They Never Want to Tell You

They Never Want to Tell You

Author: David J. Bearison

Publisher:

Published: 1991

Total Pages: 216

ISBN-13:

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They Never Want to Tell You transcends the negative metaphors and clichés of life-threatening disease, to give voice to the culture of cancer and to the behavior and attitudes of those who function within that culture-as patients, medical professionals, family, and friends. In these extraordinary narratives, children coping with cancer reveal their most personal experiences, and they speak with a candor that breaks through the cultural taboos ostensibly designed to protect us from the disease. The rich, compassionate, and honest words of these children give expression to concerns that adults who are struggling with cancer find nearly impossible to articulate. Free of social conventions and cognitive distortions, each story presents a powerful variation on the theme of survival in the face of the continuing uncertainties of life-threatening disease. Bearison, a developmental psychologist and psychotherapist, is keenly aware of the psychological impact of cancer on children, particularly as survival times for childhood cancers lengthen and complex treatments intensify concern about the emotional-not merely physical-well-being of children. Bearison has culled from scores of interviews the most salient moments that represent these individual children in their shared struggle with disease. In these pages the children express their wildest hopes and worst fears about cancer. They speak of the absolute necessity of full disclosure, the problems of relating to friends and family, the difficult adjustment to hair loss, their feelings of punishment, grief, and spirituality, and many other issues. In the course of these stories the children reveal not only their will to survive and their extraordinary capacity to understand themselves and their condition, but their altruistic desire to share that understanding with other children as well as with adults who have cancer. "They Never Want to Tell You" is rich and rewarding reading for cancer patients, their families, and health-care professionals alike.


Children with Cancer

Children with Cancer

Author: Jan van Eys

Publisher: Springer Science & Business Media

Published: 2012-12-06

Total Pages: 175

ISBN-13: 9401166986

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Probably no two topics have generated more workshops, con ferences, and lectures in medicine and education than the chron ically ill child and the mandate of Public Law 94-142. In spite of the numerous examinations of these topics there has never been a serious dialogue between medical professionals and educators with the child as the focus. These proceedings represent such a unique event. The paradigm of the medically exceptional child is the child with cancer, a child with a life-threatening illness, but also a child with a high probability of being cured of this acute disease. Such a cure is purchased at a cost of late sequelae of disease and treat ment alike. There is prejudice against this child. There is overt physical exceptionality. Therefore, the Fifth Annual Mental Health Conference of The University of Texas System Cancer Center, Department of Pediatrics, was a stimulus to generate this dialogue. When two nationally recognized giants in their respective fields, The University of Texas System Cancer Center and the Houston Independent School District, address a problem, the result transcends local concern. This conference goes far beyond the problem of the child with cancer to deal with all medically exceptional children. The focus on the needs and expectations for the child makes this workshop universal in application.


When a Parent Has Cancer

When a Parent Has Cancer

Author: Wendy Schlessel Harpham

Publisher: Harper Collins

Published: 2011-03-22

Total Pages: 295

ISBN-13: 0062032151

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At some point in our lives, many of us will face the crisis of an unexpected illness. For parents, the fear, anxiety and confusion resulting from a cancer diagnosis can be particularly devastating. When A Parent Has Cancer is a book for families written from the heart of experience. A mother, physician, and cancer survivor, Dr Wendy Harpham offers clear, direct, and sympathetic advice for parents challenged with the task of raising normal, healthy children while they struggle with a potentially life–threatening disease. Dr Harpham lays the groundwork of her book with specific plans for helping children through the upheaval of a parent's diagnosis and treatment, remission and recovery, and if necessary, confronting the possibility of death. She emphasises the importance of being honest with children about the gravity of the illness, while assuring them that their basic needs will always be met. Included is Becky and the Worry Cup, an illustrated children's book that tells the story of a seven–year–old girl's experiences with her mother's cancer.


Cancer in Our Family

Cancer in Our Family

Author: Sue P. Heiney

Publisher:

Published: 2013

Total Pages: 0

ISBN-13: 9780944235959

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Explains to parents how to talk to children to help them cope when their mother or father is diagnosed with cancer, in a book that also has an illustrated activities section.


Children With Cancer

Children With Cancer

Author: Christine Eiser

Publisher: Routledge

Published: 2004-04-12

Total Pages: 591

ISBN-13: 1135659699

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Cancer is a very rare disease in children. There have been impressive gains in survival in recent years, and these have been achieved through the use of chemotherapy and national and international clinical trials. The diagnosis of cancer in a child imposes considerable stress on the whole family. In the immediate time after diagnosis, parents must learn about the disease and its treatment, explain what is happening to the child, and make arrangements for the care of other children in the family. For the child, treatment is associated with many side effects depending on the specific drugs used. In addition, the child is prone to infection and therefore is likely to miss a lot of school and other activities. For all these reasons, physicians and families have become aware that cancer has huge implications for the quality of the child's life. This book is an attempt to describe how quality of life is affected at different stages of the disease process. Comprehensive reviews are provided of the impact on the child's physical activity, social life, and school and educational achievements. Special consideration is given to children with leukemia (one of the more common cancers) and brain tumors. Cancer does not just affect the child but every member of the family. Consequently there is coverage of the effects on parents and also healthy brothers and sisters. To the extent that improvements in survival have been achieved by national and international collaboration between clinicians, it is concluded that efforts to improve the quality of these children's lives is dependent on collaboration between clinicians, nurses, and behavioral scientists at national and international levels. This book should provide an impetus for such collaboration.


I Wish My Kids Had Cancer

I Wish My Kids Had Cancer

Author: Michael Alan

Publisher: Michael Alan

Published: 2008-10

Total Pages: 118

ISBN-13: 1606720708

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I Wish My Kids Had Cancer is a fatheras gripping, real glimpse of his familyas struggle to survive with two children with Autism. The book intimately, honestly, and powerfully, addresses the emotional, social, financial, political and medical aspects of a family fighting for their very existence. Learn about the struggle, the epidemic and Help Families In Need! Support Autism Through Song! Download the song aState of Emergencya by world-renowned recording artist Sara Hickman. ALL Proceeds Donated to help Families with Autism! Visit www.iwishmykidshadcancer.com to download or visit www.sarahickman.com to download this powerful, emotionally charged song written in response to this book. Encourage others to listen and download! Help provide hope for those with Autism!


My Parent Has Cancer and It Really Sucks

My Parent Has Cancer and It Really Sucks

Author: Marc Silver

Publisher: Sourcebooks, Inc.

Published: 2013-03-05

Total Pages: 221

ISBN-13: 1402273088

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Let's face it, cancer sucks. This book provides real-life advice from real-life teens designed to help teens live with a parent who is fighting cancer. One million American teenagers live with a parent who is fighting cancer. It's a hard blow for those already navigating high school, preparing for college, and becoming increasingly independent. Author Maya Silver was 15 when her mom was diagnosed with breast cancer in 2001. She and her dad, Marc, have combined their family's personal experience with advice from dozens of medical professionals and real stories from 100 teens—all going through the same thing Maya did. The topic of cancer can be difficult to approach, but in a highly designed, engaging style, this book gives practical guidance that includes: How to talk about the diagnosis (and what does diagnosis even mean, anyway?) The best outlets for stress (punching a wall is not a great one, but should it happen, there are instructions for a patch job) How to deal with friends (especially one the ones with 'pity eyes') Whether to tell the teachers and guidance counselors and what they should know (how not to get embarrassed in class) What happens in a therapy session and how to find a support group if you want one A special section for parents also gives tips on strategies for sharing the news and explaining cancer to a child, making sure your child doesn't become the parent, what to do if the outlook is grim, and tips for how to live life after cancer. My Parent Has Cancer and It Really Sucks allows teens to see that they are not alone. That no matter how rough things get, they will get through this difficult time. That everything they're feeling is ok. Essays from Gilda Radner's "Gilda's Club" annual contest are an especially poignant and moving testimony of how other teens dealt with their family's situation. Praise for My Parent Has Cancer and It Really Sucks: "Wisely crafted into a wonderfully warm, engaging and informative book that reads like a chat with a group of friends with helpful advice from the experts." —Paula K. Rauch MD, Director of the Marjorie E. Korff Parenting At a Challenging Time Program "A must read for parents, kids, teachers and medical staff who know anyone with cancer. You will learn something on every page." —Anna Gottlieb, MPA, Founder and CEO Gilda's Club Seattle "This book is a 'must have' for oncologists, cancer treatment centers and families with teenagers." —Kathleen McCue, MA, LSW, CCLS, Director of the Children's Program at The Gathering Place, Cleveland, OH "My Parent Has Cancer and It Really Sucks provides a much-needed toolkit for teens coping with a parent's cancer." —Jane Saccaro, CEO of Camp Kesem, a camp for children who have a parent with cancer


Kids' Words When a Parent Has Cancer

Kids' Words When a Parent Has Cancer

Author: Kids Alive

Publisher: Createspace Independent Pub

Published: 2014-12-04

Total Pages: 38

ISBN-13: 9781502506948

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When you learn a parent has cancer, it's easy to feel alone, with no one capable of understanding your fears, worries, and anger. The children of the cancer support group Kids Alive! have been where you are now. They've felt the anger, the fear, and the guilt that cancer causes. InKids' Words When a Parent Has Cancer, they share their experiences with you. In these pages, you'll find the answers you need to cope with a family member's cancer diagnosis. The kids, ages six to seventeen, talk about when they discovered their parent had cancer and what life is like during treatment. They share their feelings and how they expressed their pain. Most important, their words can help you discover what you can do to help yourself—and your family—cope during and after cancer treatment. Illustrated with artwork from the Kids Alive! program, Kids' Words When a Parent Has Cancer also offers advice to parents on what children need to know about cancer and how to handle any potential difficulties. The true voice of the book, however, belongs to the kids, who want other children to know that they understand what they're going through and are not alone—others have been here before and want to help.


When Your Mom Has Cancer

When Your Mom Has Cancer

Author: Maryann Makekau

Publisher: Graphic Design 2030 North Studio

Published: 2010-01-01

Total Pages: 42

ISBN-13: 9780982660164

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Attempts to explain to a young child what cancer is and what is happening while mom is being treated.