My Mighty Mito Book

My Mighty Mito Book

Author: Cara Koscinski

Publisher: Createspace Independent Publishing Platform

Published: 2016-08-20

Total Pages: 44

ISBN-13: 9781515229841

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This is the perfect book for your child! It has colorful and fun illustrations. Mitochondrial disease affects people of all ages. Often, children benefit from books which explain symptoms and feelings in clear wording and bright photos. 'My Mighty Mito' has space for your child to personalize the book in the front as well as room for your child to write his/her own feelings and symptoms to help them to know that other children go through similar experiences and that they are not alone. 'Mighty Mito' is what Joshua Koscinski has called his mitochondria since he was a young child. Joshua is a thirteen year old who lives daily with the difficult symptoms and effects of mitochondrial disease. His desire is to help other children to know there are more kids like them out there and to not feel afraid. Often children with special needs benefit from 'social stories' or stories that help them to understand what is happening to them. For Joshua, writing is a way to let other children know that they are amazing! Cristy Balcells, founder of MitoAction.org and author of Living Well with Mitochondrial Disease wrote the foreward for our book. We hope you love reading it as much as we loved writing it. Joshua lives with mitochondrial disease, autism, Ehlers-Danlos, Sensory Processing Disorder, speech and motor delays, and eosinophilic esophagitis. When he is unable to walk, Joshua uses his granny smith apple wheelchair. He is home schooled since mitochondrial disease severely limits his energy level. Joshua is fed via a GJ tube (gastrojejunostomy tube) since his stomach doesn't function effectively. He is hyper-sensitive to heat and humidity, which is common in those with mitochondrial disease. Cara Koscinski, MOT, OTR/L (known as The Pocket Occupational Therapist) is Joshua's mother. She has authored four books and travels throughout the US to help educate therapists, parents, and teachers about working with children who have special needs. Visit her website at www.PocketOT.com for more information. Joshua has been a guest on the Anderson Cooper daytime talk show, on the cover of AutismAsperger's Digest, and AutismFile magazines. He is an advocate for other children who have mitochondrial disease.


PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR MITOCHONDRIAL DISEASES

PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR MITOCHONDRIAL DISEASES

Author: Edenilson Brandl

Publisher: Edenilson Brandl

Published:

Total Pages: 1475

ISBN-13:

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Mitochondrial diseases represent a complex group of genetic disorders that primarily affect the mitochondria, the energy-producing structures within our cells. These diseases can lead to a wide range of symptoms, impacting various organ systems and often presenting significant challenges for patients and their families. As our understanding of mitochondrial diseases grows, so does the recognition of the need for comprehensive care that encompasses not just medical interventions but also psychological support. This book aims to bridge the gap between the scientific understanding of mitochondrial diseases and the therapeutic benefits of Cognitive Behavioral Therapy (CBT). While medical treatments focus on managing symptoms and improving physiological function, psychological support is essential for helping patients navigate the emotional and mental health challenges that accompany chronic illness. Cognitive Behavioral Therapy has been shown to be effective in treating a variety of mental health conditions, including anxiety, depression, and stress, which can be particularly prevalent in those living with chronic diseases. This therapeutic approach empowers individuals by fostering self-awareness, developing coping strategies, and encouraging positive behavioral changes. By integrating CBT into the care of those affected by mitochondrial diseases, we can help improve not only their psychological well-being but also their overall quality of life. In the chapters that follow, we will explore a range of topics related to mitochondrial diseases, genetics, and the principles of CBT. We will discuss the biological underpinnings of mitochondrial dysfunction, the emotional impact of living with chronic illness, and the various CBT tools and techniques that can support mental health. Additionally, we will address practical strategies for managing pain, dealing with trauma, and navigating the often overwhelming journey of genetic conditions. This book is intended for patients, families, healthcare providers, and anyone interested in understanding the interplay between mitochondrial diseases and psychological well-being. It is my hope that the information and strategies presented here will offer guidance, comfort, and encouragement to those affected by these complex disorders. Together, we can foster a more holistic approach to care that recognizes the importance of mental health alongside physical health. Welcome to this journey of understanding, healing, and empowerment.


Spectrum Women

Spectrum Women

Author: Barb Cook

Publisher: Jessica Kingsley Publishers

Published: 2018-08-21

Total Pages: 338

ISBN-13: 1784508063

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Barb Cook and 14 other autistic women describe life from a female autistic perspective, and present empowering, helpful and supportive insights from their personal experience for fellow autistic women. Michelle Garnett's comments validate and expand the experiences described from a clinician's perspective, and provide extensive recommendations. Autistic advocates including Liane Holliday Willey, Anita Lesko, Jeanette Purkis, Artemisia and Samantha Craft offer their personal guidance on significant issues that particularly affect women, as well as those that are more general to autism. Contributors cover issues including growing up, identity, diversity, parenting, independence and self-care amongst many others. With great contributions from exceptional women, this is a truly well-rounded collection of knowledge and sage advice for any woman with autism.


The McArdle Disease Handbook

The McArdle Disease Handbook

Author: Kathryn Elizabeth Birch, Ph.D.

Publisher: AGSD-UK

Published: 2011-07-01

Total Pages: 210

ISBN-13: 0956965814

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This handbook explains, in layman's terms, the cause, method of inheritance, history and current and future treatments of McArdle Disease (also known as Glycogen Storage Disease Type V). The handbook puts into plain English the published information relating to the scientific and medical research into McArdle Disease.


Nursing Diagnosis Handbook, 12th Edition Revised Reprint with 2021-2023 NANDA-I® Updates - E-Book

Nursing Diagnosis Handbook, 12th Edition Revised Reprint with 2021-2023 NANDA-I® Updates - E-Book

Author: Betty J. Ackley

Publisher: Elsevier Health Sciences

Published: 2021-08-26

Total Pages: 1002

ISBN-13: 032387570X

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- Step-by-step instructions show how to use the Guide to Nursing Diagnoses and Guide to Planning Care sections to create a unique, individualized plan of care. - UNIQUE! Care plans are provided for NANDA-I© approved nursing diagnoses. - Evidence-based interventions and rationales include recent or classic research and references supporting the use of each intervention. - Examples of and suggested NIC interventions and NOC outcomes are presented in each care plan. - 150 NCLEX® exam-style review questions are available on the Evolve website. - Easy-to-follow Sections I and II guide you through the nursing process and selection of appropriate nursing diagnoses. - Clear, concise interventions are usually only a sentence or two long and use no more than two references. - Safety content emphasizes what must be considered to provide safe patient care. - List of NANDA-I© Diagnoses on the inside front cover of the book provides quick reference to page numbers. - Alphabetical thumb tabs allow quick access to specific symptoms and nursing diagnoses. - Appendixes provide valuable information in an easy-to-access location.


Handbook of Health Social Work

Handbook of Health Social Work

Author: Sarah Gehlert

Publisher: John Wiley & Sons

Published: 2019-07-09

Total Pages: 712

ISBN-13: 111942027X

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The updated third edition of the definitive text on health social work Thoroughly revised and updated, the third edition of Handbook of Health Social Work is an authoritative text that offers a comprehensive review of the diverse field of health social work. With contributions from a panel of international experts in the field, the book is theory driven and solidly grounded in evidence-based practice. The contributors explore both the foundation of social work practice and offer guidance on effective strategies, policies, and program development. The text provides information that is essential to the operations of social workers in health care including the conceptual underpinnings and the development of the profession. The authors explore the practice issues such as theories of health behavior, assessment, communication and the intersections between health and mental health. The authors also examine a wide range of examples of social work practices including settings that involve older adults, nephrology, oncology, and chronic diseases such as diabetes, heart disease, HIV/AIDS, genetics, end of life care, pain management and palliative care, as well as alternative treatments, and traditional healers. This is the only handbook of its kind to unite the body of health social work and: • Offers a wellness, rather than psychopathological perspective and contains treatment models that are evidence-based • Includes learning exercises, further resources, research suggestions, and life-course information. • Contains new chapters on topics such as international health, insurance and payment systems, and implementation of evidence-based practice • Presents information on emerging topics such as health policy in an age of reform, and genomics and the social environment • Reviews new trends in social work and health care including genetics, trans-disciplinary care, and international, national, and state changes in policy Written for social work educators, administrators, students, and practitioners, the revised third edition of Handbook of Health Social Work offers in one volume the entire body of health social work knowledge.


Genetic Counseling Research: A Practical Guide

Genetic Counseling Research: A Practical Guide

Author: Ian MacFarlane

Publisher: Oxford University Press

Published: 2014-05-27

Total Pages: 305

ISBN-13: 0199359113

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Genetic Counseling Research: A Practical Guide is the first text devoted to research methodology in genetic counseling. This text offers step-by-step guidance for conducting research, from the development of a question to the publication of findings. Genetic counseling examples, user-friendly worksheets, and practical tips guide readers through the research and publication processes. With a highly accessible, pedagogical approach, this book will help promote quality research by genetic counselors and research supervisors--and in turn, increase the knowledge base for genetic counseling practice, other aspects of genetic counseling service delivery, and professional education. It will be an invaluable resource to the next generation of genetic counseling and its surrounding disciplines.


The Wiley-Blackwell Handbook of Adulthood and Aging

The Wiley-Blackwell Handbook of Adulthood and Aging

Author: Susan K. Whitbourne

Publisher: John Wiley & Sons

Published: 2016-08-08

Total Pages: 597

ISBN-13: 1119237882

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This exceptional collection draws on the most recent demographic data and combines classic research with cutting-edge approaches to provide an invaluable overview of the developmental psychology of the adult years. Covers a wide range of topics within adult development and aging, from theoretical perspectives to specific content areas Includes newly commissioned essays from the top researchers in the field Takes a biopsychosocial perspective, covering the biological, psychological and social changes that occur in adulthood


The Bipolar Brain

The Bipolar Brain

Author: Stephen Strakowski

Publisher: Oxford University Press

Published: 2022

Total Pages: 329

ISBN-13: 0197574521

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"Although efforts to examine the structure and function of the human brain stretch back centuries (Paluzzi et al, 2007), techniques allowing the study of living humans are a relatively recent development. Early investigators confined themselves to largely studying external features, with 18th century methodologies such as phrenology purporting to link extracranial proxies for brain size and structure to specific personality traits (Livianos-Aldana et al, 2007). However, these techniques did not prove useful for either clinical or research purposes. Two-dimensional x-ray imaging, while constituting an important medical advance, did not provide sufficient soft tissue contrast to be useful for studying "functional" psychiatric disorders such as bipolar disorder; techniques to enhance contrast, such as ventriculography and pneumoencephalography were similarly limited (Figure 1.1). Wide-spread in vivo studies of brain morphometry had to await the development of computed tomography imaging (CT) in the early 1970s. By the early 1980s CT was already being applied to the study of bipolar disorder (Pearlson et al, 1981)"--