In this book, thirty carers from different backgrounds and circumstances share their experiences of caring for a parent, partner or friend with dementia. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including social workers, practitioners and care staff.
People from a wide range of backgrounds reflect on their experiences of living with dementia, and what impact the condition has had on their lives. This timely collection offers a much-needed opportunity to hear the voices of people with dementia, as they demystify the condition and break down stigma and stereotypes.
It is painfully difficult to watch a loved one decline as dementia ravages their mind, destroying memories, rational thinking, and judgment. In her touching memoir, I Will Never Forget, Elaine Pereira shares the heartbreaking and humorous story of her mother’s incredible journey through dementia. Pereira begins with entertaining glimpses into her own childhood and feisty teenage years, demonstrating her mother’s strength of character. Years later, as Betty Ward started to exhibit bizarre behaviors and paranoia, Pereira was mystified by her mom’s amazing ability to mask the truth. Not until a revealing incident over an innocuous drapery rod did Pereira recognize the extent of her mother’s Alzheimer’s. As their roles shifted and a new paradigm emerged, Pereira transformed into a caregiver blindly navigating dementia’s unpredictable haze. But before Betty’s passing, she orchestrated a stunning rally to control her own destiny via a masterful, Houdini-like escape. I Will Never Forget is a powerful heartwarming story that helps others know that they are not alone in their journey. “Poignant, shocking, and honest … far more than just words on paper. If you or someone you know is living through the hell of dementia, you need this book!” —Ionia Martin, developer of Readful Things Reviews and Alzheimer’s caregiver
A murderer driven to the edge by the sound of his victim's still-beating heart… A mental institution run by someone other than its staff… A mysterious box aboard a ship with a ghastly secret… And the hypnotist's stare that could, perhaps, paralyze even death… Strap into your straitjacket, fasten it tight, and brace yourself! For within these pages are stories of lost love, lost ways… and lost minds. Gris Grimly's mysterious, morbid, macabre illustrations capture four Poe classics, including perennial favourite, The Tell Tale Heart, with an unmatchable ghoulish charm. Read them if you dare ~ and celebrate, in true Poe style, the two hundredth anniversary of the birth ofthe great Master of the Macabre.
Alzheimer’s disease, a haunting and harrowing ailment, is one of the world’s most common causes of death. Alzheimer’s lingers for years, with patients’ outward appearance unaffected while their cognitive functions fade away. Patients lose the ability to work and live independently, to remember and recognize. There is still no proven way to treat Alzheimer’s because its causes remain unknown. Mind Thief is a comprehensive and engaging history of Alzheimer’s that demystifies efforts to understand the disease. Beginning with the discovery of “presenile dementia” in the early twentieth century, Han Yu examines over a century of research and controversy. She presents the leading hypotheses for what causes Alzheimer’s; discusses each hypothesis’s tangled origins, merits, and gaps; and details their successes and failures. Yu synthesizes a vast amount of medical literature, historical studies, and media interviews, telling the gripping stories of researchers’ struggles while situating science in its historical, social, and cultural contexts. Her chronicling of the trajectory of Alzheimer’s research deftly balances rich scientific detail with attention to the wider implications. In narrating the attempts to find a treatment, Yu also offers a critical account of research and drug development and a consideration of the philosophy of aging. Wide-ranging and accessible, Mind Thief is an important book for all readers interested in the challenge of Alzheimer’s.
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
This picture book aims to raise awareness of the impact that dementia can have on an individual and their family in a child-friendly and supportive way. It is aimed at 4-11 year olds and has been inspired and informed by people with lived experiences of dementia. Through rhyme and engaging illustrations this book hopes to start conversations about dementia, in order to help relieve anxieties that children might have about someone close to them who may be living with dementia. The MY HAS series of books aims to help children to understand a range of long-term health conditions whilst promoting an inclusive and diverse society.
Narratives are fundamental to our lives: we dream, plan, complain, endorse, entertain, teach, learn, and reminisce through telling stories. They provide hopes, enhance or mitigate disappointments, challenge or support moral order and test out theories of the world at both personal and communal levels. It is because of this deep embedding of narrative in everyday life that its study has become a wide research field including disciplines as diverse as linguistics, literary theory, folklore, clinical psychology, cognitive and developmental psychology, anthropology, sociology, and history. In Telling Stories leading scholars illustrate how narratives build bridges among language, identity, interaction, society, and culture; and they investigate various settings such as therapeutic and medical encounters, educational environments, politics, media, marketing, and public relations. They analyze a variety of topics from the narrative construction of self and identity to the telling of stories in different media and the roles that small and big life stories play in everyday social interactions and institutions. These new reflections on the theory and analysis of narrative offer the latest tools to researchers in the fields of discourse analysis and sociolinguistics.
