Families Caring for an Aging America

Families Caring for an Aging America

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-08

Total Pages: 367

ISBN-13: 0309448093

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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.


Holding Fast

Holding Fast

Author: William A. Kahn

Publisher: Psychology Press

Published: 2005

Total Pages: 264

ISBN-13: 9781583919361

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In Holding Fast the stresses faced by caregiving organizations are identified and appropriate strategies for tackling these to create a resilient, effective organization are discussed.


Patient Safety and Quality

Patient Safety and Quality

Author: Ronda Hughes

Publisher: Department of Health and Human Services

Published: 2008

Total Pages: 592

ISBN-13:

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"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/


The Struggles of Caregiving

The Struggles of Caregiving

Author: Nell E. Noonan

Publisher: Upper Room Books

Published: 2012-02-01

Total Pages: 73

ISBN-13: 083581128X

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Caregiving is a demanding task that takes a huge toll on the person providing care—mentally, emotionally, physically, and spiritually. Nell Noonan, speaking from her own experience as caregiver for her husband, describes caregiving as a "cataclysmic spiritual experience." She says it's critical for caregivers to practice self-care so they can cope with their situation. Paying attention to one's spiritual health is especially important. The 28 Days format (4 weeks of brief daily readings that include scripture and prayer) provides an accessible way for caregivers, typically stressed and pressed for time, to devote a few minutes to their spiritual health. Noonan's honesty and faith are hallmarks of her writing. Speaking from her own experience and the experiences of others, she does not avoid difficult situations and the feelings that accompany them. Noonan witnesses to the strength she finds as she continually turns to God, even in her darkest moments. Caregivers will appreciate these devotions that are both forthright and uplifting. This book makes a thoughtful gift for any caregiver or for staff members of a facility for older adults.


Struggles In (Elderly) Care

Struggles In (Elderly) Care

Author: Hanne Marlene Dahl

Publisher: Springer

Published: 2017-09-18

Total Pages: 181

ISBN-13: 1137577614

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This book provides a critical engagement with the intensified struggles to be found within elderly care provision. Various social and political processes, including the forces of globalisation and the de-gendering of care, have changed how we might understand this national and global political concern. Emerging discourses such as neoliberalism have also reframed elderly care to increase existing tensions at the individual, national, and transnational level. Dahl argues that in order to grasp these new realities of care we need a new analytical framework that redirects us to new sites of contestation. Dahl approaches these issues from a post-structuralist and radical feminist position, while drawing from feminist sociology, feminist political science, nursing philosophy and feminist history. In particular, Struggles In (Elderly) Care highlights how the predominantly feminist theorization of care has been dominated by a sociological bias that could be improved using insights from political science concerning concepts of power and struggle, and the importance of the state and governance. This book will be of interest to researchers in sociology, gerontology, nursing, and feminist studies.


The Caregiving Trap

The Caregiving Trap

Author: Pamela D. Wilson

Publisher:

Published: 2015-10-06

Total Pages: 0

ISBN-13: 9781630475352

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"The Caregiving Trap" combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. "The Caregiving Trap" includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy


Already Toast

Already Toast

Author: Kate Washington

Publisher: Beacon Press

Published: 2021-03-16

Total Pages: 224

ISBN-13: 0807011754

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The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.


When the Time Comes

When the Time Comes

Author: Paula Span

Publisher: Grand Central Life & Style

Published: 2009-06-10

Total Pages: 227

ISBN-13: 0446552224

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What will you do when you get the call that a loved one has had a heart attack or a stroke? Or when you realize that a family member is too frail to live alone, but too healthy for a nursing home? Journalist Paula Span shares the resonant narratives of several families who faced these questions. Each family contemplates the alternatives in elder care (from assisted living to multigenerational living to home care, nursing care, and at the end, hospice care) and chooses the right path for its needs. Span writes about the families' emotional challenges, their practical discoveries, and the good news that some of them find a situation that has worked for them and their loved ones. And many find joy in the duty of caring for an older loved one. There are 45 million Americans caring for family members currently, and as the 77 million boomers continue to age, this number will only go up. Paula Span's stories are revealing and informative. They give a sense of all the emotional and practical factors that go into the major decisions about caregiving, so that readers will be better able to figure out what to do when the time comes for them and their loved ones.


The Emotional Survival Guide for Caregivers

The Emotional Survival Guide for Caregivers

Author: Barry J. Jacobs

Publisher: Guilford Press

Published: 2006-03-17

Total Pages: 273

ISBN-13: 1606237934

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Caring for a parent whose health is in decline turns the world upside down. The emotional fallout can be devastating, but it doesn't have to be that way. Empathic guidance from an expert who's been there can help. Through an account of two sisters and their ailing mother--interwoven with no-nonsense advice--The Emotional Survival Guide for Caregivers helps family members navigate tough decisions and make the most of their time together as they care for an aging parent. The author urges readers to be honest about the level of commitment they're able to make and emphasizes the need for clear communication within the family. While acknowledging their guilt, stress, and fatigue, he helps caregivers reaffirm emotional connections worn thin by the routine of daily care. This compassionate book will help families everywhere avoid burnout and preserve bonds during one of life's most difficult passages.


Profiles in Caregiving

Profiles in Caregiving

Author: Carol S. Aneshensel

Publisher: Elsevier

Published: 1995-09-15

Total Pages: 406

ISBN-13: 0080539831

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Given medical advances and greater understanding of healthful living habits, people are living longer lives. Proportionally speaking, a greater percentage of the population is elderly. Despite medical advances, there is still no cure for dementia, and as elderly individuals succumb to Alzheimer's Disease or related dementia, more and more people are having to care their elderly parents and /or siblings. Profiles in Caregiving is practical source of information for anyone who teaches caregiving, acts as a caregiver, or studies caregiving. This book discusses recent research on stress factors associated with caregiving, and what factors impact on successful versus non-successful adaptation to the care-giving role. This is an expanding field in gerontology, and is also of interest to personality and social psychologists studying stress and interpersonal relations. Although there are many books on the cause and treatment of dementia, there has been a book that provides a research investigation into the factors associated with effective caregiving to dementia patients. - Conceptualizes caregiving as a multistage career whose impact on the caregiver continues to be felt after in-home care has ceased - Based upon a longitudinal survey of a demographically diverse sample of principal caregivers over a three-year period - Identifies caregivers who are most at-risk for adverse adaptation to the role - Describes preventative and clinical intervention strategies - Identifies post-care risk and issues - Identifies antecedents to successful adaptation - State of the art analytic techniques - Graphic presentation of empirical findings - Renowned multidisciplinary research team