 powerful essays from adults with autism, mental illnesses, fetal alchol spectrum disorders, OCD, ADHD, and other "invisible special needs" and those who love them. These poignant, funny, heartbreaking and honest stories let mothers, fathers, brothers, sisters, lovers, husbands, wives, children and individuals with neurobehavioral disabilities themselves know that they are not alone, and that they somehow stop being important to the world when they reach adulthood. Finding that common powerful bond in a world of judgement and cruelty from those who don't understand, magically transforms the journey and makes it easier to cope. Instead of putting on appearances for others, adults with challenges and their loved ones can choose to connect with who they really are and accept their lives. "Easy To Love But Hard To Live With" is filled with poignant stories that inspire and empower. A great read for those living with a misunderstood partner, sibling, parent, child or other loved one."

But You Look Good
But You Look Good

Author: Wayne Connell

Publisher: Invisible Disabilities Association

Published: 2014-09-14

Total Pages: 84

ISBN-13: 9780692258453

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Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest! But You LOOK Good gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not look sick or in pain. Moreover, it gives them simple, pragmatic ways to truly be an encouragement, what to say, what not to say and how to help. Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!

Show Me Where it Hurts
Show Me Where it Hurts

Author: Kylie Maslen

Publisher: Text Publishing

Published: 2020-09-01

Total Pages: 299

ISBN-13: 1925923584

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Personal essay meets pop-culture critique in this unflinchingly honest collection about chronic illness and misogyny in medicine, by Adelaide writer Kylie Maslen

Surviving and Thriving with an Invisible Chronic Illness
Surviving and Thriving with an Invisible Chronic Illness

Author: Ilana Jacqueline

Publisher: New Harbinger Publications

Published: 2018-03-01

Total Pages: 181

ISBN-13: 1626256012

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“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

You Don't Look Sick!
You Don't Look Sick!

Author: Joy H. Selak

Publisher: Demos Medical Publishing

Published: 2013

Total Pages: 199

ISBN-13: 1936303426

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Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.

Women with Visible and Invisible Disabilities
Women with Visible and Invisible Disabilities

Author: Martha Banks

Publisher: Routledge

Published: 2014-01-14

Total Pages: 432

ISBN-13: 131771881X

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This thoughtful collection addresses the issues faced by women with disabilities, examines the social construction of disability, and makes suggestions for the development and modification of culturally relevant therapy to meet the needs of disabled women. Written in an accessible style with a minimum of jargon, this book provides clinical material from the perspectives of psychotherapists, clients, personal assistants, and health administrators. Women with Visible and Invisible Disabilities also highlights the importance of considering age, ethnicity, and sexual orientation in its examination of feminist approaches to assessment, psychotherapy, disability management (coping), and discusses how the Americans with Disabilities Act impacts employment and education for women.

Invisible Illness
Invisible Illness

Author: Megan A. Arroll

Publisher: SPCK

Published: 2014-09-18

Total Pages: 176

ISBN-13: 184709306X

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Few books on invisible illness are written by psychologists. Based on work by the Chronic Illness Research Team (CIRT) at the University of East London, this expert, accessible book encourages people actively to manage their illness using the techniques shown. • Based on 20 years of research • Helps those often 'written off' by the medical profession • Pioneering text on Mal de Debarquement Syndrome (MdDS) • Authors specialist in chronic illness

Living Human
Living Human

Author: Flic Manning

Publisher: Simon and Schuster

Published: 2021-09-14

Total Pages: 158

ISBN-13: 1950906604

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My deepest wish is that reading this book will inspire you to take a look at your human experience and see it for the beautiful, painful blessing that it is. Whether you face illness and pain or you want to build a scalable business, you have the power to do it no matter what life throws at you by doing it your perfectly imperfect way, with your perfectly imperfect body and mind. Flic Manning has lived a life that is anything but traditional. With the odds stacked against her, facing incurable invisible diseases and mental health issues, she has walked the path less traveled to embrace the power she believes we all have inside no matter what complexities we face. In this wellness memoir, Flic takes us through her deeply personal journey, from struggling with pain and illness as a dancer to finding her voice and stepping into her most human, raw, and powerful self as an entrepreneur and wellness advocate. Her story contains nuggets of wellness and mindset wisdom wrapped up in lessons from her journey that are sometimes dark, other times deeply funny, and always inspiring. You will be uplifted, but you will also discover the sustainable wellness steps you can take to make your life a profound and healthy one

Disability Visibility
Disability Visibility

Author: Alice Wong

Publisher: Vintage

Published: 2020-06-30

Total Pages: 338

ISBN-13: 1984899430

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“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.