The Ethics of Biomedical Big Data

The Ethics of Biomedical Big Data

Author: Brent Daniel Mittelstadt

Publisher: Springer

Published: 2016-08-03

Total Pages: 478

ISBN-13: 3319335251

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This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.


Privacy, Big Data, and the Public Good

Privacy, Big Data, and the Public Good

Author: Julia Lane

Publisher: Cambridge University Press

Published: 2014-06-09

Total Pages: 343

ISBN-13: 1107067359

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Data access is essential for serving the public good. This book provides new frameworks to address the resultant privacy issues.


Rethinking Informed Consent in Bioethics

Rethinking Informed Consent in Bioethics

Author: Neil C. Manson

Publisher: Cambridge University Press

Published: 2007-03-29

Total Pages: 15

ISBN-13: 1139463209

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Informed consent is a central topic in contemporary biomedical ethics. Yet attempts to set defensible and feasible standards for consenting have led to persistent difficulties. In Rethinking Informed Consent in Bioethics, first published in 2007, Neil Manson and Onora O'Neill set debates about informed consent in medicine and research in a fresh light. They show why informed consent cannot be fully specific or fully explicit, and why more specific consent is not always ethically better. They argue that consent needs distinctive communicative transactions, by which other obligations, prohibitions, and rights can be waived or set aside in controlled and specific ways. Their book offers a coherent, wide-ranging and practical account of the role of consent in biomedicine which will be valuable to readers working in a range of areas in bioethics, medicine and law.


Codes of Ethics and Ethical Guidelines

Codes of Ethics and Ethical Guidelines

Author: Kelly Laas

Publisher: Springer Nature

Published: 2022-01-03

Total Pages: 258

ISBN-13: 3030862011

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This book investigates how ethics generally precedes legal regulation, and looks at how changes in codes of ethics represent an unparalleled window into the research, innovation, and emerging technologies they seek to regulate. It provides case studies from the fields of engineering, science, medicine and social science showing how professional codes of ethics often predate regulation and help shape the ethical use of emerging technologies and professional practice. Changes in professional ethics are the crystallization of ongoing conversation in scientific and professional fields about how justice, privacy, safety and human rights should be realized in practice where the law is currently silent. This book is a significant addition to this area of practical and professional ethics and is of particular interest to practitioners, scholars, and students interested in the areas of practical and applied ethics.


Bit by Bit

Bit by Bit

Author: Matthew J. Salganik

Publisher: Princeton University Press

Published: 2019-08-06

Total Pages: 448

ISBN-13: 0691196109

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This essential guide to doing social research in this fast-evolving digital age explains how the digital revolution is transforming the way social scientists observe behavior, ask questions, run experiments, and engage in mass collaborations.


The Oxford Handbook of Networked Communication

The Oxford Handbook of Networked Communication

Author: Brooke Foucault Welles

Publisher: Oxford University Press

Published: 2020-01-24

Total Pages: 676

ISBN-13: 0190460520

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Communication technologies, including the internet, social media, and countless online applications create the infrastructure and interface through which many of our interactions take place today. This form of networked communication creates new questions about how we establish relationships, engage in public, build a sense of identity, and delimit the private domain. The ubiquitous adoption of new technologies has also produced, as a byproduct, new ways of observing the world: many of our interactions now leave a digital trail that, if followed, can help us unravel the rhythms of social life and the complexity of the world we inhabit--and thus help us reconstruct the logic of social order and change. The analysis of digital data requires partnerships across disciplinary boundaries that--although on the rise--are still uncommon. Social scientists and computer scientists have never been closer in their goals of trying to understand communication dynamics, but there are not many venues where they can engage in an open exchange of methods and theoretical insights. This handbook brings together scholars across the social and technological sciences to lay the foundations of communication research in the networked age, and to provide a canon of how research should be conducted in the digital era. The contributors highlight the main theories currently guiding their research in digital communication, and discuss state-of-the-art methodological tools, including automated text analysis, the analysis of networks, and the use of natural experiments in virtual environments. Following a general introduction, the handbook covers network and information flow, communication and organizational dynamics, interactions and social capital, mobility and space, political communication and behavior, and the ethics of digital research.


Privacy, Big Data, and the Public Good

Privacy, Big Data, and the Public Good

Author: Julia Lane

Publisher: Cambridge University Press

Published: 2014-06-09

Total Pages: 343

ISBN-13: 1316094456

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Massive amounts of data on human beings can now be analyzed. Pragmatic purposes abound, including selling goods and services, winning political campaigns, and identifying possible terrorists. Yet 'big data' can also be harnessed to serve the public good: scientists can use big data to do research that improves the lives of human beings, improves government services, and reduces taxpayer costs. In order to achieve this goal, researchers must have access to this data - raising important privacy questions. What are the ethical and legal requirements? What are the rules of engagement? What are the best ways to provide access while also protecting confidentiality? Are there reasonable mechanisms to compensate citizens for privacy loss? The goal of this book is to answer some of these questions. The book's authors paint an intellectual landscape that includes legal, economic, and statistical frameworks. The authors also identify new practical approaches that simultaneously maximize the utility of data access while minimizing information risk.


Rethinking Childhood

Rethinking Childhood

Author: Peter B. Pufall

Publisher: Rutgers University Press

Published: 2004

Total Pages: 316

ISBN-13: 9780813533650

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Being a child in American society can be problematic. In "Rethinking Childhood," 20 contributors from such disciplines as anthropology, government, education, and religion provide a multidisciplinary view of childhood by listening and understanding the ways children shape their own futures.