Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Working Daughter provides a roadmap for women trying to navigate caring for aging parents and their careers. Using the author’s own experiences as a prime example, it’s ideal for readers who want straight talk and real advice about the challenges and rewards of eldercare while managing a career and family.
2022 Revised Edition Who are the caregivers? We all are, for at the heart of being human is the capacity to care, to reach out to others and explore the relationships we build. The Soul of Caregiving is about us, and how we, as caregivers, serve, even sacrifice, for those in need. I invite you to explore with me how we can partake in a kind of sacred journey exploring our experiences as caregivers. Who will be your guide on this journey? Unlike other pilgrims who have a guide assigned to them, you will soon discover it is your own Soul guiding you. We may be professionally skilled to meet the needs of others, but we must also learn to stop and rest. It is not a waste of time, but rather, a necessity. We need time to ponder, reflect, and grow from our experiences. Not an easy endeavor amid a whirlwind of activity. We, as caregivers, experience vulnerability, helplessness, fears, and pain over the traumatic events we experience because we care. We care about those whom we are called to serve. Compassion fatigue arises because we care. Overview of the Chapters Chapter 1 begins by outlying the tension most caregivers experience: the tension their own needs and the needs of those they care for. I call this tension the Dance of Caregiving. Chapter 2 discusses the importance of discovering interior strengths and values where one discovers Soul. Chapter 3 emphasizes caregivers do not care in a vacuum, as there are broad cultural boundaries and expectations which affect them and shape their behaviors. Chapter 4 describes The Archetype of Caregiving, both its strengths and shadow sides. This archetype also relates to several other leadership archetypes, which are also discussed. Chapter 5 discusses hospitality. This chapter positions the caregiver as the host who experiences three different dimensions of hospitality: to host the stranger, to listen to the stories of the guest, and to reflect on their reactions and experiences. Chapter 6 address the frailty of humankind and the notion that we are wounded healers. Chapter 7 addresses the art of reflection as a fundamental skill for caregivers. Chapter 8 argues that the essential actions of a caregiver are spiritual. Chapter 9 explores how the ordinary becomes spiritual as inner strengths and values give birth to meaning, insight, and transformation. Chapter 10 explores compassion fatigue and its two sisters, secondary traumatic stress disorder and burnout. In this chapter, we learn how to recover from compassion fatigue and burnout by building compassion resilience. At the end of each chapter, the reader is invited to ponder and reflect. Your insights are the gold hidden beneath the sands of confusion. Mining these insights will lead to a greater understanding of your strengths and values. The questions at the end of each chapter help facilitate this process.
How will Alzheimer's disease affect your career? Alzheimer's-related caregiving duties present expected and unexpected costs for full-time employed caregivers, employers, and society. Research indicates that caregivers provide more than forty hours per week, caring for a relative with Alzheimer's disease. The dual responsibilities and pressures of caregiving while remaining active in the general workforce may cause stress and loss of productivity at work. As the Alzheimer's disease progresses in the patient, a caregiver is less likely to engage in more challenging workplace activities or accept additional roles of responsibility, promotions, or relocation opportunities. Just as the employed caregiver takes on a dual role when providing care for the Alzheimer's patient, Alzheimer's disease plays a dual role in depleting the life of both the patient and the caregiver. This book explores some of the challenges related to the dual roles of a working caregiver and the demands faced caring for a loved one with Alzheimer's disease.
IS YOUR WORKLOAD SLOWING YOU—AND YOUR CAREER—DOWN? Your inbox is overflowing. You’re paralyzed because you have too much to do but don’t know where to start. Your to-do list never seems to get any shorter. You leave work exhausted but have little to show for it. It’s time to learn how to get the right work done. In the HBR Guide to Getting the Right Work Done, you’ll discover how to focus your time and energy where they will yield the greatest reward. Not only will you end each day knowing you made progress—your improved productivity will also set you apart from the pack. Whether you’re a new professional or an experienced one, this guide will help you: Prioritize and stay focused Work less but accomplish more Stop bad habits and develop good ones Break overwhelming projects into manageable pieces Conquer e-mail overload Write to-do lists that really work
"The Caregiving Trap" combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. "The Caregiving Trap" includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy
The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
"Will 69 million baby boomers suddenly drop out of the workforce when they turn 65? It is difficult to imagine this generation, with its talent, education, and experience, idling away the last thirty years of life."—From the Foreword, by Robert N. Butler, M.D., The Mount Sinai Medical Center Old age has been historically thought of as a period of frailty and dependence, yet studies show that with the help of advances in health and medicine, current populations will live longer and remain healthier than previous generations. As average life expectancies rise, traditional concepts of retirement need to be reconsidered on all levels—from government policy to business practice to individual life planning. In this volume, leaders in the field of gerontology explore these changing conditions through the concept of "productive aging," which has been developed by leaders in the field to promote older adults' contributions to society in social and economic capacities. Productive Aging: Concepts and Challenges treats the implications of productive aging for the discipline of gerontology and for society in general. The first section defines the principles, historical perspectives, and conceptual frameworks for productive aging. The second section takes a disciplinary approach, treating the biomedical, psychological, sociological, and economic implications of a more capable older generation. The third section considers advances in theories of gerontology, and the fourth section suggests future directions in practice, theory, and research. Contributors: W. Andrew Achenbaum, University of Houston • Scott A. Bass, University of Maryland-Baltimore • Vern L. Bengtson, University of Southern California • James E. Birren, UCLA • Francis G. Caro, University of Massachusetts Boston • Carroll L. Estes, University of California-San Francisco • Marc Freedman, Civic Ventures (co-founder of Experience Corps) • James Hinterlong, Washington University • James S. Jackson, University of Michigan • Jane L. Mahakian, Pacific Senior Services • Harry R. Moody, Robert Wood Johnson Foundation • Nancy Morrow-Howell, Washington University • Philip Rozario, Washington University • James H. Schulz, Brandeis University • Michael Sherraden, Washington University • Alvar Svanborg, University of Illinois-Chicago and Goteburg University, Sweden • Brent A. Taylor, San Diego State University
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
An updated edition of a standard in its field that remains relevant more than thirty years after its original publication. Over thirty years ago, sociologist and University of California, Berkeley professor Arlie Hochschild set off a tidal wave of conversation and controversy with her bestselling book, The Second Shift. Hochschild's examination of life in dual-career housholds finds that, factoring in paid work, child care, and housework, working mothers put in one month of labor more than their spouses do every year. Updated for a workforce that is now half female, this edition cites a range of updated studies and statistics, with an afterword from Hochschild that addresses how far working mothers have come since the book's first publication, and how much farther we all still must go.
