Patient Safety and Quality

Patient Safety and Quality

Author: Ronda Hughes

Publisher: Department of Health and Human Services

Published: 2008

Total Pages: 592

ISBN-13:

DOWNLOAD EBOOK

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/


Family Support and Family Caregiving across Disabilities

Family Support and Family Caregiving across Disabilities

Author: George H.S. Singer

Publisher: Routledge

Published: 2014-06-11

Total Pages: 239

ISBN-13: 1317979125

DOWNLOAD EBOOK

Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities. Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle. This book was published as a two-part special issue in the Journal of Family Social Work.


Families Caring for an Aging America

Families Caring for an Aging America

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-08

Total Pages: 367

ISBN-13: 0309448093

DOWNLOAD EBOOK

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.


Multiple Dimensions of Caregiving and Disability

Multiple Dimensions of Caregiving and Disability

Author: Ronda C. Talley

Publisher: Springer Science & Business Media

Published: 2012-06-27

Total Pages: 231

ISBN-13: 1461433843

DOWNLOAD EBOOK

Caring for people with disabilities often becomes an all-encompassing responsibility for one or more family members. To manage the multifaceted demands, caregivers must possess strong multitasking skills, including the ability to assist with daily life tasks; provide emotional support; help with financial affairs; mediate and advocate with health care providers. Maintaining balance within their own lives can become incredibly challenging for caregivers. More often than not, providing care for family members or loved ones occurs at the expense of the caregivers’ well-being. And for caregivers who themselves have disabilities, it further complicates matters. Multiple Dimensions of Caregiving and Disability addresses concerns that have been long familiar to the caregiver population and examines the current state of family care for individuals with disabilities. With a lifespan perspective, this concise reference reviews the literature on specific problems of caregivers and explores which care strategies are effective, promising, or lacking in available resources and support interventions. Contributors also explore the more fluid and subjective aspects of caregiving, such as feelings, spirituality, and family roles. Suggestions for future policy improvements, particularly within the public health sector, are discussed as well. Topics covered include: • Family dynamics and caregiving for people with disabilities. • Parent caregiving of children with disabilities. • Race, ethnicity, socioeconomic status, and caregiving. • Educational, training, and support programs for caregivers. • Emerging technologies to aid caregivers. • Developing partnerships between caregivers and health care providers. Multiple Dimensions of Caregiving and Disability is a must-have resource for researchers, scientist-practitioners, policy makers, and graduate students across such disciplines as clinical psychology, nursing, social work, public health, medicine, and social and education policy.


Helping People with Developmental Disabilities Mourn

Helping People with Developmental Disabilities Mourn

Author: Marc A. Markell

Publisher: Companion Press

Published: 2004-06-01

Total Pages: 98

ISBN-13: 1617220949

DOWNLOAD EBOOK

Frequently, people with developmental disabilities are excluded from bereavement ceremonies when a loved one or friend dies, therefore not receiving the special care needed for comprehending their own feelings of loss. Focusing on creating mourning rituals for special needs people, this guide offers specific rituals and techniques for caregivers to use while helping explain death and dying. With more than 20 examples such as the use of pictures and storytelling or drawing and music, these practical tools can substantially lend to the understanding of grief and sadness for intellectually and developmentally disabled adults and adolescents.


Life Planning for Adults with Developmental Disabilities

Life Planning for Adults with Developmental Disabilities

Author: Judith Greenbaum

Publisher: New Harbinger Publications

Published: 2007-05-01

Total Pages: 214

ISBN-13: 1608825779

DOWNLOAD EBOOK

A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individuals is scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? •Learn effective ways to: Assess a disabled individual's strengths and need for support services •Develop a plan to for building a busy and productive life •Locate good housing and employment opportunities •Gather a supportive team of caregivers Advocate for a disabled individual with community agencies


The Elderly Caregiver

The Elderly Caregiver

Author: Karen A. Roberto

Publisher: SAGE Publications

Published: 1993-08-09

Total Pages: 234

ISBN-13: 1452254230

DOWNLOAD EBOOK

By bringing together contributions from the fields of gerontology and developmental disabilities, the editor of this volume makes an important statement about the need for collaborative and multidisciplinary research to be conducted in this area, and for the developmental disabilities service system and the aging network to work together to support these caregivers and their family members with developmental disabilities. --American Journal on Mental Retardation The shift from institutional to community-based care for individuals with developmental disabilities and their increase in longevity has resulted in more and more elderly serving as primary caregivers for adults with developmental disabilities. The Elderly Caregiver addresses the predominate issues and concerns confronting these older caregivers. By bringing together the empirical work of researchers from a variety of disciplines, this volume provides insight into the physical, psychological, and social needs of this growing segment of the population. Contributors explore the needs of elderly parents caring for adult children with mental retardation, changes in their caregiving activities, the increasing burden of caregiving, and the ordeal of facing their own frailties while planning future out-of-home placement for their children. Additional chapters focus on the needs of caregivers of aging adults with Down syndrome and Alzheimer′s disease. Finally, case management is examined from the perceptions of family members as well as case managers themselves. A concluding chapter draws together the implications for the future directions for practice, policy, and research. Unique in its presentation, The Elderly Caregiver is invaluable to researchers, practitioners and advanced students in aging, health/rehabilitation, social work, and family studies. "Not only does the author provide insight into some of the physical, social, and psychological needs of these [developmentally disabled] adults, she explores certain needs of the elderly parents who are facing their own aging problems. This accessible book is geared for caregivers, providers, family members, and professionals involved with older adults who have developmental disabilities. . . . This book offers highly practical advice of use to a wide variety of readers, including the caregivers, professionals, and health care providers concerned with adults having these disabilities." --Academic Library Book Review "In addition to enlightening the reader with its contemporary knowledge of the field, the text is well organized and includes some of the most impressive empirical work conducted in this area. As well, it provides some good suggestions for future research. . . . The work provides a comprehensive perspective on family caregivers, aging caregivers, and the aging of people with developmental disabilities who are recipients of care. . . . At a time when numerous books on deinstitutionalization, community care of the mentally ill, and the intellectually impaired are appearing on the market, it is a great pleasure to see a book that is well-rounded. . . . I recommend this book as a valuable text for researchers, practitioners, and students of gerontology. Further, it will serve as an invaluable book for caregivers themselves. It has undoubtedly made a significant contribution in the field." --The Canadian Health Psychologist "...This collection fills a significant unmet need, and can be related to other caregiving situations. It is an up-to-date and very readable book, for practitioners and policy makers as well as researchers and educators. Families should also find it useful. ...The topic is a timely example of the need for service integration in our aging society. This collection helps to address their needs and those of their children by applying theory, suggesting additional research, and making specific practice and policy recommendations." --Contemporary Gerontology


Parenting Matters

Parenting Matters

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-21

Total Pages: 525

ISBN-13: 0309388570

DOWNLOAD EBOOK

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.