Writing the Self in Illness
Writing the Self in Illness

Author: Amala Poli

Publisher: Manipal Universal Press

Published: 2019-09-01

Total Pages: 148

ISBN-13: 9388337050

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Writing the Self in Illness: Reading the Experiential Through the Medical Memoir is MUP’s refreshing venture into the developing fields of Medical and Health Humanities with an aim to consider the necessity of the narrative knowledge as complementary to the contemporary notions of well-being, illness, and healthcare. Is individual happiness contingent on health and well-being? How does one find happiness in the throes of illness? In the present-day scenario, wherein medical practice is largely dominated by evidence-based understanding, diagnostic language, and problem-solving methods, the discipline of Medical Humanities emerges with a reciprocal dialogue between Humanities, Social Sciences, Health, and Medicine. The study of varied experiential narratives – literary works and unmediated accounts of patients and healthcare professionals, is foregrounded in Medical Humanities to amplify knowledge and understanding about the complexity of encounters with illness and their transformational quality in a nuanced manner. Both thought-provoking and informative, this publication brings about the anecdotal form of personal narratives in the light of medical discourses along with the specific cultural context of the narrative. The present publication seeks to be an important reading for students and academics in the field of medical humanities, health professionals or medical practitioners, as well as scholars aspiring to venture into this flourishing field.

The Invisible Kingdom
The Invisible Kingdom

Author: Meghan O'Rourke

Publisher: Penguin

Published: 2022-03-01

Total Pages: 337

ISBN-13: 1594633797

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A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.

The Wounded Storyteller
The Wounded Storyteller

Author: Arthur W. Frank

Publisher: University of Chicago Press

Published: 2013-10-18

Total Pages: 280

ISBN-13: 022606736X

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Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today

Pain Woman Takes Your Keys, and Other Essays from a Nervous System
Pain Woman Takes Your Keys, and Other Essays from a Nervous System

Author: Sonya Huber

Publisher: U of Nebraska Press

Published: 2017

Total Pages: 206

ISBN-13: 1496200837

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Rate your pain on a scale of one to ten. What about on a scale of spicy to citrus? Is it more like a lava lamp or a mosaic? Pain, though a universal element of human experience, is dimly understood and sometimes barely managed. Pain Woman Takes Your Keys, and Other Essays from a Nervous System is a collection of literary and experimental essays about living with chronic pain. Sonya Huber moves away from a linear narrative to step through the doorway into pain itself, into that strange, unbounded reality. Although the essays are personal in nature, this collection is not a record of the author's specific condition but an exploration that transcends pain's airless and constraining world and focuses on its edges from wild and widely ranging angles. Huber addresses the nature and experience of invisible disability, including the challenges of gender bias in our health care system, the search for effective treatment options, and the difficulty of articulating chronic pain. She makes pain a lens of inquiry and lyricism, finds its humor and complexity, describes its irascible character, and explores its temperature, taste, and even its beauty.

Good Days, Bad Days
Good Days, Bad Days

Author: Kathy Charmaz

Publisher: Rutgers University Press

Published: 1991

Total Pages: 332

ISBN-13: 9780813519678

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Describing how chronic illness affects one's self-image, friends, and family, this book shares the experiences of people with serious chronic illnesses, and shows how they find the strength to carry on.

The Wounded Self
The Wounded Self

Author: Nina Schmidt

Publisher: Boydell & Brewer

Published: 2018

Total Pages: 248

ISBN-13: 1640140166

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Takes the recent wave of German autobiographical writing on illness and disability seriously as literature, demonstrating the value of a literary disability studies approach.

Through the Shadowlands
Through the Shadowlands

Author: Julie Rehmeyer

Publisher: Rodale Books

Published: 2017-05-23

Total Pages: 338

ISBN-13: 1623367662

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Julie Rehmeyer felt like she was going to the desert to die. Julie fully expected to be breathing at the end of the trip—but driving into Death Valley felt like giving up, surrendering. She’d spent years battling a mysterious illness so extreme that she often couldn’t turn over in her bed. The top specialists in the world were powerless to help, and research on her disease, chronic fatigue syndrome, was at a near standstill. Having exhausted the plausible ideas, Julie turned to an implausible one. Going against both her instincts and her training as a science journalist and mathematician, she followed the advice of strangers she’d met on the Internet. Their theory—that mold in her home and possessions was making her sick—struck her as wacky pseudoscience. But they had recovered from chronic fatigue syndrome as severe as hers. To test the theory that toxic mold was making her sick, Julie drove into the desert alone, leaving behind everything she owned. She wasn’t even certain she was well enough to take care of herself once she was there. She felt stripped not only of the life she’d known, but any future she could imagine. With only her scientific savvy, investigative journalism skills, and dog, Frances, to rely on, Julie carved out her own path to wellness—and uncovered how shocking scientific neglect and misconduct had forced her and millions of others to go it alone. In stunning prose, she describes how her illness transformed her understanding of science, medicine, and spirituality. Through the Shadowlands brings scientific authority to a misunderstood disease and spins an incredible and compelling story of tenacity, resourcefulness, acceptance, and love.

Writing the Self in Bereavement
Writing the Self in Bereavement

Author: Reinekke Lengelle

Publisher: Routledge

Published: 2021-01-07

Total Pages: 260

ISBN-13: 1000337049

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Winner, ICQI 2022 Outstanding Qualitative Book Award In Writing the Self in Bereavement: A Story of Love, Spousal Loss, and Resilience, Reinekke Lengelle uses her abilities as a researcher, poet, and professor of therapeutic writing to tell a heartfelt and fearless story about her grief after the death of her spouse and the year and a half following his diagnosis, illness, and passing. This book powerfully demonstrates that writing can be a companion in bereavement. It uses and explains the latest research on coming to terms with spousal loss without being prescriptive. Integrated with this contemporary research are stories, poetry, and reflections on writing as a therapeutic process. The author unflinchingly explores a number of themes that are underrepresented in existing resources: how one deals with anger associated with loss, what a healthy response might be to unfinished business with the deceased, continuing conversations with the beloved (even for agnostics and atheists), ongoing sexual desire, and secondary losses. As a rare book where an author successfully combines a personal story, heart-rending poetry, up-to-date research on grief, and an evocative exploration of taboo topics in the context of widowhood, Writing the Self in Bereavement is uniquely valuable for those grieving a spouse or other loved one, those supporting others in bereavement, and those interested in the healing power of poetry and life writing. Researchers on death and dying, grief counsellors, and autoethnographers will also benefit from reading this resonant resource on love and loss.

Notes to Self
Notes to Self

Author: Emilie Pine

Publisher: Dial Press

Published: 2019-06-11

Total Pages: 194

ISBN-13: 1984855468

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The international sensation that illuminates the experiences women are supposed to hide—from addiction, anger, sexual assault, and infertility to joy, sensuality, and love. WINNER OF THE AN POST IRISH BOOK OF THE YEAR • “Emilie Pine’s voice is razor-sharp and raw; her story is utterly original yet as familiar as my own breath.”—Glennon Doyle, #1 New York Times bestselling author of Love Warrior In this dazzling debut, Emilie Pine speaks to the events that have marked her life—those emotional disruptions for which our society has no adequate language, at once bittersweet, clandestine, and ordinary. She writes with radical honesty on the unspeakable grief of infertility, on caring for an alcoholic parent, on taboos around female bodies and female pain, on sexual violence and violence against the self. This is the story of one woman, and of all women. Devastating, poignant, and wise—and joyful against the odds—Notes to Self is an unforgettable exploration of what it feels like to be alive, and a daring act of rebellion against a society that is more comfortable with women’s silence. Praise for Notes to Self “Notes to Self begins as a deceptively simple catalogue of the injustices of modern female life and slyly emerges as a screaming treatise on just what it means to make your own rules, turning the hand you’ve been dealt into the coolest game in town. Emilie Pine is like your best friend—if your best friend was so sharp she drew blood.”—Lena Dunham, #1 New York Times bestselling author of Not That Kind of Girl “To read these essays is to understand the human condition more clearly, to reassess one’s place in the world, and to reclaim one’s own experiences as real and valid.”—Sunday Independent “Harrowing, clear-eyed . . . Everyone should consider [this] priority reading.”—Sunday Business Post “Incredible and insightful—an absolute must-read.”—The Skinny “Agonizing, uncompromising, starkly brilliant. . . . [A] short, gleamingly instructive book, both memoir and psychological exploration—a platform for that insistent internal voice that almost any woman . . . wishes they had ignored.”—Financial Times “Do not read this book in public. It will make you cry.”—Anne Enright

The Story You Need to Tell
The Story You Need to Tell

Author: Sandra Marinella

Publisher: New World Library

Published: 2017-04-14

Total Pages: 330

ISBN-13: 1608684849

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A practical and inspiring guide to transformational personal storytelling, The Story You Need to Tell is the product of Sandra Marinella’s pioneering work with veterans and cancer patients, her years of teaching writing, and her research into its profound healing properties. Riveting true stories illustrate Marinella’s methods for understanding, telling, and editing personal stories in ways that foster resilience and renewal. She also shares her own experience of using journaling and expressive writing to navigate challenges including breast cancer and postpartum depression. Each of the techniques, prompts, and exercises she presents helps us “to unravel the knot inside and to make sense of loss.”