Privacy and Disclosure of Hiv in interpersonal Relationships

Privacy and Disclosure of Hiv in interpersonal Relationships

Author: Kathryn Greene

Publisher: Routledge

Published: 2003-06-20

Total Pages: 481

ISBN-13: 1135654514

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As the HIV epidemic enters its third decade, it remains one of the most pressing health issues of our time. Many aspects of the disease remain under-researched and inadequate attention has been given to the implications for the relationships and daily lives of those affected by HIV. Disclosing an HIV diagnosis remains a decision process fraught with difficulty and despite encouraging medical advances, an HIV diagnosis creates significant anxiety and distress about one's health, self-identity, and close relationships. This book provides an overarching view of existing research on privacy and disclosure while bringing together two significant areas: self-disclosure as a communication process and the social/relational consequences of HIV/AIDS. The unifying framework is communication privacy management and the focus of this volume is on private voluntary relational disclosure as opposed to forced or public disclosure. Utilizing numerous interviews with HIV patients and their families, the authors examine disclosure in a variety of social contexts, including relationships with intimate partners, families, friends, health workers, and coworkers. Of note are the examinations of predictors of willingness to disclose HIV infection, the message features of disclosure, and the consequences of both disclosure and non-disclosure. This volume, with its personal exercises and sources of additional information, offers an invaluable resource for individuals living with HIV and their significant others, as well as for professionals in the fields of health communication, social and health psychology, family therapy, clinical and counseling psychology, relationship research, infectious disease, and social service.


The Secret Life of Families

The Secret Life of Families

Author: Evan Imber-Black

Publisher: Bantam

Published: 1998

Total Pages: 344

ISBN-13:

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A family therapist explains the necessity of privacy and offers guidance to parents about what to tell and what not to tell young children.


Strengthened Silence

Strengthened Silence

Author: Adele J Stewart

Publisher: Independently Published

Published: 2024-02-27

Total Pages: 0

ISBN-13:

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In "Strengthened Silence: A Journey Of Resilience And Advocacy Inspired By Hydeia Broadbent," embark on a transformative journey alongside Maya, a young girl whose world is forever changed when she discovers a long-held secret about her health. Born with HIV/AIDS, Maya's life is veiled in secrecy and shame, but with the guidance of a trusted mentor and the inspiration of real-life advocate Hydeia Broadbent, Maya finds the courage to reclaim her voice and challenge the stigma that surrounds her. As Maya navigates the complexities of her diagnosis and the societal barriers that seek to silence her, she discovers the transformative power of resilience, community, and the unwavering belief in the possibility of change. Through her advocacy efforts and unwavering commitment to the cause, Maya sparks a movement that reverberates far beyond the confines of her community, igniting hope in the hearts of those who have long been silenced by shame and fear. In this book, you'll get: Inspiration: Gain insight into the real-life experiences of individuals living with HIV/AIDS and the transformative power of advocacy and resilience. Empowerment: Discover how Maya's journey empowers readers to confront their own challenges and find their voices in the face of adversity. Education: Learn about the realities of living with HIV/AIDS and the importance of compassion, understanding, and empathy in combating stigma and discrimination. Community: Find solace in the knowledge that you are not alone in your struggles, and discover the strength that comes from uniting with others in solidarity and support. Hope: Experience the uplifting power of hope as Maya's journey demonstrates the possibility of creating positive change even in the darkest of times. Join Maya on her journey of resilience and advocacy. Let "Strengthened Silence" inspire you to find your voice, challenge the status quo, and become an agent of change in your own life and community. Together, we can break the silence, shatter stigma, and build a world where everyone is free to live their truth without fear or shame. Get your copy today and join the movement for a brighter tomorrow!


Understanding HIV/AIDS Stigma

Understanding HIV/AIDS Stigma

Author: Harriet Deacon

Publisher: HSRC Press

Published: 2005

Total Pages: 122

ISBN-13: 9780796921048

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At a time when alarming numbers of people with HIV/AIDS seek help under cover of darkness, deeply ashamed of their plight, it is crucial to find ways to better comprehend and address the specific nature of stigma around HIV/AIDS in southern Africa.


Anonymity

Anonymity

Author: Susan Bergman

Publisher: Grand Central Pub

Published: 1994

Total Pages: 198

ISBN-13: 9780446671194

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Don Heche died of AIDS in 1983 at the age of forty-five, one of the earliest casualties of the disease. But he was not the only victim of his illness: he left behind a wife and four children. How her family dealt with their predicament - not only the loss of husband and father but the overwhelming knowledge of his secret homosexual life - is the subject of Susan Bergman's powerful memoir. Bergman's narration weaves back and forth through time as she juxtaposes childhood recollections with meditations on the breaking up of the Heche family and the lasting effects on those who survived. She reexamines the family's images of themselves in the light of their new awareness, looking for the telltale fault lines in what had seemed an all-American story. She seeks out her father's friends and companions in his other life, including those who cared for him in his last days. In the process, she comes to a new understanding of her father, her family, and herself, which has profound influence on the way she chooses to live her own life. Susan Bergman writes with frankness, conviction, and impressive narrative art. Anonymity is a heartrending, memorable revelation of the hard truths and healing lessons of one family's extraordinary experience.


Children and Young People Living with HIV/AIDS

Children and Young People Living with HIV/AIDS

Author: Pranee Liamputtong

Publisher: Springer

Published: 2016-06-14

Total Pages: 512

ISBN-13: 3319299360

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This book focuses on the issues encountered by children and young people who are living with HIV/AIDS. It examines their lived experiences associated with HIV/AIDS, and studies groups of children and youngsters from around the globe. Connecting empirical information with real-life situations, the book brings together results from empirical research that relates to these children and young people. Its chapters can be used as evidence for health care providers to implement socially and culturally appropriate services to assist individuals and groups of children and young people who are living with HIV/AIDS in many societies. Many of these young people are from the most marginalized and vulnerable groups; and many have been orphaned by the death of their HIV-positive parents. Marginalized young people such as refugees, migrants and street children are most at risk due to the use of illicit drugs, their exposure to unprotected sex (in exchange for food, money and protection), and stigma associated with their marginalized lives. The impact that HIV/AIDS has on the opportunities for these young people to be able to lead healthy adult lives is considerable. This book gives a voice to these children and young people and advances our understanding of their lived experiences and needs.


Living with HIV and Dying with AIDS

Living with HIV and Dying with AIDS

Author: Em Prof Len Doyal

Publisher: Ashgate Publishing, Ltd.

Published: 2013-06-28

Total Pages: 265

ISBN-13: 1472400143

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There is now a vast literature on HIV and AIDS but much of it is based on traditional biomedical or epidemiological approaches. Hence it tells us very little about the experiences of the millions of people whose living and dying constitute the reality of this devastating pandemic. Doyal brings together findings from a wide range of empirical studies spanning the social sciences to explore experiences of HIV positive people across the world. This will illustrate how the disease is physically manifested and psychologically internalised by individuals in diverse ways depending on the biological, social, cultural and economic circumstances in which they find themselves. A proper understanding of these commonalities and differences will be essential if future strategies are to be effective in mitigating the effects of HIV and AIDS. Doyal shows that such initiatives will also require a better appreciation of the needs and rights of those affected within the wider context of global inequalities and injustices. Finally, she outlines approaches to address these challenges. This book will appeal to everyone involved in struggles to improve the well-being of those with HIV and AIDS. While academically rigorous, it is written in an accessible manner that transcends specific disciplines and, through its extensive bibliography, provides diverse source material for future teaching, learning and research.


A Narrative Study of how Shame Features in the Lives of Women Living with HIV

A Narrative Study of how Shame Features in the Lives of Women Living with HIV

Author: Ellie Marley

Publisher:

Published: 2022

Total Pages: 0

ISBN-13:

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Once classed as a devastating virus that resulted in a guaranteed premature death, HIV can be treated successfully with lifelong medication and importantly its transmissibility is eliminated for individuals on effective medication. However, the psychosocial burden of HIV remains for many and despite this advancement in biomedical treatment, HIV remains a highly stigmatised virus and condition. This study explores how shame features in the experiences of women living with HIV in Ireland. There is an absence of women's narratives in the overall discourse on HIV in Ireland, therefore little is known about their lives. Research on shame tells us that prolonged unacknowledged shame can impact on mental well-being if unaddressed. The study's sample comprised twelve women living with HIV who were based in Ireland. Their narratives based on semi-structured interviews have been analysed using Clandinin and Connelly's (2000) three-dimensional narrative inquiry tool, which explores from the interactional, chronological and situational elements of a story. A cross-case analysis was adopted to explore dominant themes across the twelve narratives. Findings from this study portray how shame stemmed from an absence of a woman centred HIV narrative and the ongoing presence of stigmatising HIV discourse. Shame featured as three dimensions of the exposed self: anticipated exposure, exposure avoidance and felt exposure. Finally, many of the participants managed to grow through their HIV-related shame and move past it by discovering a shared experience with other women, to reduce emotional isolation. This study concludes that HIV-related shame can have negative implications for women's health and general well-being, thus compromising women's ability to live well with HIV. HIV-related shame must be addressed with the appropriate intervention. The study contributes to the development of a women-centred HIV discourse. This can help increase visibility of WLHIV and enable potential mitigation of the onset of HIV-related shame, which is crucial in this era of HIV normalisation.