Taking Cystic Fibrosis to School
Author: Cynthia S. Henry
Publisher: Jayjo Books
Published: 2000
Total Pages: 0
ISBN-13: 9781891383090
DOWNLOAD EBOOKIllustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Posts
Cystic Fibrosis
Author: David M. Orenstein
Publisher: Lippincott Williams & Wilkins
Published: 2012-03-28
Total Pages: 788
ISBN-13: 1451154380
DOWNLOAD EBOOKThis one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Having Cystic Fibrosis Is A Lot Like Being A Superhero
Author: Kelsey M Finn
Publisher:
Published: 2020-07-02
Total Pages: 28
ISBN-13:
DOWNLOAD EBOOKThis book tells the story of Jack, a boy who has a genetic condition called Cystic Fibrosis, and his Cystic Fibrosis Superpowers. Cystic Fibrosis affects approximately 1 in every 2,500 people of European ancestry, and also affects people of other ancestries, but less frequently. This book is intended to serve as a way to communicate with children about Cystic Fibrosis, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis.
The CF Warrior Project
Author: Andy C. Lipman
Publisher: Booklogix
Published: 2019-05-15
Total Pages: 216
ISBN-13: 9781610059558
DOWNLOAD EBOOK"Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion "These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black "After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood "These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox
Salt in My Soul
Author: Mallory Smith
Publisher: Random House
Published: 2019-03-12
Total Pages: 336
ISBN-13: 1984855433
DOWNLOAD EBOOKThe diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Cystic Fibrosis
Author: Stephanie Duggins Davis
Publisher: Springer Nature
Published: 2020-05-21
Total Pages: 525
ISBN-13: 3030423824
DOWNLOAD EBOOKThis book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.
Diary of a CF Kid
Author: Tim Sweeney
Publisher: Independently Published
Published: 2021-04-19
Total Pages: 225
ISBN-13:
DOWNLOAD EBOOKAre you a CF kid? You're not alone! When Tim Sweeney was (much) younger, he wished he had a book like this to help him navigate the ups and downs of having cystic fibrosis. Tim was born with cystic fibrosis at a time when there wasn't a lot known about it. Throughout Tim's life, he has faced challenge after challenge and never gave up. As a result, Tim has learned all of the tools he uses to be a CF Warrior everyday. Tools such as exercise, good eating habits, compliance with breathing treatments and medications, and having the right mindset. Just like a superhero, Tim relies on his family, friends, and doctors to help, but he also relies on himself. In Diary of a CF Kid, Tim teaches the life lessons he's learned, such as trust, self-esteem, integrity, courage, and many others, to help be a CF Warrior who is winning daily battles. Tim's mission in life is to live with health and happiness. Living with CF has many challenges and it helps to be inspired by someone who has seen every stage of CF including 3 life saving surgeries (and even managed to run a marathon less than year after his double lung transplant). Tim has been a personal trainer for over 20 years with a wife and 3 boys. Let's face it, a lot of kids find reading too boring and not as exciting as an iPad. Diary of a CF Kid is told in the entertaining Diary of a Wimpy Kid style with funny sketches and stories that will make you laugh, engage, be inspired, and learn. Tim's diary also brings to life important topics for a CF kid. Each diary entry focuses on a new value with examples that include historical figures such as Helen Keller, the Wright Brothers, Gandhi, Nelson Mandela, and many others. Tim also uses his own experiences to teach valuable lessons that have made a huge impact on his life. Learning from such real life heroes will inspire CF kids to live a life with health and happiness. This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily? Perfect as a bedtime story, neatly divided into small sections, Diary of a CF Kid is a one of kind book for CF Kids.
Mallory's 65 Roses
Author: Diane Shader Smith
Publisher:
Published: 1997-01-01
Total Pages: 24
ISBN-13: 9780970035301
DOWNLOAD EBOOKMallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Cystic Fibrosis
Author: Melanie Ann Apel
Publisher: Scarecrow Press
Published: 2006
Total Pages: 288
ISBN-13: 9780810848214
DOWNLOAD EBOOKDescribes the challenges of living with cystic fibrosis, as well as a description of the illness, and an explanation of procedures for diagnosis and therapy.
Breathing For a Living
Author: Laura Rothenberg
Publisher: Hyperion
Published: 2004-06-09
Total Pages: 0
ISBN-13: 9780786888696
DOWNLOAD EBOOKNow in paperback comes the moving account by an extraordinary young woman who mounted a daily struggle with cystic fibrosis in an effort to lead an ordinary life. Twenty-one-year-old Laura Rothenberg had always tried to live a normal life -- even with lungs that betrayed her and a constant awareness that she might not live to see her next birthday. Like most people born with cystic fibrosis, the chronic disease that affects primarily the lungs, Laura struggled to come to grips with a life that had already been compromised in many ways. Sometimes healthy and able to attend school, other times hospitalized for weeks, Laura found solace in keeping a diary. In her writing, she could be open, honest, and irreverent, like the young person she was. Yet behind this voice is a penetrating maturity about her mortality, revealing a will and temperament that is fierce and insightful.
