Values at the End of Life

Values at the End of Life

Author: Roi Livne

Publisher: Harvard University Press

Published: 2019-06-10

Total Pages: 361

ISBN-13: 0674545176

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This insightful study examines the deeply personal and heart-wrenching tensions among financial considerations, emotional attachments, and moral arguments that motivate end-of-life decisions. America’s health care system was built on the principle that life should be prolonged whenever possible, regardless of the costs. This commitment has often meant that patients spend their last days suffering from heroic interventions that extend their life by only weeks or months. Increasingly, this approach to end-of-life care is coming under scrutiny, from a moral as well as a financial perspective. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and growing acceptance of the idea that a life consumed by suffering may not be worth living. Values at the End of Life combines an in-depth historical analysis with an extensive study conducted in three hospitals, where Livne observed terminally ill patients, their families, and caregivers negotiating treatment. Livne describes the ambivalent, conflicted moments when people articulate and act on their moral intuitions about dying. Interviews with medical staff allowed him to isolate the strategies clinicians use to help families understand their options. As Livne discovered, clinicians are advancing the idea that invasive, expensive hospital procedures often compound a patient’s suffering. Affluent, educated families were more readily persuaded by this moral calculus than those of less means. Once defiant of death—or even in denial—many American families and professionals in the health care system are beginning to embrace the notion that less treatment in the end may be better treatment.


The Best Care Possible

The Best Care Possible

Author: Ira Byock

Publisher: Penguin

Published: 2013-03-05

Total Pages: 338

ISBN-13: 1583335129

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A doctor on the front lines of hospital care illuminates one of the most important and controversial social issues of our time. It is harder to die in this country than ever before. Though the vast majority of Americans would prefer to die at home—which hospice care provides—many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to “fight disease and illness at all cost.” Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that how we die represents a national crisis today. To ensure the best possible elder care, Dr. Byock explains we must not only remake our healthcare system but also move beyond our cultural aversion to thinking about death. The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning life-or-death medical drama. It has the power to lead a new national conversation.


Top Five Regrets of the Dying

Top Five Regrets of the Dying

Author: Bronnie Ware

Publisher: Hay House, Inc

Published: 2019-08-13

Total Pages: 322

ISBN-13: 1401956009

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Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.


Care at the Close of Life: Evidence and Experience

Care at the Close of Life: Evidence and Experience

Author: Stephen J. McPhee

Publisher: McGraw Hill Professional

Published: 2010-12-31

Total Pages: 625

ISBN-13: 0071637966

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The world's leading source of evidence-based guidance on caring for patients at the end of life. Featuirng the content of the world's most widely read medical journal, plus completely new, never-before-published content. Perfect for medical students, trainees, and clinicians alike. Market / Audience Medical students: 18000/yr US, 250,000 global NP and PA students: 25,000/yr US, 50,000+ global IM and FP residents: 30,000 US, 60,000 global IM and FP clinicians: 140,000 US, 300,000+ global Palliative medicine: 3000 US Oncology: 20,000 US, 60,000 global Social workers About the Book In the tradition of the User's Guides to the Medical Literature, and The Rational Clinical Examination, JAMA/Care at the Close of Life is based on a widely successful series of articles appearing over the course of the last ten years in JAMA, the world's most widely read medical journal. The series is directed by Stephen McPhee, a leading authoriity of end of life care, and the chief editor of our market leading Current Medical Diagnosis and Treatment text. The articles in the series cover fundamental topics and challenges in caring for patients who have been given a terminal diagnosis. Featuring a strong focus on evidence-based medicine, and organized by clinical cases, the articles are widely read by faculty, medical students, and clinicians who, frankly, have not been given a solid educational experience on this very important medical issue. The book will be physically modeled after The Rational Clinical Examination, in a full color format that highlights the clinical cases. It will be well suited for use as an required or recommended textbook for medical, PA, and NO students, and as a clinical reference text for trainees and practicing physicians and nurses. Key Selling Features Based on highy regarded content from the world's most widely read medical journal All content is completely updated, and extensive new, never-before-published content has been added Case-based, and evidence-based, so its a perfect fit for the way medical students and residents like to learn Focuses on practical, real-world issues for primary care physicians, and avoids esoteric issues of interest only to specialists in palliative care Full color format, modeled after the highly regarded Rational Clinical Examination Includes multimedia materials available on line: Power Point slides for teaching, and video interviews with patients in end-of-life care, so that faculty and students get supplemental resources for learning the art and science of care at the end of life Evidence-based guidance from the world's leading medical journal, on a critical topic that has been neglected in medical education and training until recently. Author Profile JAMA is the world's most widely read medical journal, and has a reputation for excellence in evidence-based medicine. Stephen McPhee has high visbility on account of his editorship of CMDT, and for his driving role in enhancing end of life care in medical education and training programs. He is: Professor of Medicine, UCSF School of Medicine, San Francisco CA


The Life You Save

The Life You Save

Author: Patrick Malone

Publisher: Hachette UK

Published: 2009-07-07

Total Pages: 304

ISBN-13: 0786748095

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Millions of Americans suffer from indifferent, outdated health care; an estimated 40,000 incidents of medical harm happen every day. The good news is that you can prevent this from happening to you or a family member. Better yet, you can find the very best care in the world. Patrick Malone's sensible advice and real-life anecdotes will inspire you to take charge of your own health care, make the best choices, and avoid serious harm. With the "Necessary Nine" -- the essential steps to finding the best medical care -- The Life You Save offers vital information such as: The single most important question you can ask your doctor When to know you have symptoms your doctor should not shrug off Checklists to help you get out of the hospital in one piece Where to locate the best surgeons and safest hospitals.


The Whole Life

The Whole Life

Author: Eliza Huie

Publisher: New Growth Press

Published: 2021-07-26

Total Pages: 171

ISBN-13: 1645071367

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Many of us live at a pace that is impossible to keep. Unrelenting busyness might feel necessary, but it can lead to chronic stress and burnout that hinders our love for God and others. Instead of adding more to our long to-do list, counselors Eliza Huie and Esther Smith guide readers in how to think biblically about their whole life. They give Christians a framework for biblical self-care that will help them live for Christ by stewarding the spiritual, emotional, relational, and physical aspects of life. The Whole Life: 52 Weeks of Biblical Self-Care outlines a balanced life of stewardship, offering practical strategies for Christians to grow in honoring God and caring for others. The authors focus on six key areas: faith, health, purpose, community, work, and rest. Each chapter addresses a specific topic and guides readers in thinking biblically about their whole life. Breaking down the misconceptions that self-care is not biblical, The Whole Life reveals that caring for yourself doesn’t mean you are being selfish or lazy. Instead, it’s a way of stewarding every part of your life for God’s glory and the good of others. Contrary to what our culture might lead us to believe, exhaustion and burnout are not unavoidable pitfalls of a faithful Christian life. Instead, they are warning signs that we need to turn to God for daily help. This book will reorient readers to the core value of resting their heart, mind, and strength in Christ.


End-of-Life Nursing Care

End-of-Life Nursing Care

Author: Annie Pettifer

Publisher: SAGE

Published: 2012-12-18

Total Pages: 218

ISBN-13: 1446290204

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Students and newly qualified staff make up much of the workforce delivering end-of-life care but, because end-of-life care can be both technically challenging and emotionally demanding, it is an aspect of nursing that can cause considerable anxiety. This very accessible, straightforward book helps to allay those concerns and enables pre-registration students to prepare confidently for the challenges they will face when they are caring for dying patients and supporting their families. Each chapter is based on a different and realistic scenario - reflecting a range of circumstances - to demonstrate the essential generic knowledge and skills they need to develop, and draws out the important practical and theoretical issues students should consider and address if patients and their families are to receive the best possible care. Written by two experienced palliative care lecturer/practitioners, and mapping closely to the NMC′s 2010 domains, the book is tailored to the needs of student nurses working with adult patients. It explores the importance of their role in end-of-life care and how this interfaces with the roles of other multidisciplinary professionals involved in the care of their patients. It will also be helpful to students of other health-care professions and support newly-qualified health-care professionals working in adult health.


Nursing Care at the End of Life

Nursing Care at the End of Life

Author: Joyce V Zerwekh

Publisher: F.A. Davis

Published: 2005-12-28

Total Pages: 473

ISBN-13: 0803620284

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Nursing Care at the End of Life: Palliative Care for Patients and Families explores the deep issues of caring for the dying and suffering. The book is based on the Hospice Family Caregiving Model previously published by the author and focuses on the practice implications of care for the dying. The book is written in a clear and user-friendly style, and is ideal for undergraduate nursing students learning about dying, suffering, and caring for individuals and their families.


Approaching Death

Approaching Death

Author: Committee on Care at the End of Life

Publisher: National Academies Press

Published: 1997-10-30

Total Pages: 457

ISBN-13: 0309518253

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When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."


The Conversation

The Conversation

Author: Angelo E. Volandes

Publisher: Bloomsbury Publishing USA

Published: 2015-01-13

Total Pages: 241

ISBN-13: 1620408546

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"There is an unspoken dark side of American medicine--keeping patients alive at all costs. Two thirds of Americans die in healthcare institutions tethered to machines and tubes, even though research indicates that most prefer to die at home in comfort, surrounded by loved ones. The question How do you want to live? must be posed to the seriously ill because they deserve to choose. If doctors explain options--including the choice to forego countless medical interventions that are often of little benefit--then patients can tell doctors how they wish to spend the remainder of their lives. A doctor's heroic efforts to prolong a life can instead prolong that patient's death, and these traumatic measures also bankrupt the healthcare system. One third of the Medicare budget is spent on the last six months of life, often on technological interventions that are not helpful and inflict more suffering. Through the stories of six patients and six very different end-of-life experiences, Volandes explores the trajectory of events and treatments that occur with and without this essential conversation. He argues for a radical re-envisioning of the patient-doctor relationship--including videos to spark discussions--and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care"--Provided by publisher.