Life is Beautiful, Enjoy the Ride -- A Poet's Guide to Chronic Illness

Life is Beautiful, Enjoy the Ride -- A Poet's Guide to Chronic Illness

Author: Mitch Koppel

Publisher: First Edition Design Pub.

Published: 2014-05-10

Total Pages: 127

ISBN-13: 1622876172

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At the young age of 23 Mitch Koppel received a devastating diagnosis of multiple sclerosis. Twenty years of extreme health challenges inspired him to express his journey through poetry. These poems immediately went viral with friends and family to the extent that they urged him to create a book about the story and the poetry it inspired. I don't wish MS on my worst enemy; even if I had a worst enemy. Actually, over our 20-year relationship, my worst enemy has been myself all along and I'm not about to give MS to myself one more time. In truth, as counter-intuitive as this may sound, it was recently refreshing to hear that my MS has sort of reached its end game. I heard this in the hospital no less. I won't get any worse because I'm 1% of the folks that have reached a sort of illness finality. I wasn't upset to hear this. I was actually thrilled because never again will I lose sleep over what the disease had in store next; will my limp get worse, will I one day need a walker or, God forbid, a wheelchair? It's all here now; a path of physical and oft times' mental destruction. I have a white flag, but it's never been raised. You see, I'm not defined by MS. I'm not defined by what's next. I'm not defined by its progress. I'm defined, or would like to be defined by breaking down barriers and setting an example for friends and family alike; especially for my boys. I used to agonize, summarize and theorize that I wasn't worthy. Other dads coached sports. I sat aside. Other dads played catch. I sat aside. Other dads would twirl their children in their arms, suspend them in the air and run around in the yard. I sat and stared. Then it hit me: my boys often call without a reason to tell me they love me. Griffin likes to lie on the couch and play a game he made up called, "Five Kisses." It used to be called "Three Kisses", but he wanted more. Instead of self-pity, I try as best I can to live with self-worth. It has had a domino effect on my soul. As the last tile lands forward, the words on it read, "Not today, MS. Not today." Blame games were a symptom of the past. Spirituality has played a major role in turning grief into accepting I have everything else left to live for, smiles to share and love to let grow; this was and is my new awakening. Like many ill or infirmed, the seasons change but hearts and minds may be frozen. In my heart. In my soul. In dark evenings of emptiness inside sunny days where I closed the blinds, the miracle of spirituality found, the quiet of my soul and memories of what I hope to never endure again. Ultimately, like rivers and streams, all things run into one and passes through illness from times long since passed. Each room, every bed and endless ticking of the room's clock began from the basement of time. A fly on the wall could tell countless stories of pain and suffering, of waiting and wondering, of tears and sorrow. Of a belief of a better tomorrow. Those before me leave fingerprints revealing it was their time and place. Some of those fingerprints come to life under every room's bright hospital lights. Beneath the lights are the echoes of their words. I am haunted by hospitals.


As For Life

As For Life

Author: Marilyn McVicker

Publisher: Redhawk Publications

Published: 2022-05

Total Pages: 0

ISBN-13: 9781952485701

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You Don't Look Sick!

You Don't Look Sick!

Author: Joy H. Selak

Publisher: Demos Medical Publishing

Published: 2013

Total Pages: 199

ISBN-13: 1936303426

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Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.


The Autoimmune Wellness Handbook

The Autoimmune Wellness Handbook

Author: Mickey Trescott

Publisher: Rodale

Published: 2016-11-01

Total Pages: 308

ISBN-13: 1623367298

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The way autoimmune disease is viewed and treated is undergoing a major change as an estimated 50 million Americans (and growing) suffer from these conditions. For many patients, the key to true wellness is in holistic treatment, although they might not know how to begin their journey to total recovery. The Autoimmune Wellness Handbook, from Mickey Trescott and Angie Alt of Autoimmune-Paleo.com, is a comprehensive guide to living healthfully with autoimmune disease. While conventional medicine is limited to medication or even surgical fixes, Trescott and Alt introduce a complementary solution that focuses on seven key steps to recovery: inform, collaborate, nourish, rest, breathe, move, and connect. Each step demystifies the process to reclaim total mind and body health. With five autoimmune conditions between them, Trescott and Alt have achieved astounding results using the premises laid out in the book. The Autoimmune Wellness Handbook goes well beyond nutrition and provides the missing link so that you can get back to living a vibrant, healthy life.


If the Body Allows It

If the Body Allows It

Author: Megan Cummins

Publisher: U of Nebraska Press

Published: 2020-09

Total Pages: 258

ISBN-13: 1496223055

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Longlisted for the PEN/Robert W. Bingham Prize for Debut Short Story Collection Winner of the Prairie Schooner Book Prize in Fiction, If the Body Allows It is divided into six parts and framed by the story of Marie, a woman in her thirties living in Newark, New Jersey. Suffering from a chronic autoimmune illness, she also struggles with guilt over the overdose and death of her father, whom she feels she betrayed at the end of his life. The stories within the frame--about failed marriages, places of isolation and protection, teenage mistakes, and forging a life in the aftermath--are the stories the narrator writes after she meets and falls in love with a man whose grief mirrors her own. If the Body Allows It explores illness and its aftermath, guilt and addiction, and the relationships the characters form after they've lost everyone else, including themselves. Introspective, devastating, and funny, If the Body Allows It grapples with the idea that life is always on the brink of never being the same again.


I Love Jesus, But I Want to Die

I Love Jesus, But I Want to Die

Author: Sarah J. Robinson

Publisher: WaterBrook

Published: 2021-05-11

Total Pages: 257

ISBN-13: 0593193539

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A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.


Healing from the Inside Out

Healing from the Inside Out

Author: Nauman Naeem

Publisher: Simon and Schuster

Published: 2017-09-12

Total Pages: 226

ISBN-13: 1844097749

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Unleash your infinite potential and heal your chronic illness. This book takes you on a journey to the very core of your being. This is done through unravelling layers and layers of density that most of us accumulate throughout our lives, and which often initiate and perpetuate chronic disease. Once you touch the light of your being, you illuminate the dark recesses of your thoughts, emotions and your physical body, thus facilitating the healing of any chronic illness. The exercises given in this book allow you to gain more clarity about your life’s mission, heal old emotional wounds, lift subconscious blocks, remove limiting beliefs, enter the natural flow of the Universe and fearlessly embrace uncertainty. Dr. Naeem is a critical care specialist, pulmonologist and palliative care specialist, whose unique insights into healing stem from caring for tens of thousands of critically and chronically ill patients for more than a decade in two countries. This experience, combined with his own search for the meaning of existence and the true nature of ultimate reality, has culminated into the incredible journey which is the subject of this book.


Channel Kindness: Stories of Kindness and Community

Channel Kindness: Stories of Kindness and Community

Author: Born This Way Foundation Reporters

Publisher: Feiwel & Friends

Published: 2020-09-22

Total Pages: 278

ISBN-13: 1250245575

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A New York Times Bestseller For Lady Gaga, kindness is the driving force behind everything she says and does. The quiet power of kindness can change the way we view one another, our communities, and even ourselves. She embodies this mission, and through her work, brings more kindness into our world every single day. Lady Gaga has always believed in the importance of being yourself, being kind to yourself, and being kind to others, no matter who they are or where they come from. With that sentiment in mind, she and her mother, Cynthia Germanotta, founded Born This Way Foundation, a nonprofit organization dedicated to making the world a kinder and braver place. Through the years, they've collected stories of kindness, bravery and resilience from young people all over the world, proving that kindness truly is the universal language. And now, we invite you to read these stories and follow along as each and every young author finds their voice just as Lady Gaga has found hers. Within these pages, you’ll meet young changemakers who found their inner strength, who prevailed in the face of bullies, who started their own social movements, who decided to break through the mental health stigma and share how they felt, who created safe spaces for LGBTQ+ youth, and who have embraced kindness with every fiber of their being by helping others without the expectation of anything in return. In one story, you’ll read about a young person with an autoimmune disease, who after being bullied at school, learned how to practice self-love and started an organization with the mission of educating others about the importance of self-love, too; and in another story, you’ll meet a young person who decided to start a movement to help eliminate the stigma surrounding mental health and encouraged others to talk about their feelings openly and honestly, a reminder that kindness and mental wellness go hand in hand. Not only were we moved by these individual acts of kindness, but we were also touched by the many stories of organizations, neighborhoods, and entire communities that fully dedicated themselves to helping those in need and found new, innovative ways to make our world a kinder and braver place. Individually and collectively, these stories prove that kindness not only saves lives but builds community. Kindness is inclusion, it is pride, it is empathy, it is compassion, it is self-respect and it is the guiding light to love. Kindness is always transformational, and its never-ending ripples result in even more kind acts that can change our lives, our communities, and our world.