Birth Defects Surveillance Training
Birth Defects Surveillance Training

Author: World Health Organization

Publisher: World Health Organization

Published: 2016-05-31

Total Pages: 162

ISBN-13: 9241549289

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The goal of this course is to provide participants with the foundational skills needed to begin the development implementation and ongoing improvement of a congenital anomalies surveillance programme in particular for countries with limited resources. It focuses on the methodology needed to develop either population-based or hospitalbased surveillance programmes. A set of congenital anomalies will be used as examples throughout this course. The specific examples used are typically severe enough that they would probably be captured within the first few days after birth have a significant public health impact and for some of them have the potential for primary prevention. Target audience This course is designed for individuals who are directly involved in the development implementation and daily activities related to congenital anomalies surveillance programmes in their countries and who will directly teach others. Learning objectives By the end of this course participants will be able to: 1. describe how to use data for the development of prevention campaigns and policy/programme evaluation; 2. describe how to best present data to policy-makers; 3. identify selected major external congenital anomalies for monitoring; 4. describe the tools needed to ascertain and code congenital anomalies; 5. describe the processes for managing and analysing data; 6. demonstrate how to calculate the birth prevalence of congenital anomalies.

Reducing Birth Defects
Reducing Birth Defects

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2003-10-27

Total Pages: 270

ISBN-13: 0309166837

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Each year more than 4 million children are born with birth defects. This book highlights the unprecedented opportunity to improve the lives of children and families in developing countries by preventing some birth defects and reducing the consequences of others. A number of developing countries with more comprehensive health care systems are making significant progress in the prevention and care of birth defects. In many other developing countries, however, policymakers have limited knowledge of the negative impact of birth defects and are largely unaware of the affordable and effective interventions available to reduce the impact of certain conditions. Reducing Birth Defects: Meeting the Challenge in the Developing World includes descriptions of successful programs and presents a plan of action to address critical gaps in the understanding, prevention, and treatment of birth defects in developing countries. This study also recommends capacity building, priority research, and institutional and global efforts to reduce the incidence and impact of birth defects in developing countries.

Guidelines for Conducting Birth Defects Surveillance
Guidelines for Conducting Birth Defects Surveillance

Author: Lowell E. Sever

Publisher:

Published: 2004

Total Pages:

ISBN-13:

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"In January of 1999, the National Birth Defects Prevention Network (NBDPN) established a Surveillance Guidelines and Standards Committee (SGSC) in order to develop and promote the use of standards and guidelines for birth defects surveillance programs in the United States. This set of guidelines is designed to serve as an important first step in the documentation of this process and as the vehicle for dissemination of the committee's findings. The Guidelines for Conducting Birth Defects Surveillance (henceforth referred to as The Surveillance Guidelines) were developed with three major long-term objectives in mind: To improve the quality of state birth defects surveillance data, including accuracy, comparability, completeness, and timeliness; To enhance the utility of state birth defects surveillance data for research on the distribution and etiology of birth defects; To encourage and promote the use of state birth defects surveillance data for the purposes of linking affected children with services and evaluation of those services. The technical guidelines that make up this document provide a way of improving the quality of birth defects surveillance data, which in turn enhances their use in support of the latter two objectives. Fundamental to quality is ensuring that procedures for all aspects of data definition, collection, management, and analysis are established and followed. Because state-based surveillance systems operate with different objectives and data needs, it is clear that, with respect to procedures and standards, 'one size does not fit all.' It is also clear, however, that common guidelines can provide a basis for the development of system-specific operating procedures and supporting manuals."--Page i.