Special Parent, Special Child

Special Parent, Special Child

Author: Tom Sullivan

Publisher: Tarcher

Published: 1995

Total Pages: 258

ISBN-13: 9780874778304

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In Special Parent, Special Child, Tom Sullivan takes us inside the lives of parents who struggle daily to make a difference in the lives of their children with disabilities. It is a journey of parental hopes and dreams. Of heroism and disappointment. Of success and failure. Of unending trials and unpredictable rewards. From more than two hundred interviews, Sullivan chose six families who dramatically express the wide range of concerns confronting parents of children with disabilities. The parents speak openly and intimately about complex emotions, about working with and fighting against the medical, educational, and social service systems, developing ongoing relationships with professionals, handling the inevitable family repercussions, and maintaining strength and hope throughout as they seek the best life possible for their children. The spectrum of disability in this book - cerebral palsy, blindness, life-threatening illness, deafness, learning disability, and Down syndrome - brings to light an array of issues affecting parents. Even though each family's experience is unique, Special Parent, Special Child shows that there are common bonds and a common ground shared among these parents. They teach that when fate puts us in difficult situations, remarkable depths of courage and devotion arise in response. Their stories are a testimony to the quality and commitment of families throughout this country who are raising children with disabilities. The wisdom these parents share through the author, who is blind, will help all special parents to fulfill their challenging role.


Aching Joy

Aching Joy

Author: Jason Hague

Publisher: NavPress

Published: 2018-10-02

Total Pages: 181

ISBN-13: 1631469428

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When his oldest son was diagnosed with severe autism, pastor Jason Hague found himself trapped, stuck between perpetual sadness and a lower, safer kind of hope. This is the common struggle for those of us walking through the Land of Unanswered Prayer. Life doesn’t look the way we expected, so we seek to protect ourselves from further disappointment. But God has a third path for us, beyond sadness or resignation: the way of aching joy. Christ himself is with us here, beckoning us toward the treasures hidden in the darkness. Aching Joy is an honest psalm of hope for those walking between pain and promise: the aching of a broken world and the beauty of a loving God. In this place, rather than trying to dodge the pain, we choose to feel it all—and to see where Jesus is in the midst of struggle. And because we make that choice, we feel all the good that comes with it, too. This is Jason’s story. This is your story. Come, find your joy within the aching.


Better Than OK

Better Than OK

Author: Kelly Mantoan

Publisher: Our Sunday Visitor

Published: 2021-08-26

Total Pages: 126

ISBN-13: 168192417X

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“Every day is joyful. Every day is a gift. Every day I can thank God from the bottom of my heart.” Kelly Mantoan wasn’t always able to say these words. As a mother of five children, two with profound disabilities, all her energy and attention was focused on her children’s diagnoses and round the clock care. Drained and struggling, Kelly wondered if she had what it took to be the kind of parent they needed. She craved support as a Catholic mother with special-needs children, but felt lost and alone when she tried to rely on secular support groups or well-meaning friends and family who had no experience in the special-needs community. If you can relate to Kelly’s story, Better Than OK: Finding Joy with Special- Needs Children is the hope-filled book you need today. In her down-to-earth way, Kelly shares the steps parents need to take to shift their focus away from the negatives of a diagnosis and towards acceptance, renewed faith, and joy. This book is a must-read for special-needs parents, but I would recommend it to any parent who needs a dose of wisdom and encouragement. — Jen Fulwiler, bestselling author and standup comic Sometimes special-needs parents need practical tips. Sometimes we need prayers. And sometimes we just need to know that we're not alone. ... This engaging new book is a true gift to the parents of kids with special needs. — Bonnie L. Engstrom, mom of eight and author of 61 Minutes to a Miracle This book is a gem for all special-needs parents, by turns funny, poignant, and always honest. It's the book I wish my parents could've had when I was diagnosed with cystic fibrosis in the 90s. — Emily M. DeArdo, author of Living Memento Mori: My Journey Along the Way of the Cross A truly important book for Catholic parents of special-needs children, and for family members, friends, and members of parish communities who want to better understand and more effectively support them. — Kendra Tierney, author of The Catholic All Year Compendium ABOUT THE AUTHOR Kelly Mantoan is the founder of Accepting the Gift, an online apostolate that provides resources and support to Catholic special-needs parents. She also blogs at This Ain’t the Lyceum about homeschooling, special-needs parenting, and Catholic family life. She enjoys creating useful posts and resources for her followers and speaking to groups about how God’s plan for our lives is often much better than anything we can imagine.


A Different Kind of Perfect

A Different Kind of Perfect

Author: Cindy Dowling

Publisher: Shambhala Publications

Published: 2006-09-12

Total Pages: 282

ISBN-13: 0834826100

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Every parent dreams of having a happy, healthy child. What happens when these dreams are shattered by a physical or cognitive disability? A Different Kind of Perfect offers comfort, consolation, and wisdom from parents who have been there—and are finding their way through. The writings collected here are grouped into chapters reflecting the progressive stages of many parents' emotional journeys, starting with grief, denial, and anger and moving towards acceptance, empowerment, laughter, and even joy. Each chapter opens with an introduction by Neil Nicoll, a child and family psychologist who specializes in development disorders.


Parenting Matters

Parenting Matters

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2016-11-21

Total Pages: 525

ISBN-13: 0309388570

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Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.


Grown and Flown

Grown and Flown

Author: Lisa Heffernan

Publisher: Flatiron Books

Published: 2019-09-03

Total Pages: 352

ISBN-13: 1250188954

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PARENTING NEVER ENDS. From the founders of the #1 site for parents of teens and young adults comes an essential guide for building strong relationships with your teens and preparing them to successfully launch into adulthood The high school and college years: an extended roller coaster of academics, friends, first loves, first break-ups, driver’s ed, jobs, and everything in between. Kids are constantly changing and how we parent them must change, too. But how do we stay close as a family as our lives move apart? Enter the co-founders of Grown and Flown, Lisa Heffernan and Mary Dell Harrington. In the midst of guiding their own kids through this transition, they launched what has become the largest website and online community for parents of fifteen to twenty-five year olds. Now they’ve compiled new takeaways and fresh insights from all that they’ve learned into this handy, must-have guide. Grown and Flown is a one-stop resource for parenting teenagers, leading up to—and through—high school and those first years of independence. It covers everything from the monumental (how to let your kids go) to the mundane (how to shop for a dorm room). Organized by topic—such as academics, anxiety and mental health, college life—it features a combination of stories, advice from professionals, and practical sidebars. Consider this your parenting lifeline: an easy-to-use manual that offers support and perspective. Grown and Flown is required reading for anyone looking to raise an adult with whom you have an enduring, profound connection.


Authentically Addie

Authentically Addie

Author: Stephanie Wolfe

Publisher:

Published: 2021-05-06

Total Pages: 42

ISBN-13: 9781955077149

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Meet Addie!-A very special kid, with many characteristics that make her particularly unique. No matter what, Addie is always ready for an adventure-especially when she gets to discover what makes others different too. Follow along with Addie on her trip to the Zoo, where she meets amazing animal friends and learns about their many disabilities. In this ultra-inclusive series, author Stephanie Wolfe, with the help of her daughter, Addie, aims to help parents open the door to conversations with their children about disabilities and normalize the ability for kids to explore their curiosity and ask kind questions about people they don't understand.


The Special Needs Parent Handbook

The Special Needs Parent Handbook

Author: Jonathan Singer

Publisher: AuthorHouse

Published: 2010

Total Pages: 98

ISBN-13: 1452074461

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"...is a compilation of life lessons learned by the parents of a child with significant special needs. The book shares critical strategies and practical advice to help you navigate the maze of financial, educational and emotional decisions you will face each day as a parent or caregiver. This handbook is designed to help you focus on what is most important in your life as you deal with the constant challenges. You will learn how to survive and even thrive while providing the best for your child."--P. [4] of cover.


Hope When It Hurts

Hope When It Hurts

Author: Sarah Walton

Publisher: The Good Book Company

Published: 2017-04-01

Total Pages: 256

ISBN-13: 1784980749

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Thirty biblical meditations for women that offer hope in times of suffering. Thirty biblical meditations for women that offer hope in times of suffering. Hurt is real. But so is hope. Kristen and Sarah have walked through, and are walking in, difficult times. So these thirty biblical reflections are full of realism about the hurts of life-yet overwhelmingly full of hope about the God who gives life. This book will gently encourage and greatly help any woman who is struggling with suffering-whether physical, emotional or psychological, and whether for a season or for longer. It is a book to buy for yourself, or to buy for a member of your church or friend. For anyone who is hurting, this book will give hope, not just for life beyond the suffering, but for life in the suffering. Each chapter contains a biblical reflection, with questions and prayers, and a space for journaling.


Special Education

Special Education

Author: Michael T. Bailey

Publisher: Publishamerica Incorporated

Published: 2006-03

Total Pages: 253

ISBN-13: 9781424127955

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Over six million American families are involved in special education, and the numbers are growing. The complex web of laws, regulations, personalities and stresses, combined with anxiety over raising a child with a disability, have made special education advocacy an impenetrable maze to many parents. This book presents the complexities of the process in a simple-to-understand way and offers practical tips, checklists and strategies on how to make the system work to insure the educational success of all children.