Divided into five parts, this practical book begins by considering what research with young people is and why we should do it, before leading the reader into how to undertake it. The book then provides practical examples of action and finishes with reflections about the whole process.
There is increasing interest in young people’s participation in the design and delivery of health services. But young people’s views are not consistently sought or acknowledged, and they are still often marginalised in healthcare encounters. Drawing on original research and a diverse range of practice examples, Brady explores the potential for inclusive and diverse approaches to young people’s participation in health services from the perspectives of young people, health professionals and other practitioners. She presents a practical new framework, embedded in children’s rights, that shows how young people’s participation can be integrated into services in ways that are meaningful, effective and sustainable.
In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
Capturing the views and experiences of children and young people directly and involving them more actively in the research process are increasingly seen as essential for good research, evaluation, and policy and service development. Written by two experienced social researchers and trainers, this book provides a practical and concise introductory guide to doing research with children and young people, outlining the benefits and challenges along with key ethical, methodological and other considerations. Throughout, there are practical examples, checklists and top tips to aid the reader. Building on an established SRA training course, it offers an instructive resource for researchers, commissioners, policy makers, research users and others involved in research with children or young people.
Young adulthood - ages approximately 18 to 26 - is a critical period of development with long-lasting implications for a person's economic security, health and well-being. Young adults are key contributors to the nation's workforce and military services and, since many are parents, to the healthy development of the next generation. Although 'millennials' have received attention in the popular media in recent years, young adults are too rarely treated as a distinct population in policy, programs, and research. Instead, they are often grouped with adolescents or, more often, with all adults. Currently, the nation is experiencing economic restructuring, widening inequality, a rapidly rising ratio of older adults, and an increasingly diverse population. The possible transformative effects of these features make focus on young adults especially important. A systematic approach to understanding and responding to the unique circumstances and needs of today's young adults can help to pave the way to a more productive and equitable tomorrow for young adults in particular and our society at large. Investing in The Health and Well-Being of Young Adults describes what is meant by the term young adulthood, who young adults are, what they are doing, and what they need. This study recommends actions that nonprofit programs and federal, state, and local agencies can take to help young adults make a successful transition from adolescence to adulthood. According to this report, young adults should be considered as a separate group from adolescents and older adults. Investing in The Health and Well-Being of Young Adults makes the case that increased efforts to improve high school and college graduate rates and education and workforce development systems that are more closely tied to high-demand economic sectors will help this age group achieve greater opportunity and success. The report also discusses the health status of young adults and makes recommendations to develop evidence-based practices for young adults for medical and behavioral health, including preventions. What happens during the young adult years has profound implications for the rest of the life course, and the stability and progress of society at large depends on how any cohort of young adults fares as a whole. Investing in The Health and Well-Being of Young Adults will provide a roadmap to improving outcomes for this age group as they transition from adolescence to adulthood.
This book showcases rights based participatory approaches to policy-making, practice and research with children and youth. Throughout its three parts, the book conceptualises a rights-based participatory approach; showcases constructive and innovative rights based participatory approaches across the domains of research, policy and practice; and interrogates the challenges and complexities in the implementation of such an approach. In recent times, Ireland has been at the forefront of promoting and implementing participatory approaches to policy-making, practice and research focused on children and youth. This edited volume is a timely opportunity to capture previously undocumented learning generated from a wide range of innovative participatory initiatives implemented in Ireland. In capturing this learning, real world guidance will be provided to international policy-makers, practitioners and researchers working with children and youth. This book is essential reading for those interested in a rights based participatory approach, for those who want to appropriately and meaningfully engage children and youth in research, and for those wishing to maximise the contribution of children and youth in policy-making.
This revised and expanded second edition of Key Themes in Health and Social Care is a learning resource for students in health and social care. It provides an overview of foundational issues and core themes in the field and introduces key areas of debate, moving from an introductory level to in-depth discussion as the book progresses. Divided into three parts: the first part sets the scene, addressing introductory psychology and sociology, social policy, equality and diversity, skills for practice, and working with people the second part considers key themes such as mental health and wellbeing; management of services; the relationship between place and wellbeing; research in health and social care; and person-centred interventions the third part looks at discrete areas of practice such as mental health; ageing, leading and managing health and social care; working with vulnerable populations; and health promotion Each chapter begins with an outline of the content and learning outcomes and includes reflective exercises to allow students to reflect on what they have read, review their learning and consolidate their understanding. Time-pressed readers wanting to ‘dip into’ the book for relevant areas can do so but, read from cover to cover, the book provides a comprehensive introduction to the key areas of contemporary health and social care practice. It will be particularly helpful for students undertaking health and social care undergraduate and foundation degrees.
Worldwide, there has been a growth in service user involvement in education and research in recent years. This handbook is the first book which identifies what is happening in different regions of the world to provide different countries and client groups with the opportunity to learn from each other. The book is divided into five sections: Section One examines service user involvement in context exploring theoretical issues which underpin service user involvement. In Section Two we focus on the state of service user involvement in human services education and research across the globe including examples of innovative practice, but also identifying examples of where it is not happening and why. Section Three offers more detailed examination of such involvement in a wide range of professional education learning settings. Section Four focuses on the involvement of service users in research involving a wide range of service user groups and situations. Lastly, Section Five explores future challenges for education and research to ensure involvement remains meaningful. The book includes forty-eight chapters, including seventeen case-studies, from all regions of the world, this is the first book to both highlight the subject’s methodological and theoretical issues and give practical examples in education and research for those wishing to engage in this field. It will be of interest to all service users, scholars and students of social work, nursing, occupational therapy, and other human service subjects.
Participation in Children and Young People's Mental Health: An Essential Guide aims to break down the historical challenges surrounding children and young people's mental health (CYPMH) participation. It explores topics from how to conceptualise participation to more practical advice and guidance surrounding how to 'do' participation. Uniquely edited by Experts-by-Experience, it offers useful insights to how participation ought to be led from those with experience in the field. This ground-breaking text is supported by contributors from leading experts, including a mixture of lived experience and academic persepctives, providing a comprehensive dive into key concepts and practical examples to help improve practice. The chapters aim to spark thinking, conversations, and actions in participation and will provide lessons to embed into services, organisations, areas, groups, practice, and work. This text is an essential guide for trainees and professionals working in CYPMH services which includes the NHS in England, voluntary sector, and other health systems internationally.