Pathways Through Care at the End of Life
Pathways Through Care at the End of Life

Author: Anita Christianne Hayes

Publisher: Jessica Kingsley Pub

Published: 2013

Total Pages: 223

ISBN-13: 9781849053648

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As someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.

Pathways through Care at the End of Life
Pathways through Care at the End of Life

Author: Claire Henry

Publisher: Jessica Kingsley Publishers

Published: 2013-11-21

Total Pages: 226

ISBN-13: 0857007165

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As someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.

Care of the Dying
Care of the Dying

Author: John Ellershaw

Publisher: Oxford University Press, USA

Published: 2011

Total Pages: 283

ISBN-13: 0199550832

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This title provides professionals who care for the dying with a user-friendly guide on how to render the best possible treatment.

When Children Die
When Children Die

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2003-02-09

Total Pages: 713

ISBN-13: 0309084377

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The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Dying to Know
Dying to Know

Author: Tani Bahti

Publisher: Pathways

Published: 2006

Total Pages: 0

ISBN-13: 9780978957308

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Written directly to the person facing the end of life, it compassionately but frankly clarifies the mystery of dying by describing the physical, psychosocial and spiritual changes that may be encountered and how best to understand and manage them. By helping the reader overcome fears and misconceptions, it provides comfort, empowerment and understanding to everyone involved at this important time of life. Audio version also available with book purchase.

Improving Healthcare Quality in Europe Characteristics, Effectiveness and Implementation of Different Strategies
Improving Healthcare Quality in Europe Characteristics, Effectiveness and Implementation of Different Strategies

Author: OECD

Publisher: OECD Publishing

Published: 2019-10-17

Total Pages: 447

ISBN-13: 9264805907

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This volume, developed by the Observatory together with OECD, provides an overall conceptual framework for understanding and applying strategies aimed at improving quality of care. Crucially, it summarizes available evidence on different quality strategies and provides recommendations for their implementation. This book is intended to help policy-makers to understand concepts of quality and to support them to evaluate single strategies and combinations of strategies.

Challenges to the Global Issue of End of Life Care
Challenges to the Global Issue of End of Life Care

Author: Pierre Mallia

Publisher: Springer Nature

Published: 2022-02-10

Total Pages: 244

ISBN-13: 3030863867

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This book addresses the problems faced by people and hospitals dedicated to providing optimal end-of-life care and asks whether ethicists can function as experts on this subject. Though ethics consultation is a growing practice in medical contexts, difficult questions surrounding the role of ethicists in professional decision-making remain. The chapters in this book examine the nature and plausibility of moral expertise, the relationship between character and expertise, the nature and limits of moral authority, the question of how one might become a moral expert, and the trustworthiness of moral testimony. This volume not only engages with the growing literature in the debate on end-of-life care but also offers new perspectives from both academics and practitioners. Such perspectives include ways on how to get together to optimize end-of-life care. This book is of particular interest to bioethicists, clinicians, ethics committees, students of social epistemology, patient groups, and institutions, especially religious, who may not be sufficiently imparting the social teachings of end-of-life care. It also shows how they are indeed stakeholders for what is today called ‘a good death’. These new essays advance discussions and provide practical information on dying as well as acting as a guide to those interested in actively effecting change.

Approaching Death
Approaching Death

Author: Committee on Care at the End of Life

Publisher: National Academies Press

Published: 1997-10-30

Total Pages: 457

ISBN-13: 0309518253

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When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

End of Life Care
End of Life Care

Author: Great Britain. National Audit Office

Publisher: The Stationery Office

Published: 2008

Total Pages: 64

ISBN-13: 9780102954432

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This National Audit Office report finds that some people approaching the end of their life receive a high quality service, but that there is room for improved coordination between health and social care services in planning and delivering end of life care. The provision of end of life care is becoming increasingly complex, with people living longer and the incidence of frailty and multiple conditions in older people rising. Information on peoples' wishes is often not captured or shared and a lack of services to support them at home may lead to unplanned and unwanted admissions to hospital. In 2006-07, estimated expenditure on specialist palliative care varied considerably between PCTs from £154 to £1,684 per person who died. While there are no complete data on the total cost of end of life care, NAO estimate the cost of caring for the 27 per cent of people who die from cancer is £1.8 billion in the last year of their life. The majority of people approaching the end of their life wish to be cared for outside of hospital, so reducing the amount of time they spend there unnecessarily could make resources available to support these people more effectively in their preferred place of care. Frontline staff often lack training in delivering basic end of life care. Only 29 per cent of doctors and 18 per cent of nurses received pre-registration training in end of life care, and there is a lack of formal training for staff working in care homes. Positive experiences of care were often linked to being treated by staff who understood, appreciated and empathised with the end of life situation.

Older Citizens and End-of-Life Care
Older Citizens and End-of-Life Care

Author: Malcolm Payne

Publisher: Routledge

Published: 2017-02-22

Total Pages: 364

ISBN-13: 1317165845

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Older people are, like younger people, citizens in the communities of the nations in which they live. This book sees ageing as a life journey that incorporates a process of citizening, in which people build their identity as part of their family and community. But the social experience of illness, frailty, disability and reaching the end of life may de-citizen older people by devaluing the social identity that comes from continuing social engagement. We de-citizen older people by emphasizing dependence on services and their cost to public expenditure instead of valuing the interdependence of participation and mutual respect. This book argues that older people retain full citizenship for the whole of their lives, up to the moment of death; but what does this mean for health and social care? In this groundbreaking book, Malcolm Payne argues that social work with older people must build re-citizening practice strategies to value both the common and the special aspects of the citizenship of older people. Current models of social care and social work create dependency, rather than relying on values of participative interdependence. The failure to recognize the end of life as a crucial element in all social care and social work for older people means that the lessons learned in providing palliative and end-of-life care in healthcare have not been transferred to social care, and the priorities of end-of-life care have not been adequately encompassed in social work with older people.