Telling Tales About Dementia

Telling Tales About Dementia

Author: Lucy Whitman

Publisher: Jessica Kingsley Publishers

Published: 2009-09-15

Total Pages: 226

ISBN-13: 0857000179

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How does it feel when someone you love develops dementia? How do you cope with the shock, the stress and the grief? Can you be sure that you and your family will receive the support you need? In Telling Tales About Dementia, thirty carers from different backgrounds and in different circumstances share their experiences of caring for a parent, partner or friend with dementia. They speak from the heart about love and loss: 'I still find it hard to believe that Alzheimer's has happened to us,' writes one contributor, 'as if we were sent the wrong script.' The stories told here vividly reflect the tragedy of dementia, the gravity of loss, and instances of unsatisfactory diagnosis, treatment and care. But they contain hope and optimism too: clear indications that the quality of people's lives can be enhanced by sensitive support services, by improved understanding of the impact of dementia, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connections between us. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including relatives of people with dementia, social workers, medical practitioners and care staff.


Telling Tales about Dementia

Telling Tales about Dementia

Author: Lucy Whitman

Publisher: Jessica Kingsley Publishers

Published: 2010

Total Pages: 226

ISBN-13: 1843109417

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In this book, thirty carers from different backgrounds and circumstances share their experiences of caring for a parent, partner or friend with dementia. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including social workers, practitioners and care staff.


Edgar Allan Poe's Tales of Death and Dementia

Edgar Allan Poe's Tales of Death and Dementia

Author: Edgar Allan Poe

Publisher: Simon and Schuster

Published: 2012-06-01

Total Pages: 148

ISBN-13: 1471104990

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A murderer driven to the edge by the sound of his victim's still-beating heart… A mental institution run by someone other than its staff… A mysterious box aboard a ship with a ghastly secret… And the hypnotist's stare that could, perhaps, paralyze even death… Strap into your straitjacket, fasten it tight, and brace yourself! For within these pages are stories of lost love, lost ways… and lost minds. Gris Grimly's mysterious, morbid, macabre illustrations capture four Poe classics, including perennial favourite, The Tell Tale Heart, with an unmatchable ghoulish charm. Read them if you dare ~ and celebrate, in true Poe style, the two hundredth anniversary of the birth ofthe great Master of the Macabre.


I Will Never Forget

I Will Never Forget

Author: Elaine C. Pereira

Publisher: iUniverse

Published: 2014

Total Pages: 283

ISBN-13: 1938908589

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It is painfully difficult to watch a loved one decline as dementia ravages their mind, destroying memories, rational thinking, and judgment. In her touching memoir, I Will Never Forget, Elaine Pereira shares the heartbreaking and humorous story of her mother’s incredible journey through dementia. Pereira begins with entertaining glimpses into her own childhood and feisty teenage years, demonstrating her mother’s strength of character. Years later, as Betty Ward started to exhibit bizarre behaviors and paranoia, Pereira was mystified by her mom’s amazing ability to mask the truth. Not until a revealing incident over an innocuous drapery rod did Pereira recognize the extent of her mother’s Alzheimer’s. As their roles shifted and a new paradigm emerged, Pereira transformed into a caregiver blindly navigating dementia’s unpredictable haze. But before Betty’s passing, she orchestrated a stunning rally to control her own destiny via a masterful, Houdini-like escape. I Will Never Forget is a powerful heartwarming story that helps others know that they are not alone in their journey. “Poignant, shocking, and honest … far more than just words on paper. If you or someone you know is living through the hell of dementia, you need this book!” —Ionia Martin, developer of Readful Things Reviews and Alzheimer’s caregiver


People with Dementia Speak Out

People with Dementia Speak Out

Author: Lucy Whitman

Publisher:

Published: 2015

Total Pages: 304

ISBN-13: 9781849052702

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People from a wide range of backgrounds reflect on their experiences of living with dementia, and what impact the condition has had on their lives. This timely collection offers a much-needed opportunity to hear the voices of people with dementia, as they demystify the condition and break down stigma and stereotypes.


On Vanishing

On Vanishing

Author: Lynn Casteel Harper

Publisher: Catapult

Published: 2020-04-14

Total Pages: 126

ISBN-13: 1948226294

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A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.


Mind Thief

Mind Thief

Author: Han Yu

Publisher: Columbia University Press

Published: 2021-03-02

Total Pages: 487

ISBN-13: 0231552769

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Alzheimer’s disease, a haunting and harrowing ailment, is one of the world’s most common causes of death. Alzheimer’s lingers for years, with patients’ outward appearance unaffected while their cognitive functions fade away. Patients lose the ability to work and live independently, to remember and recognize. There is still no proven way to treat Alzheimer’s because its causes remain unknown. Mind Thief is a comprehensive and engaging history of Alzheimer’s that demystifies efforts to understand the disease. Beginning with the discovery of “presenile dementia” in the early twentieth century, Han Yu examines over a century of research and controversy. She presents the leading hypotheses for what causes Alzheimer’s; discusses each hypothesis’s tangled origins, merits, and gaps; and details their successes and failures. Yu synthesizes a vast amount of medical literature, historical studies, and media interviews, telling the gripping stories of researchers’ struggles while situating science in its historical, social, and cultural contexts. Her chronicling of the trajectory of Alzheimer’s research deftly balances rich scientific detail with attention to the wider implications. In narrating the attempts to find a treatment, Yu also offers a critical account of research and drug development and a consideration of the philosophy of aging. Wide-ranging and accessible, Mind Thief is an important book for all readers interested in the challenge of Alzheimer’s.


Grandma, It's Me!

Grandma, It's Me!

Author: Y. Y. Chan

Publisher:

Published: 2022-01-28

Total Pages: 44

ISBN-13: 9789887558958

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Riley loves spending time with her grandparents, but after visiting them one day, she notices Grandma doesn't recognize her. Mommy explains that Grandma may have dementia, so her memory isn't as good as it used to be. Riley tries her best to help Grandma remember and writes about their time together in her diary. This uplifting and touching story encourages young readers to support and care for the elderly with love, patience and understanding. Written as a series of diary entries, Grandma, It's Me! also encourages journaling as a way to process emotions and feelings in order to become resilient to face life's many challenges. An Activity Pack (including reading comprehension questions, project ideas, templates, coloring pages and more) is also available for download at https: //bit.ly/yychan_grandma Foreword by Teresa B.K.Tsien (Gerontologist Hong Kong Alzheimer's Disease Association Board Member) "...The story was written with a dash of humor and lots of love from a child's perspective. It helps to take away some of the mystery, and reminds us that even though the disease has changed the mind and body, the person with dementia is still there, and still loves us. She has illustrated an important message that people with dementia might not remember the events, but they will always remember the feelings that they experienced... I highly recommend this book to families and schools." Recommended and Endorsed by Dementia and Alzheimer's Professionals and Families on the Dementia Journey "A very sweet way to present the challenges a loved one faces when someone dear to them is going through this disease. I found that many aspects of dementia / Alzhei- mer's were touched upon. I see this process every day in my profession. One of my very favorite sayings is "to love them through it". This is a shining example of doing just that-loving someone through it." - Cindy Swanda LPN Memory Support Director, Fremont, Nebraska, USA "... The book has been a blessing for me-I think for the past two years taking care of my mom, I sometimes have a picture in my mind that is full of grey-and oh so dreary! This has lifted my spir- it up and I find that nowadays, even when I think of my mom, the picture has become more colorful." - Serene Low, Singapore Five Star Reviews from Readers' Favorite "... Grandma, It's Me! A Children's Book about Dementia, is a caring, compassionate way to teach young readers about memory loss and how they can help... Young readers will certainly connect with Riley's feelings as she deals with a difficult and confusing situation affecting someone she loves. The power of love shines through this touching story. Beautifully told." - Emily-Jane Hills Orford for Readers' Favorite "... This book offers so many wonders in learning about the journey of loved ones living with dementia or Alzheimer's and those who care for them... I loved this book and highly recommend it for young and old alike." - Vernita Naylor for Readers' Favorite


Telling Stories

Telling Stories

Author: Deborah Schiffrin

Publisher: Georgetown University Press

Published: 2010-03-09

Total Pages: 231

ISBN-13: 1589016742

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Narratives are fundamental to our lives: we dream, plan, complain, endorse, entertain, teach, learn, and reminisce through telling stories. They provide hopes, enhance or mitigate disappointments, challenge or support moral order and test out theories of the world at both personal and communal levels. It is because of this deep embedding of narrative in everyday life that its study has become a wide research field including disciplines as diverse as linguistics, literary theory, folklore, clinical psychology, cognitive and developmental psychology, anthropology, sociology, and history. In Telling Stories leading scholars illustrate how narratives build bridges among language, identity, interaction, society, and culture; and they investigate various settings such as therapeutic and medical encounters, educational environments, politics, media, marketing, and public relations. They analyze a variety of topics from the narrative construction of self and identity to the telling of stories in different media and the roles that small and big life stories play in everyday social interactions and institutions. These new reflections on the theory and analysis of narrative offer the latest tools to researchers in the fields of discourse analysis and sociolinguistics.


Really and Truly

Really and Truly

Author: Émilie Rivard

Publisher:

Published: 2013

Total Pages: 0

ISBN-13: 9781445119403

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Explores the relationship between Charlie and his grandfather who has developed dementia.