The Eds and Hypermobility Syndrome Diet
The Eds and Hypermobility Syndrome Diet

Author: Lynne D M Noble

Publisher: Independently Published

Published: 2019-02

Total Pages: 62

ISBN-13: 9781795644198

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EDS and Hypermobility Syndrome are diseases of connective tissue. They impact the quality of life, relationships and earning ability, among many others as well as carrying with them severe, and often intractable, pain. Given that connective tissue is distributed throughout the body, poor quality connective tissue has the ability to affect, tendon, ligaments, bones, skin and gut. Good quality connective tissue requires the necessary collagen forming building blocks to be in place before it can be synthesised. Most of this - if the necessary materials are present - will take place in the body but sometimes defective genes and defective diets (which could ameliorate the effects of rogue genes) prevent this from happening.The author argues that the massive changes in our diets which have occurred since the post war years have produced an increase in certain diseases which are the result of poor nutritional status. Our current eating choices have largely done away with three of the four essential building blocks necessary to build strong connective tissue. The author explains how to eat to introduce these substances back into the diet which will not only help you to build healthy tissue, but will also aid sleep as well as reduce inflammation and build lean muscle mass.This is a sequel to The Journey: living with EDS and chronic pain

Ehlers-Danlos Syndrome: A Multidisciplinary Approach
Ehlers-Danlos Syndrome: A Multidisciplinary Approach

Author: J.W.G. Jacobs

Publisher: IOS Press

Published: 2018-08-14

Total Pages: 370

ISBN-13: 1614998787

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Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.

A Guide to Living with Hypermobility Syndrome
A Guide to Living with Hypermobility Syndrome

Author: Isobel Knight

Publisher: Singing Dragon

Published: 2011

Total Pages: 242

ISBN-13: 1848190689

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People with Hypermobility Syndrome (HMS), including Ehlers-Danlos type Hypermobility Syndrome, have a larger range of joint movement than is typical, which can cause pain and fatigue despite an outward appearance of good health. This book is the complete guide to living with and managing HMS, and ultimately enjoying a fulfilling life. The book covers everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis and managing its negative effects. The author, who has HMS herself, looks at how the condition affects children and adolescents, before moving on to explore pain management (including the use of physiotherapy, pilates and a selected range of complementary health therapies), pregnancy, physical and psychological aspects of the condition, and how it widely affects dancers and other performance artists. Wider conditions that encompass Hypermobility Syndrome are also touched upon, including Fibromyalgia and IBS. This book will be a must for anybody who suffers, or suspects they might be suffering from, Hypermobility Syndrome. It will also be of interest to their families and friends, and professionals working with the condition.

Disjointed
Disjointed

Author: Diana Jovin

Publisher:

Published: 2020-03-31

Total Pages:

ISBN-13: 9781734794908

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Disjointed is for patients with hEDS/HSD and the physicians who treat them. hEDS/HSD is an underrecognized, complex, multisystemic disorder, with the silos of healthcare's specialties often working against effective and efficient treatment. With 21 specialist & 6 resource chapters, Disjointed brings together physician, patient, and parent perspectives to support the goal of earlier and more complete intervention.

The EDS Recipe Book
The EDS Recipe Book

Author: Lynne D M Noble

Publisher: Independently Published

Published: 2019-05-04

Total Pages: 64

ISBN-13: 9781096869344

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Our current eating habits have largely excluded an important nutrient that is essential for the synthesis of good connective tissue. Without it, we cannot form proper bone, skin, tendons, ligaments and cartilage; in fact, most of what gives us structure and allows us to move without pain and dislocation.This remarkable amino acid also helps to improve the immune system, restores sleep, reduces seizure activity and anxiety as well as helping to alleviate depressive episodes. Once incorporated into diets on a daily basis, this forgotten nutrient is more or less eliminated from our diets and to our detriment.It does not take long to learn how to incorporate this nutrient into our diets so that we have the correct building blocks available to build up healthy connective tissue.This book is a collection of easy recipes showing you how to adapt favourite recipes so that they provide the best nutrients required to form healthy connective tissue.

Ferri's Clinical Advisor 2021
Ferri's Clinical Advisor 2021

Author: Fred F. Ferri

Publisher: Elsevier Health Sciences

Published: 2020-06-10

Total Pages: 4158

ISBN-13: 0323713343

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Find fast answers to inform your daily diagnosis and treatment decisions! Ferri’s Clinical Advisor 2021 uses the popular "5 books in 1" format to deliver vast amounts of information in a clinically relevant, user-friendly manner. This bestselling reference has been significantly updated to provide you with easy access to answers on 1,000 common medical conditions, including diseases and disorders, differential diagnoses, clinical algorithms, laboratory tests, and clinical practice guidelines—all carefully reviewed by experts in key clinical fields. Extensive algorithms, along with hundreds of new figures and tables, ensure that you stay current with today's medical practice. Contains significant updates throughout, covering all aspects of current diagnosis and treatment. Features 27 all-new topics including chronic rhinosinusitis, subclinical brain infarction, reflux-cough syndrome, radiation pneumonitis, catatonia, end-stage renal disease, and genitourinary syndrome of menopause, among others. Includes new appendices covering common herbs in integrated medicine and herbal activities against pain and chronic diseases; palliative care; and preoperative evaluation. Offers online access to Patient Teaching Guides in both English and Spanish.

Never Bet Against Occam
Never Bet Against Occam

Author: Lawrence B. Afrin

Publisher: Sisters Media, LLC

Published: 2016

Total Pages: 480

ISBN-13: 9780997319613

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In 2008 Dr. Afrin started coming to understand that a newly recognized type of mast cell disease, now called mast cell activation syndrome (MCAS), was the underlying diagnosis in many patients he was seeing who were each suffering large assortments -- quite different from one patient to the next -- of chronic multisystem inflammatory illnesses of unclear cause. Dr. Afrin soon gained experience that MCAS is far more prevalent than the only mast cell disease previously known to medicine (the rare disease of mastocytosis) and that most MCAS patients, once accurately diagnosed, can eventually find significantly helpful medications targeted at the disease. The frequency and magnitude of the improvements Dr. Afrin has seen -- even the relief that comes from finally having a unifying diagnosis other than "psychosomatism" -- have spurred him to focus in this area, not only tending to the needs of his patients but also pursuing research to advance our understanding of the disease and helping to educate other professionals who in turn can help even more of the many people who have long been suffering not only the symptoms of the disease but also the natural concern of not understanding why one would be so "unlucky" to have acquired so many medical problems. As it turns out, such patients are not so unlucky and truly have just one root issue (and a very common one at that), which has the biological capability to develop, directly or indirectly, into most or all of their previously diagnosed problems. There is a great deal yet to learn about this, but even with just the present very limited understanding, the opportunity to diagnose and help patients with MCAS seems to be enormous and Dr. Afrin felt a description of the disease, written for the general public, might help lead some MCAS patients on a journey to diagnosis and improvement sooner rather than later. Dr. Afrin hopes this book will help people who might have, or do have, MCAS. A portion of the proceeds of purchases of this book will go to support research and education in this area.

A Dietary Connection for POTS, EDS and MCAS
A Dietary Connection for POTS, EDS and MCAS

Author: Lynne D M Noble

Publisher:

Published: 2020-12-04

Total Pages: 108

ISBN-13:

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Mast cell activation syndrome, postural orthostatic tachycardia syndrome and Ehlers Danlos syndrome are three syndromes which often appear together. On the surface they appear to be very different. After all, what can multiple allergies have to do with a fast heartbeat and a tendency to faint and how does it fit in with a debilitating connective tissue disorder? If there is a connection is there just one specific association or are there a number of different causes which come together to cement this eternal triangle? The impact of these syndromes on lives is profound not only in terms of lost working hours but of pain and restrictions which would test the patience and strength of most people. But are these syndromes a lifelong companion? Can diet influence genetic inheritance so that the propensity towards certain conditions is turned off. Maybe though, the answer is simpler than that. Could a deficiency of nutritional substances account for all of these syndromes by changing an outcome which has a knock on effect on the way the body responds downstream. All these questions are answered and more and accompanied by photos showing the impact of some of the symptoms of MCAS.The author, a medical nutritionist, takes us on a fascinating journey as she shows how simple deficiencies can account for all the syndromes occurring together and more importantly how easily they can be addressed. This is a book that can be read alone or complements other books in this series especially EDS and the Hypermobility Syndrome Diet which investigates the causes of hypermobility EDS and how diet may impact its manifestation. .

Too Flexible To Feel Good
Too Flexible To Feel Good

Author: Celest Pereira

Publisher: Victory Belt Publishing

Published: 2021-10-12

Total Pages: 530

ISBN-13: 1628602430

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Are you overly flexible or double-jointed? Perhaps you are the clumsy and tired person in your group of friends, often nursing an injury of some sort. If you are nodding in agreement with raised eyebrows and a knowing smirk on your face, then there is a chance you are hypermobile. Hypermobility affects a whopping 10 to 25 percent of the population (meaning it’s more common than being left-handed, standing over six feet tall, or having a third nipple), and it can cause symptoms ranging from minor discomfort to debilitating pain. Hypermobile people’s bendiness and tendency toward anxiety often lead them to yoga, where they find that they are at last praised for their physical ability and given tools to manage their hypersensitivity. However, the way yoga is taught frequently leaves this population susceptible to severe injuries, and they end up being told by medical professionals to avoid yoga. In this epic new book, fitness experts Adell Bridges and Celest Pereira redefine how to manage hypermobility, providing a practical roadmap that will enable you to harness your bendiness and feel fantastic. They reinforce the importance of stability, correct posture, and a healthy lifestyle, showing how, if managed properly, hypermobility is not debilitating but a superpower that you can use to live an extraordinary life. Too Flexible to Feel Good teaches you how to adapt your everyday habits such as your biomechanics and your diet to support and nourish your flexible body. This book also features: • Practical tips on how to hold your body for optimal results during training • Tools to help build awareness of your joint position in everyday life • Strategies for busting anxiety • Exercises that can improve your biomechanics • Diet and sleep considerations Too Flexible to Feel Good is also an invaluable resource for yoga teachers, fitness instructors, and medical professionals, helping them develop a deeper understanding of how best to help this population.

Living Life to the Fullest with Ehlers-Danlos Syndrome
Living Life to the Fullest with Ehlers-Danlos Syndrome

Author: Pt Kevin Muldowney

Publisher:

Published: 2015-07-17

Total Pages: 400

ISBN-13: 9781478758884

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"This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.