This book offers hope to the 4 million Americans coping with CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome) and fibromyalgia. Even though there is no cure for either illness, there are many things you can do to take charge of your condition and your life. This manual for personal change offers a framework to help you understand your illness better, as well as many practical tools you can use to control symptoms and create a more stable life. The approach is based on the belief that you can change the effects of your illness and perhaps its course through your efforts. Learn how to: -live within your energy envelope -pace yourself to control the "chronic illness roller coaster" -set realistic short-term goals -reduce stress -manage emotions -improve relationships -minimize relapses Using the strategies outlined in the book, you can create an individualized self-help program for managing your illness. This book is the official text of the CFIDS/Fibromyalgia Self-Help course, a solution-oriented self-management program offered over the internet and at several locations in the United States (cfidsselfhelp.org).
Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.
For good reasons, Americans are growing concerned about the cost of health care and housing. There are many reasons why people need care-the addiction of a teenage child or spouse, an elderly relative in need of nursing home care, a psychological disorder, or a chronic medical condition—but even moderately successful institutional solutions for these problems are often too costly to be truly helpful. The cost of healthcare is so high it can result in homelessness. Leonard Jason and Martin Perdoux show us a relatively low-cost and effective solution growing in neighborhoods across the country: true community. People are moving in together to meet each other's needs and, in the process, create a much higher quality of life than they would find in an institution. People living together in these healing communities include the elderly, recovering alcoholics and drug addicts, and people suffering from mental illness, Chronic Fatigue Syndrome, AIDS, or Multiple Chemical Sensitivity. These communities offer them a way to recover the caring, structure, direction, and respect that a strong family can provide. The authors of this work show us how communities created out of necessity by their members constitute a more sustained, natural means to healing. In his foreword, Thomas Moore points out that the communities described in this book are not only physical homes, but also shelters for the soul, places to find the deepest kind of security. Here you will see concrete ways imaginative leaders help those in trouble find themselves rather than become dependent on institutions. It is a new and promising imagination of how social healing works: not by setting up more programs, but by treating people in trouble as human beings, with certain emotional and social needs. This book teaches how to re-imagine this whole process, and now, in an increasingly technical and lonely world, we need this precious wisdom more than ever.
One of the Most Rapidly Advancing Fields in Modern Neuroscience The success of molecular biology and the new tools derived from molecular genetics have revolutionized pain research and its translation to therapeutic effectiveness. Bringing together recent advances in modern neuroscience regarding genetic studies in mice and humans and the practical
Chronic multisymptom illness (CMI) is a serious condition that imposes an enormous burden of suffering on our nation's veterans. Veterans who have CMI often have physical symptoms (such as fatigue, joint and muscle pain, and gastrointestinal symptoms) and cognitive symptoms (such as memory difficulties). For the purposes of this report, the committee defined CMI as the presence of a spectrum of chronic symptoms experienced for 6 months or longer in at least two of six categories-fatigue, mood, and cognition, musculoskeletal, gastrointestinal, respiratory, and neurologic-that may overlap with but are not fully captured by known syndromes (such as CFS, fibromyalgia, and IBS) or other diagnoses. Despite considerable efforts by researchers in the United States and elsewhere, there is no consensus among physicians, researchers, and others as to the cause of CMI. There is a growing belief that no specific causal factor or agent will be identified. Many thousands of Gulf War veterans1 who have CMI live with sometimes debilitating symptoms and seek an effective way to manage their symptoms. Estimates of the numbers of 1991 Gulf War veterans who have CMI range from 175,000 to 250,000 (about 25-35% of the 1991 Gulf War veteran population), and there is evidence that CMI in 1991 Gulf War veterans may not resolve over time. Preliminary data suggest that CMI is occurring in veterans of the Iraq and Afghanistan wars as well. In addition to summarizing the available scientific and medical literature regarding the best treatments for chronic multisymptom illness among Gulf War veterans, Gulf War and Health: Volume 9: Treatment for Chronic Multisymptom Illness recommends how best to disseminate this information throughout the VA to improve the care and benefits provided to veterans, recommends additional scientific studies and research initiatives to resolve areas of continuing scientific uncertainty and recommends such legislative or administrative action as the IOM deems appropriate in light of the results of its review.
This eBook version of the Pain Toolkit for people living with fibromyalgia. The text you see in blue are hyperlinks to extra useful pain self-management information and also to the Pain Toolkit videos. Also, don’t forget to visit the website for other useful information. Pete Moore is the author and originator of the Pain Toolkit. He successfully lives with persistent pain, asthma, prostate cancer and osteoarthritis. He has put these tools together with the help of friends, family and healthcare professionals. Make self-managing your pain your first choice and not your last resort. So is persistent pain and fibromyalgia a problem a problem around the world? Yes, it’s become a problem worldwide. For instance here in the UK the short answer is yes, so you are not on your own. Here are some facts from the British Medical Journal Chronic (BMJ) Pain affects between one-third and one-half of the population of the UK, corresponding to just under 28 million adults, based on data from the best available published studies. This figure is likely to increase further in line with an ageing population. People with persistent pain were more likely to be anxious or depressed - 69% with severe pain are worried about their moods. Pete says…I receive daily emails from people who are worried, anxious and even get depressed. Is Fibromyalgia common? The NHS in the UK says… Some estimates suggest nearly 1 in 20 people may be affected by fibromyalgia to some degree. One of the main reasons it's not clear how many people are affected. 12 Pain Toolkit Tools Tool 1 - Accept that you have persistent pain ... and then begin to move on Tool 2 - Get involved, building a support team Tool 3 - Pacing daily activities Tool 4 - Learn to prioritise/plan out your days Tool 5 - Setting Goals/ Action Plans Tool 6 - Being patient with yourself Tool 7 - Learn relaxation skills Tool 8 - Meaningful movement (keeping active) Tool 9 - Keep a diary and track your progress Tool 10 - Have a setback plan Tool 11 - Teamwork Tool 12 - Keeping it up and being resilient. Important: On Pages 25 - 30 you will see links to others non for profit organisations in the UK, Ireland, America, Australia, Canada and New Zealand. Your three step guide for using the Pain Toolkit Read it and show the Pain Toolkit to your circle of support: your partner, family, friends, work colleagues and your healthcare team. Choose and circle only two or three tools you think will make a positive change to self-managing your pain. Ask for help from your support circle if needed. Once you feel confident with those tools, then do the same steps and choose another two or three tools. Repeat again when needed.
Are you struggling with Fibromyalgia/chronic pain/chronic fatigue and insomnia? Melissa shares the ways she fights these symptoms and her journey from miserable to thriving despite Fibromyalgia.Melissa Reynolds has fought Fibromyalgia since she was 14 years old. Only, she didn't receive a name for her invisible opponent until she was in her 20s. Unfortunately, the name of the illness did not come with help. However, she took matters into her own hands and in seven years, she went from miserable and barely coping with life to thriving.Using a combination of research and personal trial and error, she has managed to bring her pain and fatigue levels down and minimise the effects of the debilitating brain fog by using everything she has written about on her blog MelissavsFibromyalgia.com. With a passion for research, health and wellness, Melissa combines her findings (both research and anecdotal evidence) with personal experience and hopes that sharing this knowledge will make even one life a bit easier. Praise for Melissa vs Fibromyalgia: My Journey Fighting Chronic Pain, Chronic Fatigue and Insomnia"I wish this book had been around when I first got diagnosed." Deb, a Fibro Fighter "This book is a very interesting read. It is packed full of information that is easy to understand and apply. The book reads quickly and doesn't weigh you down with heavy text. Melissa is a brilliant writer and I enjoy her work. I recommend her book if you have fibromyalgia or know someone who does." - Jessie"Love it. Melissa starts most chapters with 'What I Do'. She's not hitting me over the head with her wisdom. Another fine book by Melissa Reynolds. I like that every chapter is stand alone. You can start anywhere and go anywhere. You can read from back to front if you want. I especially resonate with '10 Nice Minutes', a list of stuff to do for yourself (I could add to the list); 'Document Your Experiment', experimenting and finding patterns is key to my success with MS; 'Pacing and Boundaries', I'm working on this for myself; and 'Support', finding a good team is critical. You only need a few reliable people. Then exceptional support can come from unexpected places. Melissa starts most chapters with 'What I Do'. She's not hitting me over the head with her wisdom. I hate it when people think they're so smart about me.I have multiple sclerosis, not fibromyalgia. Still, I can use 75% of this book. Melissa, thanks for your courage, thoughtfulness, and humor." - Danny van Leeuwen, Opa, RN, MPH, CPHQHealth Hats (www.health-hats.com)Praise for Melissa's first book Fibro Mama Pregnancy and Fibromyalgia"Lived experience + self-awareness + systems thinking + good storytelling is golden. Add brevity and it's priceless. Melissa's book is priceless." --Danny van Leeuwen, Opa, RN, MPH, CPHQHealth Hats (www.health-hats.com)"Pregnancy and Fibromyalgia is a short, easy-to-digest run-down of things you can expect during a fibro pregnancy, and how to navigate them." --Diane Murray Spoonie Living (blog.spoonieliving.com)"An invaluable resource for fibro baby mammas." --CazInvisibly Me (www.invisiblyme.com)
This book combines new thinking, cutting edge neuroscience, humour and Phil Parker's upside-down perspective to life's problems and their solutions to help you become happy and fulfilled. Learn how to: • use the power of language to release 'stuckness' and create change • recognize and interrupt negative thought patterns to change the way your brain works • develop awareness of exactly what you need to do differently, so that you can become your own coach • choose a new future - and make sure that it happens! Based on two decades of research and Phil's world-changing Lightning Process®, Get the Life You Love, Now takes you step-by-step on an amazing journey of self-discovery unlike anything you've ever experienced before.
An accessible guide to employing stories and metaphors within cognitive behaviour therapy, which will aid clinicians in providing effective treatment for their clients Provides therapists with a range of metaphors that can be employed as a tool to enable clients to gain a new perspective on their problem, and reinforce their clients’ motivation for change CBT (Cognitive Behaviour Therapy) continues to grow in popularity, and is strongly recommended as an effective intervention by the National Institute of Clinical Excellence Written in an engaging style that is accessible to both established practitioners and trainees in clinical psychology
