People with intellectual disability often experience challenges in their lives. These may be due to difficulties in social adaptation, but may also be related to a reality of disempowerment whereby they have little role in the decisions central to their lives or in the provision of health, educational and social services. This book argues for alternative and innovative approaches to leadership in intellectual disability service provision. It does this in the light of service scandals including Winterborne View (UK), Oswald D. Heck (USA), Áras Attracta (Ireland) and many others. This book also explores the failed leadership issues underpinning such debacles and then examines how the context for intellectual disability service provision has changed. The authors propose alternative models for service leadership that are contiguous with the changed landscape, emphasizing participatory models of leadership and ending with exemplary vignettes outlining situations where such innovative change is happening.
Intellectual disability (ID), once called mental retardation, is characterized by below-average intelligence or mental ability and a lack of skills necessary for day-to-day living. People with intellectual disabilities can and do learn new skills, but they learn them slowly. The proposed book argues for alternative and innovative approaches to leadership in intellectual disability service provision. It does this in the light of service scandals including Winterborne View (UK), Oswald D. Heck (USA), Aras Attracta (Ireland) and many others. The book will explore the failed leadership issues underpinning such debacles and then examine how the context for intellectual disability service provision has changed. It will then propose alternative models for service leadership that are contiguous with the changed landscape, ending with exemplary vignettes outlining situations where such innovative change is happening.
This text encapsulates not only the origins of nursing in the learning disability field but also contemporary perspectives and areas for specialist nursing practice. The book is divided into four sections: origins, perspectives, practice, and further perspectives. Section one (origins) describes Great Barr Colony and explores the conceptions of practice of actual attendants and nurses who worked there. It gives readers an in-depth focus on aspects of work and practice not accounted for in the literature to date. Section two (perspectives) explores social policy perspectives from the past eras of the workhouse, the colony and the hospital, through to the present age of citizenship. Research in learning disability nursing practice is identifi ed through scoping exercises to identify its current status. The section questions the research and practice developments that have come of age and that constitute a challenge within an evidence-based health and social care world. Section three (practice) identifi es a wide range of specialist areas of nursing practice, including community learning disability nursing, epilepsy, forensics, health facilitation, autism, mental health, challenging behaviour, children s services and working with people with profound and multiple learning disabilities. Section four (further perspectives) addresses areas of contemporary and future concern, namely, educational curricula for nurses and the importance of inter-professional education and practice development.
Practice Leadership refers to individuals who have direct front-line responsibility for leading the practice of staff on a day-to-day basis, such as operational leaders and managers in services for people with autism and intellectual disabilities. A good practice leader creates cultures and puts values into action. They deliver great support. A practice leader implements our best endeavours. A good leader makes all the difference. This book lays out the steps to achieving great practice leadership in services for people with autism and intellectual disabilities, such as care homes or supported living. It explains how practice leadership delivers support and care using the principles of Positive Behaviour Support (PBS). The book outlines what practice leadership should look like in context, how to do it and why it matters. It draws from real-life case studies throughout and each section encourages discussion and reflection. Refreshingly warm, humorous and jargon free, this is an indispensable guide for professionals in services working with people with intellectual disability or autism at any level.
Effective, efficient, and sustainable ID/DD organizations: are they possible in today's world of dwindling resources and mounting demands for more and better services? Yes--with the practical tools and strategies in this lifeline for ID/DD leaders. Developed by two of the most trusted authorities in the disability field, this innovative business leadership guide explains the nuts and bolts of successful change in clear and accessible terms, so any ID/DD organization can adapt and thrive in a high-pressure landscape. Managers and administrators will start with a quick self-assessment to determine how well they're meeting the most urgent challenges organizations face today. Then, with 8 highly effective approaches to change, they'll discover how to develop "21st century thinking styles," so they can communicate better, solve problems faster, and align their services and supports measure organizational outcomes and outputs, and use the information for reporting, monitoring, evaluation, and continuous quality improvement create high-performance teams that are organized, informed, empowered, and accountable employ a system of supports to address individual needs and improve outcomes for people with disabilities use evidence-based practices to assist in making good clinical, managerial, and policy decisions implement a performance-based evaluation and management system to strengthen effectiveness and efficiency create value and enhance sustainability through real innovation, whether it's developing new approaches or reconfiguring current approaches overcome resistance to change so they can successfully rewrite the future of their organization For each approach to change, readers will get specific, down-to-earth guidance: action steps to take right now, short summaries of key takeaway points, strategies and examples from successful organizations around the world, and photocopiable Organization Self-Assessment worksheets to help them quickly prioritize their next steps. An indispensable guide to surviving the shifting landscape of service delivery, this how-to book will help propel ID/DD organizations into the 21st century--so they can deliver high-quality, individualized services to people with disabilities.
Explores all aspects of professional development in learning disability nursing from the foundations to advanced practice. Key themes running through the book include the importance of a human rights and values-based approach, the development of person-centred approaches to care and support, and the need to work in partnership with key stakeholders, including people with learning disabilities and their families. It encourages readers to make links between theory and practice and to develop their skills in critical thinking through case studies and reflective activities. This is a must-have book for all undergraduate nurses studying to become Registered Nurses (Learning Disability), specifically linked to achieving the outcomes required within the NMC Standards for Nurse Education (2018). It is also of relevance to qualified learning disability nurses, those studying to become Registered Nurses (Intellectual Disabilities) in Ireland, as well as nursing students in general who should have a good working knowledge of learning disability practice.
This textbook provides nurses, allied health and social care professionals with the background knowledge necessary to support individuals with intellectual disabilities and their families. It is a unique and viable resource which is particularly timely, as recent decades have seen a significant change in the demographics and associated care and support needs of this population. The textbook is laid into four sections to provide a logical structure for the content with chapters developing key topic areas relevant to the field. The introductory section sets the overall context for the book and considers the importance of developing an understanding of intellectual disability as a core concept identifying philosophies and models of service that underpin health and social care across the lifespan. Communication as a basis for caring and the overall concept of person-centred caring in a multidisciplinary context is considered. The second section explores key concepts from birth to adulthood exploring the nature of intellectual disability, the child with intellectual disability and other related neurodevelopmental conditions. The third section explores adulthood to older age and considers specific health care needs, understanding behaviour and other fundamental concepts including mental health, ageing and palliative care. The fourth and final section explores the integration of health and social care addressing such issues as supporting and enabling families, education, employment, and sexuality and relationships. Edited by experienced and widely respected professionals, this textbook is written by international practitioners, educators and researchers who all play critical roles in working with individuals with intellectual disability and their families.
Social services for people with disabilities have undergone substantial changes over time, in particular in the past two decades. Whilst lack of affordable and appropriate housing is a barrier to community living for many people with disabilities, it is only one part of the jigsaw. This book traces some of these changes, in particular related to living situation and support available, in a range of different countries and considers the factors that have influenced these changes. This book considers other aspects of what is needed to bring about real change in the lives of all people with disabilities.
“This book claims to be ‘like no other’ and that is so true. The editors and authors each add quality guidance around distributed leadership to readers, providing evidence-based examples, useful websites and key reading material to support and supplement the ideas being presented.” Bridie Kent, Professor in Leadership in Nursing, University of Plymouth, UK “This book, thankfully, isn’t about self-defined heroic organizational leaders or power-hungry political leaders – it tells the stories of the people doing leadership every day in their work to make healthcare happen.” Scott Taylor, Business School Director of Admissions, University of Birmingham, UK This innovative book brings together experts from health sciences, nursing, business and management backgrounds to provide a broad analysis of the growing field of distributed leadership. The book offers health professionals practical guidance on applying distributed leadership, resulting in more effective forms of collaborative clinical teamwork and lasting improvements in care. The text: •Offers a comprehensive collection of perspectives, featuring chapters by expert clinical, nursing and management studies contributors •Synthesizes and explores recent developments in the leadership and distributed leadership research literature •Supports research and theory with examples of cases of effective distributed leadership in clinical practice, service quality, patient safety, leadership development, general nursing, midwifery education, oncology services, intellectual disability, evidence-based practice and organizational change and development •Provides an international focus, to encourage reflection on learning from experiences across Europe and beyond Distributed Leadership in Nursing and Healthcare is essential reading for health professionals, undergraduate and postgraduate students, and researchers working in the field of leadership. Edited by: Elizabeth A. Curtis, Assistant Professor, Trinity College Dublin, Ireland Martin Beirne, Emeritus Professor of Management and Organisational Behaviour at the University of Glasgow, UK John G. Cullen, Associate Professor, Maynooth University, Ireland Ruth Northway, Professor of Learning Disability Nursing, University of South Wales, UK Siobhán M. Corrigan, Assistant Professor, Trinity College Dublin, Ireland
Similar to a handbook in its comprehensive description of the theory and research supporting current practices in the treatment of autism spectrum disorders, this interdisciplinary text shows how the existing knowledge base can be used to explore promising new possibilities related to the field’s many unanswered questions. Key features include the following: Comprehensive – This is the first book to consider the history and current state of autism as a field in transition, to cover its varied approaches and philosophies, and to describe the interventions used throughout the developmental cycle. Cross Disciplinary – Serving students with autism necessitates communication and collaboration among professionals from several disciplines as well as family members. The editors have, therefore, brought together divergent perspectives, theories and philosophies in order to demonstrate that scientific evidence, rather than educational orientation, must determine which practices should be selected for use in particular situations. Research Based – Whereas many existing texts advocate a particular type of treatment, this one recognizes that interventions must be selected and evaluated based on the scientific evidence of their effectiveness. Integrated Methodology –Chapter authors consider findings from studies that employed single-subject designs, experimental large-scale studies, and qualitative methodology. The inter-relatedness of therapies and disciplines will be highlighted throughout. Expertise – The volume editors are all highly visible researchers in autism and developmental disabilities. Likewise, each chapter is directed by a senior, highly accomplished author who is nationally recognized for his/her work in the topic being addressed. This book is appropriate for practicing professionals in education and psychology and for speech/language therapists and other clinicians. It is also suitable as a graduate level text in these fields.
