Models and Strategies to Integrate Palliative Care Principles into Care for People with Serious Illness
Models and Strategies to Integrate Palliative Care Principles into Care for People with Serious Illness

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2018-03-28

Total Pages: 103

ISBN-13: 0309466113

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Palliative care is the interdisciplinary specialty focused on improving quality of life for people with serious illness and their families. This interdisciplinary care is provided by doctors, nurses, social workers, chaplains and others who work together with the patient's other doctors to provide an extra layer of support. Such care is appropriate for people at any age and at any stage in a serious illness, and can be provided together with curative treatment to address clinical, emotional, psychosocial and spiritual concerns of the patient and their family. To better understand how the principles of palliative care can be integrated into the overall provision of care and services to those facing serious illness, the Roundtable on Quality Care for People with Serious Illness held a public workshop in April 2017. This publication summarizes the presentations and discussions from the workshop.

Palliative Care in Oncology
Palliative Care in Oncology

Author: Bernd Alt-Epping

Publisher: Springer

Published: 2015-03-26

Total Pages: 302

ISBN-13: 3662462028

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Palliative care provides comprehensive support for severely affected patients with any life-limiting or life-threatening diagnosis. To do this effectively, it requires a disease-specific approach as the patients’ needs and clinical context will vary depending on the underlying diagnosis. Experts in the field of palliative care and oncology describe in detail the needs of patients with advanced cancer in comparison to those with non-cancer disease and also identify the requirements of patients with different cancer entities. Basic principles of symptom control are explained, with careful attention to therapy for pain associated with either the cancer or its treatment and to symptom-guided antineoplastic therapy. Complex therapeutic strategies for palliative cancer patients are highlighted that involve both cancer- and symptom-directed options and address a range of therapeutic aims. Issues relating to drug use in palliative cancer care are fully explored, and a separate section is devoted to care in the final phase. A range of organizational and policy issues are also discussed, and the book concludes by considering likely future developments in palliative care for cancer patients. Palliative Care in Oncology will be of particular interest to palliative care physicians who are interested in broadening the scope of their disease-specific knowledge, as well as to oncologists who wish to learn more about modern palliative care concepts relevant to their day-to-day work with cancer patients.

Financing and Payment Strategies to Support High-Quality Care for People with Serious Illness
Financing and Payment Strategies to Support High-Quality Care for People with Serious Illness

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2018-07-18

Total Pages: 95

ISBN-13: 0309474477

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Millions of people in the United States live with serious illnesses such as cancer, heart disease, chronic obstructive pulmonary disorder (COPD), amyotrophic lateral sclerosis, Parkinson's disease, and dementiaâ€"often for many years. Those facing serious illness have a range of interconnected medical and non-medical needs, and the way their care is financed has a large impact on the care they receive. Medicare is the predominant payer, but both Medicaid and private payers also play significant roles in financing care for serious illness. In an effort to address the complex needs of people with serious illness, public and private health care payers are testing innovative financing strategies and alternative payment models. These innovative approaches signal a gradual transition from the traditional-fee-for-service system that pays providers based on the quantity of services to a system based on the value of care provided and a heightened focus on improved quality of care at lower cost. To explore this evolving financing and payment landscape for serious illness care within public- and private-sector programs, the Roundtable on Quality Care for People with Serious Illness developed a workshop, Financing and Payment Strategies to Support High-Quality Care for People with Serious Illness. The workshop convened clinicians, researchers, policy analysts, and patient advocates, as well as representatives from academia, government and private health care plans, and insurers to discuss challenges and opportunities in financing high-quality care for people with serious illness. This publication summarizes the presentations and discussions from the workshop.

Implementing Quality Measures for Accountability in Community-Based Care for People with Serious Illness
Implementing Quality Measures for Accountability in Community-Based Care for People with Serious Illness

Author: National Academies of Sciences, Engineering, and Medicine

Publisher: National Academies Press

Published: 2019-01-11

Total Pages: 109

ISBN-13: 0309482070

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Millions of Americans of all ages face the challenge of living with serious illnesses such as advanced cancer, heart, or lung disease. Many people with serious illness are increasingly cared for in community settings. While the number of community-based programs to provide care for those with serious illness has grown significantly, the quality of care provided is not consistent across geographic locations or care settings. Care for the serious illness population often features gaps in coordination across sites of care and poor patient and family perceptions as to the quality of care provided. In an effort to better understand and facilitate discussions about the challenges and opportunities related to identifying and implementing quality measures for accountability purposes in community-based serious illness care, the National Academies of Sciences, Engineering, and Medicine held a public workshop on April 17, 2018, in Washington, DC. Workshop participants explored the current state of quality measurement for people with serious illness, their families, and caregivers, with the aim of identifying next steps toward effectively implementing measures to drive improvement in the quality of community-based care for those facing serious illness. This publication summarizes the presentations and discussions from the workshop.

Living Well with a Serious Illness
Living Well with a Serious Illness

Author: Robin Bennett Kanarek

Publisher: JHU Press

Published: 2023-04-04

Total Pages: 225

ISBN-13: 1421445719

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A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand • what palliative care entails • how to access the support they need when going through a serious illness • what questions to ask medical professionals • how to navigate advanced care planning • definitions of common terminology used with end-of-life planning • the importance of spiritual care, coping strategies, and emotional support • how to become an advocate for palliative care This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit—the core tenet of palliative care.

Pediatric Intensive Care Nursing, An Issue of Critical Care Nursing Clinics of North America, E-Book
Pediatric Intensive Care Nursing, An Issue of Critical Care Nursing Clinics of North America, E-Book

Author: Melissa Nunn

Publisher: Elsevier Health Sciences

Published: 2023-08-04

Total Pages: 129

ISBN-13: 0443131007

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In this issue of Critical Care Nursing Clinics, guest editor Dr. Melissa Nunn, Instructor of Clinical Nursing at LSU Health New Orleans School of Nursing, brings her considerable expertise to the topic of Pediatric Intensive Care Nursing. Top experts in the field present systematic, evidence-based processes for decision making and care, addressing topics such as palliative communication in the PICU; dialysis care in the PICU; caring for hematology/oncology emergencies in the PICU; nurse-led rounds in the PICU; asthma care protocol implementation in the PICU; and more. - Contains 12 relevant, practice-oriented topics including acute pain management protocols in the PICU; kangaroo care implementation; unplanned extubations in the PICU; pediatric delirium screening in the ICU; battling alarm fatigue within the PICU; and more. - Provides in-depth clinical reviews on pediatric intensive care nursing, offering actionable insights for clinical practice. - Presents the latest information on this timely, focused topic under the leadership of experienced editors in the field. Authors synthesize and distill the latest research and practice guidelines to create clinically significant, topic-based reviews.

Dying in America
Dying in America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2015-03-19

Total Pages: 470

ISBN-13: 0309303133

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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Textbook of Palliative Care
Textbook of Palliative Care

Author: Roderick Duncan MacLeod

Publisher: Springer

Published: 2025-05-29

Total Pages: 0

ISBN-13: 9783031489907

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This second edition provides the most up-to-date information on all aspects of palliative care including recent developments (including COVID-19), global policies, service provision, symptom management, professional aspects, organization of services, palliative care for specific populations, palliative care emergencies, ethical issues in palliative care, research in palliative care, public health approaches and financial aspects of care. This new Textbook of Palliative Care remains a unique, comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still needs to be explained. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and theirfamilies. However, the science of palliative care is advancing and this new edition will contribute to a better understanding of this specialty. This new edition offers 20 new chapters out of over 120, written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This new Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so the Editors and contributors from all over the world aim to keep this Textbook updated so that the reader can find new evidence and approaches to care.

Health Professional and Patient Interaction - E-Book
Health Professional and Patient Interaction - E-Book

Author: Amy M. Haddad

Publisher: Elsevier Health Sciences

Published: 2023-03-08

Total Pages: 305

ISBN-13: 0323831575

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Learn how to navigate the complicated and challenging world of health care with Health Professional and Patient Interaction, 10th Edition. Covering strategies for effective communication and collaboration, this time-tested guide offers the tools needed to establish positive patient and interprofessional relationships that are built on respect. It not only covers respectful actions, communication standards, and good decision-making, but also demonstrates how those decisions directly shape successful patient outcomes. Practical examples and authentic scenarios highlight how to apply respect and professionalism to coworkers and patients of various ages and backgrounds across a wide spectrum of healthcare environments. It's the strong foundation you need to communicate effectively for positive, collaborative, and compassionate patient-centered care. - UNIQUE! Integration of respect throughout the text underscores its necessity across the many different types of interactions between the health professional and patient and establishes the foundation for positive relationships with patients and interprofessional care teams. - UNIQUE! Focus on interprofessional and intraprofessional collaboration addresses issues that apply to many different healthcare disciplines to help you identify with your specific field, as well as recognize themes that apply across a variety of healthcare delivery settings. - UNIQUE! Information on developmental and lifespan changes offers insight on the challenges experienced by patients, families, and caregivers and strategies for effective age-appropriate interactions. - UPDATED! Comprehensive, evidence-based content provides the most current information and strategies for being an effective and compassionate health professional. - Authentic patient cases and scenarios drawn from contemporary practice demonstrate strategies and tools for effective communication and collaboration with patients and colleagues in a wide range of healthcare settings. - Reflections Questions throughout the text challenge you to apply critical thinking skills and personal experience to different scenarios. - Questions for Thought and Discussion at the end of the book help you apply your knowledge to a variety of situations. - Extensive, updated references ensure content is current and applicable to today's clinical practice.

The Oxford Textbook of Palliative Social Work
The Oxford Textbook of Palliative Social Work

Author: Terry Altilio

Publisher: Oxford University Press

Published: 2022

Total Pages: 1009

ISBN-13: 0197537855

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"It is so important to advocate for things that may not always seem possible. Getting to work with patients/families at the end of their life is the ultimate honor." - Lauren G Markham, MSW, LCSW, APHSW-C "In this work, one witnesses both depths of human suffering and heights of human transcendence that can inspire both awe and fear. At those times, I have found that surrendering my need to be "an expert" and instead, allow myself to simply be a "human" is the wisest action." - Kerry Irish, LCSW, OSW-C, FAOSW"--