Introduction: the consequences of newborn screening -- The expansion of newborn screening -- Patients-in-waiting -- Shifting disease ontologies -- Is my baby normal? -- The limits of prevention -- Does expanded newborn screening save lives? -- Conclusion: the future of expanded newborn screening
“A mosaic mystery told in vignettes, cliffhangers, curious asides, and some surreal plot twists as Raffel investigates the secrets of the man who changed infant care in America.”—NPR, 2018's Great Reads What kind of doctor puts his patients on display? This is the spellbinding tale of a mysterious Coney Island doctor who revolutionized neonatal care more than one hundred years ago and saved some seven thousand babies. Dr. Martin Couney's story is a kaleidoscopic ride through the intersection of ebullient entrepreneurship, enlightened pediatric care, and the wild culture of world's fairs at the beginning of the American Century. As Dawn Raffel recounts, Dr. Couney used incubators and careful nursing to keep previously doomed infants alive, while displaying these babies alongside sword swallowers, bearded ladies, and burlesque shows at Coney Island, Atlantic City, and venues across the nation. How this turn-of-the-twentieth-century émigré became the savior to families with premature infants—known then as “weaklings”—as he ignored the scorn of the medical establishment and fought the rising popularity of eugenics is one of the most astounding stories of modern medicine. Dr. Couney, for all his entrepreneurial gusto, is a surprisingly appealing character, someone who genuinely cared for the well-being of his tiny patients. But he had something to hide... Drawing on historical documents, original reportage, and interviews with surviving patients, Dawn Raffel tells the marvelously eccentric story of Couney's mysterious carnival career, his larger-than-life personality, and his unprecedented success as the savior of the fragile wonders that are tiny, tiny babies. A New York Times Book Review New & Noteworthy Title A Real Simple Best Book of 2018 Christopher Award-winner
The Book That Launched an International Movement Fans of The Anxious Generation will adore Last Child in the Woods, Richard Louv's groundbreaking New York Times bestseller. “An absolute must-read for parents.” —The Boston Globe “It rivals Rachel Carson’s Silent Spring.” —The Cincinnati Enquirer “I like to play indoors better ’cause that’s where all the electrical outlets are,” reports a fourth grader. But it’s not only computers, television, and video games that are keeping kids inside. It’s also their parents’ fears of traffic, strangers, Lyme disease, and West Nile virus; their schools’ emphasis on more and more homework; their structured schedules; and their lack of access to natural areas. Local governments, neighborhood associations, and even organizations devoted to the outdoors are placing legal and regulatory constraints on many wild spaces, sometimes making natural play a crime. As children’s connections to nature diminish and the social, psychological, and spiritual implications become apparent, new research shows that nature can offer powerful therapy for such maladies as depression, obesity, and attention deficit disorder. Environment-based education dramatically improves standardized test scores and grade-point averages and develops skills in problem solving, critical thinking, and decision making. Anecdotal evidence strongly suggests that childhood experiences in nature stimulate creativity. In Last Child in the Woods, Louv talks with parents, children, teachers, scientists, religious leaders, child-development researchers, and environmentalists who recognize the threat and offer solutions. Louv shows us an alternative future, one in which parents help their kids experience the natural world more deeply—and find the joy of family connectedness in the process. Included in this edition: A Field Guide with 100 Practical Actions We Can Take Discussion Points for Book Groups, Classrooms, and Communities Additional Notes by the Author New and Updated Research from the U.S. and Abroad
"Murphy’s dramatic nonfiction narrative recounting of one of the first open heart surgeries ever performed is not to be missed." —School Library Journal (starred review) In 1944, a groundbreaking operation repaired the congenital heart defect known as blue baby syndrome. The operation’s success brought the surgeon Alfred Blalock international fame and paved the way for open-heart surgery. But the technique had been painstakingly developed by Vivien Thomas, Blalock’s African American lab assistant, who stood behind Blalock in the operating room to give him step-by-step instructions. The stories of this medical and social breakthrough and the lives of Thomas, Blalock, and their colleague Dr. Helen Taussig are intertwined in this compelling nonfiction narrative. Winner, Notable Books for a Global Society * Horn Book Fanfare List * A Booklist Best Young Adult Book
Perfect for expecting parents who want to provide a soothing home for the newest member of their family, The Happiest Baby on the Block, the national bestseller by respected pediatrician and child development expert Dr. Harvey Karp, is a revolutionary method for calming a crying infant and promoting healthy sleep from day one. In perhaps the most important parenting book of the decade, Dr. Harvey Karp reveals an extraordinary treasure sought by parents for centuries --an automatic “off-switch” for their baby’s crying. No wonder pediatricians across the country are praising him and thousands of Los Angeles parents, from working moms to superstars like Madonna and Pierce Brosnan, have turned to him to learn the secrets for making babies happy. Never again will parents have to stand by helpless and frazzled while their poor baby cries and cries. Dr. Karp has found there IS a remedy for colic. “I share with parents techniques known only to the most gifted baby soothers throughout history …and I explain exactly how they work.” In a innovative and thought-provoking reevaluation of early infancy, Dr. Karp blends modern science and ancient wisdom to prove that newborns are not fully ready for the world when they are born. Through his research and experience, he has developed four basic principles that are crucial for understanding babies as well as improving their sleep and soothing their senses: ·The Missing Fourth Trimester: as odd as it may sound, one of the main reasons babies cry is because they are born three months too soon. ·The Calming Reflex: the automatic reset switch to stop crying of any baby in the first few months of life. ·The 5 “S’s”: the simple steps (swaddling, side/stomach position, shushing, swinging and sucking) that trigger the calming reflex. For centuries, parents have tried these methods only to fail because, as with a knee reflex, the calming reflex only works when it is triggered in precisely the right way. Unlike other books that merely list these techniques Dr. Karp teaches parents exactly how to do them, to guide cranky infants to calm and easy babies to serenity in minutes…and help them sleep longer too. ·The Cuddle Cure: the perfect mix the 5 “S’s” that can soothe even the most colicky of infants. In the book, Dr. Karp also explains: What is colic? Why do most babies get much more upset in the evening? How can a parent calm a baby--in mere minutes? Can babies be spoiled? When should a parent of a crying baby call the doctor? How can a parent get their baby to sleep a few hours longer? Even the most loving moms and dads sometimes feel pushed to the breaking point by their infant’s persistent cries. Coming to the rescue, however, Dr. Karp places in the hands of parents, grandparents, and all childcare givers the tools they need to be able to calm their babies almost as easily as…turning off a light. From the Hardcover edition.
Placing babies' lives at the center of her narrative, historian Janet Golden analyzes the dramatic transformations in the lives of American babies during the twentieth century. She examines how babies shaped American society and culture and led their families into the modern world to become more accepting of scientific medicine, active consumers, open to new theories of human psychological development, and welcoming of government advice and programs. Importantly Golden also connects the reduction in infant mortality to the increasing privatization of American lives. She also examines the influence of cultural traditions and religious practices upon the diversity of infant lives, exploring the ways class, race, region, gender, and community shaped life in the nursery and household.
The delivery of high quality and equitable care for both mothers and newborns is complex and requires efforts across many sectors. The United States spends more on childbirth than any other country in the world, yet outcomes are worse than other high-resource countries, and even worse for Black and Native American women. There are a variety of factors that influence childbirth, including social determinants such as income, educational levels, access to care, financing, transportation, structural racism and geographic variability in birth settings. It is important to reevaluate the United States' approach to maternal and newborn care through the lens of these factors across multiple disciplines. Birth Settings in America: Outcomes, Quality, Access, and Choice reviews and evaluates maternal and newborn care in the United States, the epidemiology of social and clinical risks in pregnancy and childbirth, birth settings research, and access to and choice of birth settings.
“The important . . . largely unknown story of American adoption of Korean children since the Korean War . . . with remarkably extensive research and great verve.” —Charles K. Armstrong, Columbia University Arissa Oh argues that international adoption began in the aftermath of the Korean War. First established as an emergency measure through which to evacuate mixed-race “GI babies,” it became a mechanism through which the Korean government exported its unwanted children: the poor, the disabled, or those lacking Korean fathers. Focusing on the legal, social, and political systems at work, To Save the Children of Korea shows how the growth of Korean adoption from the 1950s to the 1980s occurred within the context of the neocolonial US-Korea relationship, and was facilitated by crucial congruencies in American and Korean racial thought, government policies, and nationalisms. Korean adoption served as a kind of template as international adoption began, in the late 1960s, to expand to new sending and receiving countries. Ultimately, Oh demonstrates that although Korea was not the first place that Americans adopted from internationally, it was the place where organized, systematic international adoption was born. “Absolutely fascinating.” —Giulia Miller, Times Higher Education “ Gracefully written. . . . Oh shows us how domestic politics and desires are intertwined with geopolitical relationships and aims.” —Naoko Shibusawa, Brown University “Poignant, wide-ranging analysis and research.” —Kevin Y. Kim, Canadian Journal of History “Illuminates how the spheres of ‘public’ and ‘private,’ ‘domestic’ and ‘political’ are deeply imbricated and complicate American ideologies about family, nation, and race.” —Kira A. Donnell, Adoption & Culture