Everything No One Tells You About Parenting a Disabled Child
Everything No One Tells You About Parenting a Disabled Child

Author: Kelley Coleman

Publisher: Hachette Go

Published: 2024-03-12

Total Pages: 202

ISBN-13: 0306831716

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The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver. For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child’s success. Over and over, parents are being asked to reinvent the exact same wheels. According to the CDC, “Every 4 ½ minutes a baby is born with a birth defect in the United States.” That’s 1 in 33. There’s no handbook for how to do this. Until now. Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports gives parents the tools to conquer the stuff, so that they can spend less time filling out forms, and more time loving their children exactly as they are. With over a decade of experience navigating these systems for her own child, author Kelley Coleman presents key information, templates, and wisdom alongside practical advice from over 40 experts, covering topics such as diagnosis, working with your medical team, insurance, financial planning, disability rights and advocacy, and individualized education plans. Everything No One Tells You About Parenting a Disabled Child gives parents the tools they need to stop wasting unnecessary time, money, and stress. If you need to know how to actually do the things, this book is for you.

Aching Joy
Aching Joy

Author: Jason Hague

Publisher: NavPress

Published: 2018-10-02

Total Pages: 181

ISBN-13: 1631469428

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When his oldest son was diagnosed with severe autism, pastor Jason Hague found himself trapped, stuck between perpetual sadness and a lower, safer kind of hope. This is the common struggle for those of us walking through the Land of Unanswered Prayer. Life doesn’t look the way we expected, so we seek to protect ourselves from further disappointment. But God has a third path for us, beyond sadness or resignation: the way of aching joy. Christ himself is with us here, beckoning us toward the treasures hidden in the darkness. Aching Joy is an honest psalm of hope for those walking between pain and promise: the aching of a broken world and the beauty of a loving God. In this place, rather than trying to dodge the pain, we choose to feel it all—and to see where Jesus is in the midst of struggle. And because we make that choice, we feel all the good that comes with it, too. This is Jason’s story. This is your story. Come, find your joy within the aching.

Forever Boy
Forever Boy

Author: Kate Swenson

Publisher: Harlequin

Published: 2022-04-05

Total Pages: 299

ISBN-13: 0369716760

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NATIONAL BESTSELLER With her popular blog, Finding Cooper's Voice, Kate Swenson has provided hope and comfort for hundreds of thousands of parents of children with Autism. Now, Kate shares her inspiring story in this powerful memoir about motherhood and unconditional love When Kate Swenson’s son Cooper was diagnosed with severe, nonverbal autism, her world stopped. She had always dreamed of having the perfect family life. She hadn’t signed up for life as a mother raising a child with a disability. At first, Kate experienced the grief of broken dreams. Then she felt the frustration and exhaustion of having to fight for your child in a world that is stacked against them. But through hard work, resilience and personal growth, she would come to learn that Cooper wasn’t the one who needed to change. She was. And it was this transformation that led Kate to acceptance—and ultimately joy. In Forever Boy, Kate shares her inspiring journey with honesty and compassion, offering solace and hope to others on this path and illuminating the strength and perseverance of mothers.

The Cracks that Let the Light In
The Cracks that Let the Light In

Author: Jessica Moxham

Publisher: Hachette UK

Published: 2021-03-04

Total Pages: 288

ISBN-13: 1913068420

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'A powerful, moving and inspiring story - it opens up a whole new world of understanding.' Esther Freud 'This is wonderful. I urge you to read it. It is life enhancing and I defy you not to fall in love with Ben!' Natasha Poliszczuk, Books Editor, You Magazine 'An honest and unflinching account of Jessica's journey as the mother of a child born with complex needs. Essential reading... and a source of solace for those who may find themselves on a similar path' Leah Hazard, author of Hard Pushed: A Midwife's Story 'Jessica's beautiful words gave me a deeper understanding about embracing disability. I am inspired and will be recommending this book to parents as a testament to following your parenting instincts.' Arabella Carter-Johnson, author of Iris Grace 'A courageous, heartrending story of grief, love and ultimately hope.' The Sun, 5 star review *** Jessica Moxham thought she was prepared for the experience of motherhood. Armed with advice from friends and family, parenting books and antenatal classes, she felt ready. After giving birth, she found herself facing a different, more uncertain reality. Her son, Ben, was fighting to stay alive. When Jessica could finally take him home from hospital, the challenges were far from over. In this hopeful memoir, Jessica shares her journey in raising Ben. His disability means he will never be able to move or communicate without assistance. Jessica has to learn how to feed Ben when he can't eat, wrestle with red tape to secure his education and defend his basic rights in the face of discrimination. As Ben begins to thrive, alongside his two younger siblings, Jessica finds that caring for a child with unique needs teaches her about appreciating difference and doing things your own way. This uplifting story is about the power of family love, finding inner strength and, above all, hope.

Millennial Nuns
Millennial Nuns

Author: The Daughters of Saint Paul

Publisher: Simon and Schuster

Published: 2021-07-06

Total Pages: 240

ISBN-13: 1982158026

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More and more people-- especially millennials-- are turning to religion as a source of comfort and solace in our increasingly chaotic world. Rather than live a cloistered life of seclusion, the Daughters of Saint Paul actively embrace social media to evangelize, collectively calling themselves the #MediaNuns. In this collective memoir, eight of these Sisters share their own discernment journeys, struggles and crises of faith that they have overcome, and episodes from their daily lives. They offer practical takeaways and tips for living a more spiritually-fulfilled life, no matter your religious affiliation. -- adapted from jacket

Changed by a Child
Changed by a Child

Author: Barbara Gill

Publisher: Harmony

Published: 1998-08-17

Total Pages: 338

ISBN-13: 0385482434

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Raising a child with a disability can often be more isolating and frustrating than any parent ever imagines. Finally, here is a book that honestly describes the inner needs and range of issues parents with disabled children face. Changed by a Child invites parents to take a moment for themselves. Each of the brief readings offers comfort and hope as they capture the unique challenges and joys of raising a disabled child.

The Family Experience of PDA
The Family Experience of PDA

Author: Eliza Fricker

Publisher: Jessica Kingsley Publishers

Published: 2021-11-18

Total Pages: 146

ISBN-13: 1787756785

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Eliza Fricker gets it. Describing her perfectly imperfect experience of raising a PDA child, with societal judgements and internal pressures, it is easy to feel overwhelmed, resentful and alone. This book's comedic illustrations explain these challenging situations and feelings in a way that words simply cannot, will bring some much-needed levity back into PDA parenting. Humorous anecdotes with a compassionate tone remind parents that they are not alone, and they're doing a great job. If children are safe, happy, and you leave the house on time, who cares about some smelly socks? A light-hearted and digestible guide to being a PDA parent covering everything from tolerance levels, relationships and meltdowns to collaboration, flexibility, and self care to dip in and out as your schedule allows to help get to grips with this complex condition. This book is an essential read for any parent with a PDA child, to help better understand your child, build support systems and carve out some essential self care time guilt free.

Elevating Child Care
Elevating Child Care

Author: Janet Lansbury

Publisher: Rodale Books

Published: 2024-04-30

Total Pages: 177

ISBN-13: 0593736168

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A modern parenting classic—a guide to a new and gentle way of understanding the care and nurture of infants, by the internationally renowned childcare expert, podcaster, and author of No Bad Kids “An absolute go-to for all parents, therapists, anyone who works with, is, or knows parents of young children.”—Wendy Denham, PhD A Resources for Infant Educarers (RIE) teacher and student of pioneering child specialist Magda Gerber, Janet Lansbury helps parents look at the world through the eyes of their infants and relate to them as whole people who have natural abilities to learn without being taught. Once we are able to view our children in this light, even the most common daily parenting experiences become stimulating opportunities to learn, discover, and connect with our child. A collection of the most-read articles from Janet’s popular and long-running blog, Elevating Child Care focuses on common infant issues, including: • Nourishing our babies’ healthy eating habits • Calming your clingy, fearful child • How to build your child’s focus and attention span • Developing routines that promote restful sleep Eschewing the quick-fix tips and tricks of popular parenting culture, Lansbury’s gentle, insightful guidance lays the foundation for a closer, more fulfilling parent-child relationship, and children who grow up to be authentic, confident, successful adults.

Not What I Expected
Not What I Expected

Author: Rita Eichenstein PhD

Publisher: Penguin

Published: 2015-04-07

Total Pages: 274

ISBN-13: 0399171762

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Finalist for a Books for a Better Life Award A pediatric neuropsychologist presents strategies to help parents of special-needs children navigate the emotional challenges they face. As diagnosis rates continue to rise for autism, ADHD, learning disabilities, and other developmental differences, parents face a maze of medical, psychological, and educational choices – and a great deal of emotional stress. Many books address children’s learning or behavior problems and advise parents what they can do to help their kids, but until Not What I Expected: Help and Hope for Parents of Atypical Children there were no books that explain what the parents are going through - and how they can cope with their own emotional upheaval – for their own sake, and for the wellbeing of the whole family. With compassion, clarity, and an emphasis on practical solutions, Dr. Rita Eichenstein's Not What I Expected: Help and Hope for Parents of Atypical Children walks readers through the five stages of acceptance (similar to the stages of grief, but modified for parents of special-needs kids). Using vivid anecdotes and suggestions, she helps readers understand their own emotional experience, nurture themselves in addition to their kids, identify and address relationship wounds including tension in a marriage and struggles with children (special-needs and neurotypical), and embrace their child with acceptance, compassion and joy.