A rich collection of writing from those negotiating disability in their lives - a group whose voices are not heard often enough My body and its place in the world seemed normal to me. Why wouldn’t it? I didn’t grow up disabled; I grew up with a problem. A problem that those around me wanted to fix. We have all felt that uncanny sensation that someone is watching us. The diagnosis helped but it didn’t fix everything. Don’t fear the labels. That identity, which I feared for so long, is now one of my greatest qualities. I had become disabled – not just by my disease, but by the way the world treated me. When I found that out, everything changed. One in five Australians has a disability. And disability presents itself in many ways. Yet disabled people are still underrepresented in the media and in literature. In Growing Up Disabled in Australia – compiled by writer and appearance activist Carly Findlay OAM – more than forty writers with a disability or chronic illness share their stories, in their own words. The result is illuminating. Contributors include senator Jordon Steele-John, paralympian Isis Holt, Dion Beasley, Sam Drummond, Astrid Edwards, Sarah Firth, El Gibbs, Eliza Hull, Gayle Kennedy, Carly-Jay Metcalfe, Fiona Murphy, Jessica Walton and many more.
This book helps readers understand and cope with the complex web of emotions experienced by anyone sharing a childhood with a sibling with special needs and speaks to parents juggling the needs of both a typically developing child and one with a disabilit
When there's a disabled child in the family, how are normally developing siblings affected? According to Kate Strohm, a counselor and health educator, siblings of the disabled face particular emotional challenges that are often overlooked. Able siblings commonly struggle with feelings of isolation, grief, anger, and anxiety—and these and other emotional issues can have lifelong effects. Being the Other One is based on the author's own experience (as a sibling of a sister with cerebral palsy) and on extensive interviews she conducted with siblings of all ages. In clear and compassionate terms, Strohm explores the often secret feelings of siblings and offers valuable strategies for coping with the challenges they face. Being the Other One reveals the difficulties faced by siblings at all stages of life, from early childhood through adulthood, when siblings must often assume responsibility for the care of their disabled brothers and sisters. Though the book looks honestly at the many challenges that siblings face, it is full of encouragement and practical strategies. Strohm emphasizes that when siblings are able to clearly identify and openly express their feelings and concerns—and when parents and health professionals offer the needed support—siblings can thrive. This book includes writing exercises for personal exploration and a substantial resources section listing helpful books, organizations, and websites.
Through case studies and clearly presented content, this book helps readers learn what they can do to assist students with disabilities in achieving positive adult outcomes. Professionals, students of special education and families of students with disabilities will all benefit from this comprehensive introduction to transition services. This book provides a comprehensive and clear introduction to effective transition services for students with disabilities who are leaving the special education system. The Prologue and Chapter 1 provide an overview of the topic of transition services, and the remaining chapters go into detail about specific aspects of the transition planning process. The central roles of students with disabilities and their families are emphasized. Case studies of two individuals, one with mild disabilities and one with severe disabilities, are followed throughout the text to illustrate effective practices, ensuring readers are able to apply the content to students with different types and severity of disabilities, and are able to understand how practices can be tailored to meet individual student needs. The content is presented so that readers can apply key strategies immediately in their work as teachers or in other professional capacities. Research Summaries in each chapter address the research basis for effective practices that are discussed throughout the book. Spotlight on History in most chapters provides a short biography on an individual who made a significant contribution to the development of transition services. Additional resources and websites are included at the end of each chapter.
Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage? Mattlin’s life happened to parallel the growth of the disability rights movement, so that in many ways he did not feel that he was disadvantaged at all, merely different. Miracle Boy Grows Up is a witty, unsentimental memoir that you won’t forget, told with engrossing intelligence and a unique perspective on living with a disability in the United States.
Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.
Ten percent of the population is affected by a learning disability, but few of us understand what being learning disabled (LD) is really like. When he was fourteen, Bradlee was diagnosed with Velo-Cardio-Facial-Syndrome (VCFS), a wide-spread, little-understood disorder that is expressed through a wide range of physical ailments and learning disabilities. In this funny, moving, and often irreverent book, Bradlee tells his own inspirational story of growing up as an LD kid -- and of doing so as the child of larger-than-life, formidably accomplished parents: long-time Washington Post executive editor Ben Bradlee and bestselling author Sally Quinn. From his difficulties reading social cues, to his cringe-worthy loss of sexual innocence, Bradlee describes the challenges and joys of living "a different life" with disarming candor and humor. By the end of A Different Life he will have become, if not your best friend, one of your favorite people.
The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology
From a New York Times bestselling author, an inspirational world vision from the boy Jimmy Carter called “the most remarkable person I have ever known.” “I was touched by the depth of passion and awed by the firm resolve with which Mattie Stepanek pursued a dream that has evaded men and women throughout history. What began as a casual discourse . . . became a treasured and enlightening friendship that changed my life forever.” —Jimmy Carter Sometimes the most important messages come from the most unlikely places. Mattie J.T. Stepanek, a thirteen-year-old boy, made a difference before he died with his Heartsongs poetry series. He continues to impact the world through Just Peace. This poet, best-selling author, peace activist, and prominent voice for the Muscular Dystrophy Association fervently believed in world peace not just as a concept, but as a reality. Mattie was working on this manuscript with Jimmy Carter when he died in June 2004. Just Peace explores Mattie's concept of the world and all people as a unique mosaic of gifts. War and injustice shatter the mosaic, which can only be made whole again by planning and actively pursuing peace. The young visionary's essays, poetry, and photographs appear throughout the book. Just as important to the book and enlightening to the reader are Mattie's many correspondences, including his personal e-mails to and from former president Nobel Peace Laureate Jimmy Carter, Mattie's peace “hero” and role model, who has written a special forward for the book. Just Peace is an intimate portrait of a president, a young man of hope, and peace itself.
