Constant Care

Constant Care

Author: Jamie Williams

Publisher:

Published: 2021-06-12

Total Pages:

ISBN-13: 9781006844270

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Constant Care is a decidedly non-linear visual journal of finding the extraordinary in the ruins of the ordinary.


The Body Hunters

The Body Hunters

Author: Sonia Shah

Publisher: New Press, The

Published: 2012-03-13

Total Pages: 257

ISBN-13: 1595588310

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Hailed by John le Carré as “an act of courage on the part of its author” and singled out for praise by the leading medical journals in the United States and the United Kingdom, The Body Hunters uncovers the real-life story behind le Carré's acclaimed novel The Constant Gardener and the feature film based on it. "A trenchant exposé . . . meticulously researched and packed with documentary evidence" (Publishers Weekly), Sonia Shah's riveting journalistic account shines a much-needed spotlight on a disturbing new global trend. Drawing on years of original research and reporting in Africa and Asia, Shah examines how the multinational pharmaceutical industry, in its quest to develop lucrative drugs, has begun exporting its clinical research trials to the developing world, where ethical oversight is minimal and desperate patients abound. As the New England Journal of Medicine notes, “it is critical that those engaged in drug development, clinical research and its oversight, research ethics, and policy know about these stories,” which tell of an impossible choice being faced by many of the world's poorest patients—be experimented upon or die for lack of medicine.


Already Toast

Already Toast

Author: Kate Washington

Publisher: Beacon Press

Published: 2021-03-16

Total Pages: 224

ISBN-13: 0807011754

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The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.


Patient Safety and Quality

Patient Safety and Quality

Author: Ronda Hughes

Publisher: Department of Health and Human Services

Published: 2008

Total Pages: 592

ISBN-13:

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"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/


Helpmates

Helpmates

Author: Harry A. Cole

Publisher: Westminster John Knox Press

Published: 1991-01-01

Total Pages: 164

ISBN-13: 9780664251413

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Offers advice, guidance, and support for caregivers, discussing such things as feelings, self-help and self-care, family and community support, professional help, and coping


Domestic Georgic

Domestic Georgic

Author: Katie Kadue

Publisher: University of Chicago Press

Published: 2021-09-19

Total Pages: 234

ISBN-13: 022679752X

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Inspired by Virgil’s Georgics, this study conceptualizes Renaissance poetry as a domestic labor. When is literary production more menial than inspired, more like housework than heroics of the mind? In this revisionist study, Katie Kadue shows that some of the authors we credit with groundbreaking literary feats—including Michel de Montaigne and John Milton—conceived of their writing in surprisingly modest and domestic terms. In contrast to the monumental ambitions associated with the literature of the age, and picking up an undercurrent of Virgil’s Georgics, poetic labor of the Renaissance emerges here as often aligned with so-called women’s work. Kadue reveals how male authors’ engagements with a feminized georgic mode became central to their conceptions of what literature is and could be. This other georgic strain in literature shared the same primary concern as housekeeping: the necessity of constant, almost invisible labor to keep the things of the world intact. Domestic Georgic brings into focus a conception of literary—as well as scholarly and critical—labor not as a striving for originality and fame but as a form of maintenance work that aims at preserving individual and collective life.