Families of Children with Developmental Disabilities

Families of Children with Developmental Disabilities

Author: David W. Carroll

Publisher: Amer Psychological Assn

Published: 2013

Total Pages: 237

ISBN-13: 9781433813290

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Parents of children with disabilities confront a number of challenges and may be at risk for depressive or trauma-related symptoms. Changes in family roles and routines can cause stress for parents, siblings, and extended family alike as they confront multiple issues, including behavioural problems and frequent healthcare needs. Despite such challenges, many families derive a sense of meaning from facing their difficulties in a positive way. This book surveys the most recent empirical research on families of children with disabilities and provides guidelines and strategies for the developmental and family psychologists who support these clients. The book follows a developmental progression, first examining the immediate effects that a child's disability can have on his or her family and looking at the changes that occur as the child grows and faces new challenges. In doing so, the author examines studies employing a variety of methodologies, including quantitative research, meta-analyses, and qualitative methods such as narrative analysis. The book also describes cognitive behavioural interventions and programs that train parents to more effectively manage child behavioural problems and thereby improve family well-being.


Parenting Matters

Parenting Matters

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-21

Total Pages: 525

ISBN-13: 0309388570

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Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.


Parents and Families of Children with Disabilities

Parents and Families of Children with Disabilities

Author: Craig R. Fiedler

Publisher: Prentice Hall

Published: 2007

Total Pages: 372

ISBN-13:

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Parents and Families of Children with Disabilities: Providing Effective School Based Support Services provides educators and paraprofessionals with the necessary motivation, research-based practices, skills, and resources to collaborate effectively with families to develop family-centered schools. The book challenges educators to rethink the traditional roles and responsibilities of public schools, training teachers and paraprofessionals how to achieve effective stress management, child advocacy, and transition planning, as well as how to provide academic intervention for the families of children with disabilities and the diverse communities that surround them. Highlights of this book include: Communication and Collaboration Tips provide practical suggestions and examples to professionals that help foster partnership and trust A groundbreaking chapter on Providing Supports for Siblings of children with disabilities (Chapter 2) A chapter on providing Educational Support Services to Assist Parents and Families in Designing and Implementing Positive Behavior Interventions (Chapter 9) A realistic focus on the personal stories of the families of students with disabilities through case study Perspectives and a concluding chapter on Family Stories Illustrating School Based Support A wide variety of pedagogical features in every chapter, including: Learning Objectives, chapter opening Vignettes revisited again at the chapter conclusion, Summary Statements, Questions for Discussion, Reflection Activities, and annotated web link Resources


Life Planning for Adults with Developmental Disabilities

Life Planning for Adults with Developmental Disabilities

Author: Judith Greenbaum

Publisher: New Harbinger Publications

Published: 2007

Total Pages: 214

ISBN-13: 1572244518

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A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individualsis scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? Learn effective ways to: Assess a disabled individual's strengths and need for support services Develop a plan to for building a busy and productive life Locate good housing and employment opportunities Gather a supportive team of caregivers Advocate for a disabled individual with community agencies


Working with Families of Young Children with Special Needs

Working with Families of Young Children with Special Needs

Author: R. A. McWilliam

Publisher: Guilford Press

Published: 2010-01-13

Total Pages: 281

ISBN-13: 1606235400

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This user-friendly book presents research-based best practices for serving families of children with special needs from birth to age 6. Expert contributors demonstrate how early intervention and early childhood special education can effectively address a wide range of family concerns, which in turn optimizes children's development and learning. Tightly edited, the volume offers indispensable tools for assessing families; identifying and capitalizing on their strengths; providing information, support, and coaching; collaborating with parents and teachers to address children's functional needs in the context of everyday routines; and coordinating care. Over a dozen reproducible checklists and forms help professionals immediately implement the techniques and strategies described.


Ordinary Families, Special Children, Third Edition

Ordinary Families, Special Children, Third Edition

Author: Milton Seligman

Publisher: Guilford Press

Published: 2009-02-23

Total Pages: 449

ISBN-13: 1606233173

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This popular clinical reference and text provides a multisystems perspective on childhood disability and its effects on family life. The volume examines how child, family, ecological, and sociocultural variables intertwine to shape the ways families respond to disability, and how professionals can promote coping, adaptation, and empowerment. Accessible and engaging, the book integrates theory and research with vignettes and firsthand reflections from family members.


Parents with Intellectual Disabilities

Parents with Intellectual Disabilities

Author: Gwynnyth Llewellyn

Publisher: John Wiley & Sons

Published: 2010-02-18

Total Pages: 290

ISBN-13: 9780470660409

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The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter Presents a unique, pan-disciplinary overview of this growing field of study Offers a human rights approach to disability and family life Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability


Mental Disorders and Disabilities Among Low-Income Children

Mental Disorders and Disabilities Among Low-Income Children

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2015-10-28

Total Pages: 397

ISBN-13: 0309376882

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Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.


Grandparents of Children with Disabilities

Grandparents of Children with Disabilities

Author: Liora Findler

Publisher: Springer

Published: 2016-09-27

Total Pages: 122

ISBN-13: 3319455176

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This briefs offers a comprehensive view of the journey of grandparents of children with disabilities by employing a wide range of theoretical approaches such as intergenerational relationships, positive psychology, psychoanalytic views and models of stress. It presents a multidimensional view of grandparents, which begins with the general role of grandparents in the family and the transition to grandparenthood, as a major life event. The briefs moves on to discuss grandparents’ roles under unique circumstances such as illness or disability in the family and then deals with perspectives of parents of children with disabilities on the role of grandparents. Finally, it reviews attitudes of professionals toward grandparents and concludes with suggested intervention strategies for working with families on intergenerational relationships.


Handbook of Disability Studies

Handbook of Disability Studies

Author: Gary L. Albrecht

Publisher: SAGE

Published: 2001

Total Pages: 868

ISBN-13: 9780761928744

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This path-breaking international handbook of disability studies signals the emergence of a vital new area of scholarship, social policy and activism. Drawing on the insights of disability scholars around the world and the creative advice of an international editorial board, the book engages the reader in the critical issues and debates framing disability studies and places them in an historical and cultural context. Five years in the making, this one volume summarizes the ongoing discourse ranging across continents and traditional academic disciplines. To provide insight and perspective, the volume is divided into three sections: The shaping of disability studies as a field; experiencing disability; and, disability in context. Each section, written by world class figures, consists of original chapters designed to map the field and explore the key conceptual, theoretical, methodological, practice and policy issues that constitute the field. Each chapter provides a critical review of an area, positions and literature and an agenda for future research and practice. The handbook answers the need expressed by the disability community for a thought provoking, interdisciplinary, international examination of the vibrant field of disability studies. The book will be of interest to disabled people, scholars, policy makers and activists alike. The book aims to define the existing field, stimulate future debate, encourage respectful discourse between different interest groups and move the field a step forward.