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Author: OECD
Publisher: OECD Publishing
Published: 2006-11-13
Total Pages: 168
ISBN-13:
DOWNLOAD EBOOKSummarises proceedings of a conference looking at examples of human genetic research databases, how they are established, how they are managed and governed, how they might be commercialised, and what the policy considerations might be.
Author: OECD
Publisher: OECD Publishing
Published: 2006-10-25
Total Pages: 156
ISBN-13: 9264028536
DOWNLOAD EBOOKSummarises proceedings of a conference looking at examples of human genetic research databases, how they are established, how they are managed and governed, how they might be commercialised, and what the policy considerations might be.
Author: Matthew Rimmer
Publisher: Edward Elgar Publishing
Published: 2012-01-01
Total Pages: 499
ISBN-13: 1781001189
DOWNLOAD EBOOKThis unique and comprehensive collection investigates the challenges posed to intellectual property by recent paradigm shifts in biology. It explores the legal ramifications of emerging technologies, such as genomics, synthetic biology, stem cell research, nanotechnology, and biodiscovery. Extensive contributions examine recent controversial court decisions in patent law such as Bilski v. Kappos, and the litigation over Myriad's patents in respect of BRCA1 and BRCA2 while other papers explore sui generis fields, such as access to genetic resources, plant breeders' rights, and traditional knowledge. The collection considers the potential and the risks of the new biology for global challenges such as access to health-care, the protection of the environment and biodiversity, climate change, and food security. It also considers Big Science projects such as biobanks, the 1000 Genomes Project, and the Doomsday Vault. The inter-disciplinary research brings together the work of scholars from Australia, Canada, Europe, the UK and the US and involves not only legal analysis of case law and policy developments, but also historical, comparative, sociological, and ethical methodologies. Intellectual Property and Emerging Technologies will appeal to policy-makers, legal practitioners, business managers, inventors, scientists and researchers.
Author: Muin J. Khoury
Publisher: Oxford University Press
Published: 2010-01-20
Total Pages: 701
ISBN-13: 0195398440
DOWNLOAD EBOOKThe first edition of Human Genome Epidemiology, published in 2004, discussed how the epidemiologic approach provides an important scientific foundation for studying the continuum from gene discovery to the development, applications and evaluation of human genome information in improving health and preventing disease. Since that time, advances in human genomics have continued to occur at a breathtaking pace.With contributions from leaders in the field from around the world, this new edition is a fully updated look at the ways in which genetic factors in common diseases are studied. Methodologic developments in collection, analysis and synthesis of data, as well as issues surrounding specific applications of human genomic information for medicine and public health are all discussed. In addition, the book focuses on practical applications of human genome variation in clinical practice and disease prevention. Students, clinicians, public health professionals and policy makers will find the book a useful tool for understanding the rapidly evolving methods of the discovery and use of genetic information in medicine and public health in the 21st century.
Author: Muin Khoury
Publisher: Oxford University Press
Published: 2010-01-20
Total Pages: 701
ISBN-13: 0199749345
DOWNLOAD EBOOKThe first edition of Human Genome Epidemiology, published in 2004, discussed how the epidemiologic approach provides an important scientific foundation for studying the continuum from gene discovery to the development, applications and evaluation of human genome information in improving health and preventing disease. Since that time, advances in human genomics have continued to occur at a breathtaking pace. With contributions from leaders in the field from around the world, this new edition is a fully updated look at the ways in which genetic factors in common diseases are studied. Methodologic developments in collection, analysis and synthesis of data, as well as issues surrounding specific applications of human genomic information for medicine and public health are all discussed. In addition, the book focuses on practical applications of human genome variation in clinical practice and disease prevention. Students, clinicians, public health professionals and policy makers will find the book a useful tool for understanding the rapidly evolving methods of the discovery and use of genetic information in medicine and public health in the 21st century.
Author: Deryck Beyleveld
Publisher: Anthemis
Published: 2008
Total Pages: 220
ISBN-13: 2874551228
DOWNLOAD EBOOKAuthor: Alexandra Plows
Publisher: Routledge
Published: 2010-07-20
Total Pages: 243
ISBN-13: 1134057865
DOWNLOAD EBOOKDebating Human Genetics examines contemporary public debate on emerging developments in medical genetics, including cloning, gene therapy, gene patenting, biobanks, genetic testing and screening, and pharmacogenomics.
Author: Margaret Sleeboom-Faulkner
Publisher: Routledge
Published: 2008-11-19
Total Pages: 222
ISBN-13: 1135784515
DOWNLOAD EBOOKThis volume investigates human genetic biobanking and its regulation in various countries in Asia, including Japan, the People’s Republic of China, the Republic of China, Hong Kong, India and Indonesia.
Author: Giovanni Pascuzzi
Publisher: Springer Science & Business Media
Published: 2013-01-30
Total Pages: 334
ISBN-13: 3642331165
DOWNLOAD EBOOKIn the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.
Author: National Research Council
Publisher: National Academies Press
Published: 1998-01-19
Total Pages: 101
ISBN-13: 0309184746
DOWNLOAD EBOOKThis book assesses the scientific value and merit of research on human genetic differencesâ€"including a collection of DNA samples that represents the whole of human genetic diversityâ€"and the ethical, organizational, and policy issues surrounding such research. Evaluating Human Genetic Diversity discusses the potential uses of such collection, such as providing insight into human evolution and origins and serving as a springboard for important medical research. It also addresses issues of confidentiality and individual privacy for participants in genetic diversity research studies.
