After the amazing trip through the jungle, Miss Messy Suzie McGoo is ready to invite you and the cuff cough crew to her secret magical tea party! This time, the awesome Mama McGoo is helping her, and so are the four wise animals. Suzie would love it if you could join her for a tea party full of surprises, while you discover the great secret of AHDA together!Whimsical and educational both, this book will show children and their parents it's perfectly possible to have fun and thrive with cystic fibrosis, teach them how respiratory medications (Albuterol, hypertonic solution, Dornase, and antibiotics} help Suzie live a fulfilling life and show them the exact order to take them in, in a way they will easily remember.
Meet Miss Messy Suzie McGoo, a delightful little girl who lives for adventure. Follow her as she embarks on her latest adventure – a trip through the jungle – where she and you will meet beautiful animals, see fantastic sights, and learn a thing or two about her and just how extraordinary and brave she is. This book will delight parents and children alike and will teach both about what it’s like to live and thrive with cystic fibrosis and the special lung therapy that makes her life easier and helps her remain healthy and strong. Subject matter •This book is designed to teach children with Cystic Fibrosis how to complete the lung therapy, the "Huff Cough". We have renamed it the "Cuff" Cough as the "C" alliteration more easily achieves the desired results, without in person training. Theme• A lighthearted and whimsical book, designed to act as an educational tool, while also helping normalize having to complete lung therapy. Target audience• Families affected by Cystic Fibrosis and Children age 5 -10 Main characters' names for children's books• Miss Messy Suzie McGoo Problem it will solve or lesson it will teach• The “Cuff Cough” lung therapy
Mr. Waters The Purple Frog, is about a girl making friends and falling in love with a frog. The fun they had and what happens to change their lives, when she tells him, that she loves him. It's a fiction, fairy tale
Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.
Elizabeth Martin explores the impact of globalization on the language of French advertising, showing that English and global imagery play an important role in tailoring global campaigns to the French market, with media companies undeterred by the attempts through legislation to curb language mixing in the media.
With six Academy Awards, four entries on the American Film Institute's list of 100 greatest American movies, and more titles on the National Historic Register of classic films deemed worthy of preservation than any other director, Billy Wilder counts as one of the most accomplished filmmakers ever to work in Hollywood. Yet how American is Billy Wilder, the Jewish émigré from Central Europe? This book underscores this complex issue, unpacking underlying contradictions where previous commentators routinely smoothed them out. Wilder emerges as an artist with roots in sensationalist journalism and the world of entertainment as well as with an awareness of literary culture and the avant-garde, features that lead to productive and often highly original confrontations between high and low.
Fast-paced and razor-sharp dark fantasy for readers of Nicholas Eames, Anna Smith Spark and Robert Jackson Bennett "A fantastic book, full of wit and sharp humor, City of Iron and Dust careens through a modernized faerie at a breakneck pace, full of verve and unforgettable characters. Oakes spins a smart, electric, and sometimes snarky tale, showing that the beating heart of modern fantasy is alive and well." – John Hornor Jacobs, author of A Lush and Seething Hell and The Incorruptibles The Iron City is a prison, a maze, an industrial blight. It is the result of a war that saw the goblins grind the fae beneath their collective boot heels. And tonight, it is also a city that churns with life. Tonight, a young fae is trying to make his fortune one drug deal at a time; a goblin princess is searching for a path between her own dreams and others’ expectations; her bodyguard is deciding who to kill first; an artist is hunting for his own voice; an old soldier is starting a new revolution; a young rebel is finding fresh ways to fight; and an old goblin is dreaming of reclaiming her power over them all. Tonight, all their stories are twisting together, wrapped up around a single bag of Dust—the only drug that can still fuel fae magic—and its fate and theirs will change the Iron City forever.
Librarian Charlie Harris and his cat Diesel must content with some spirited southern ladies when a feud ends in murder in this mystery in the New York Times bestselling series. The Ducote sisters are in a tiff with Vera Cassity over the location of Athena, Mississippi's annual library fundraising gala, and Charlie would rather curl up in a corner than get into the fray. It seems everyone—even his housekeeper Azalea—has it in for Vera. And at the gala, she gives them good reason, with a public display of rancor aimed at anyone who gets in her way. But those bitter words wind up being her last. When Charlie discovers Azalea standing over Vera's dead body, it's up to him—with a little help from Diesel—to clear Azalea's name, and catch a killer before his last chapter is finished.
