Living Well with Chronic Illness

Living Well with Chronic Illness

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2011-06-30

Total Pages: 350

ISBN-13: 0309221277

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In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.


Finding a New Normal

Finding a New Normal

Author: Suzan Linn Jackson

Publisher:

Published: 2019-12-14

Total Pages: 182

ISBN-13: 9781734299014

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This guide provides inspiration, advice on emotional coping, and support on living your best life with chronic illness from someone who's been there. The emphasis in this book is on LIVING your life, not just enduring it.


Chronically Fabulous: Finding Wholeness and Hope Living with Chronic Illness

Chronically Fabulous: Finding Wholeness and Hope Living with Chronic Illness

Author: Marisa Zeppieri

Publisher: Broadleaf Books

Published: 2021-05-04

Total Pages: 209

ISBN-13: 1506464114

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When Marisa Zeppieri was 22-years-old she found herself face-to-face with a raven-haired elderly woman who had emerged from a crowd and gently taken her hands: God will use these hands to change people's lives.Years later Marisa's once-spirited demeanor was shrouded in anger and bitterness. Triggered first by a near-fatal car accident that sent her 100-lb body flying from a crosswalk and later by a painful Lupus diagnosis, she became stuck in a season of brokenness.But in the seasons that followed, an insatiable emotional, spiritual, and physical hunger took over: She learned how to nourish her broken body with the help of food, herbs, and a gastronomically-gifted Italian grandmother, while also nourishing her broken heart and crushed spirit through a deeper relationship with God.With Chronically Fabulous, Marisa fulfills the old woman's prophecy by offering pure nourishment to those of us living with chronic illness, helping us create wholeness and well-being through a love of food. Here, the founder of LupusChick, a nonprofit supporting those with autoimmune diseases, offers guiding principles, personal stories, and recipes that support whole-life thriving. With the depth, smarts, and spiritual advice beloved by her dedicated followers, Marisa shows us how faith, passion, and persistence can radically change our lives.


Chronically Happy

Chronically Happy

Author: Lori Hartwell

Publisher:

Published: 2002

Total Pages: 0

ISBN-13: 9780972278300

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When Doctors Put Two-Year-Old Lori Hartwell on dialysis after her kidneys mysteriously stopped working, they didn't expect her to live. That was the first time she beat seemingly insurmountable odds to survive, and she continues to one-up the statistics today. In Chronically Happy, Hartwell shares her remarkable story and introduces the principles she's relied on to thrive while living with a chronic disease. Hartwell's wisdom covers a range of subjects, from dating and working to building self-esteem and deepening relationships. Through anecdotes and workbook-style exercises, Chronically Happy helps people with illness. If you have a chronic illness, Chronically Happy is the tool you need to shape the life you've always envisioned but never thought possible. Book jacket.


The Chronic Illness Workbook

The Chronic Illness Workbook

Author: Patricia Fennell

Publisher: Albany Health Management Publishing

Published: 2012

Total Pages: 0

ISBN-13: 9780979640711

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THE CHRONIC ILLNESS WORKBOOK brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic apsects as well.


How to Live Well with Chronic Pain and Illness

How to Live Well with Chronic Pain and Illness

Author: Toni Bernhard

Publisher: Simon and Schuster

Published: 2015-10-06

Total Pages: 355

ISBN-13: 1614292639

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Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.


Surviving and Thriving with an Invisible Chronic Illness

Surviving and Thriving with an Invisible Chronic Illness

Author: Ilana Jacqueline

Publisher: New Harbinger Publications

Published: 2018-03-01

Total Pages: 181

ISBN-13: 1626256012

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“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.


A Better Life for the Chronically Ill

A Better Life for the Chronically Ill

Author: Rose Mary Hughes

Publisher: iUniverse

Published: 2001-05

Total Pages: 170

ISBN-13: 0595179797

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While learning about ways to bring some fun into the lives of those who are long-term confined to home or hospital, the reader discovers that the book is really about hope, dignity, and love. The underlying theme throughout is that while providing support for your loved one whose health is inescapably diminishing, you must not lose sight of the fact that the patient desperately needs to feel loved, to be considered a whole individual who happens to be sick, and to maintain a sense of still being in control. Methods are discussed for steps that need to be taken as the end of life nears for some. Maintenance of the caregiver’s health is discussed as well as methods to avoid burnout. The Appendix contains a long list of potential websites for both the caregiver and receiver. It’s not a long book…along the way you will find it’s a story of the relationship of a sick young woman with those who loved her and wanted to make her shortened life one that was full, filled with love, hope, and meaning. It won’t take you long to read the book, but you will feel enriched at its conclusion.