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Author: Diane Shader Smith
Publisher:
Published: 1997-01-01
Total Pages: 24
ISBN-13: 9780970035301
DOWNLOAD EBOOKMallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Author: Mallory Smith
Publisher: Random House
Published: 2019-03-12
Total Pages: 336
ISBN-13: 1984855433
DOWNLOAD EBOOKThe diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Author: Bijal P. Trivedi
Publisher: BenBella Books
Published: 2020-09-08
Total Pages: 744
ISBN-13: 1948836629
DOWNLOAD EBOOKRecommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.
Author: Wade Davis
Publisher: Vintage
Published: 2011-10-18
Total Pages: 596
ISBN-13: 0307700569
DOWNLOAD EBOOKThe definitive story of the British adventurers who survived the trenches of World War I and went on to risk their lives climbing Mount Everest. On June 6, 1924, two men set out from a camp perched at 23,000 feet on an ice ledge just below the lip of Everest’s North Col. George Mallory, thirty-seven, was Britain’s finest climber. Sandy Irvine was a twenty-two-year-old Oxford scholar with little previous mountaineering experience. Neither of them returned. Drawing on more than a decade of prodigious research, bestselling author and explorer Wade Davis vividly re-creates the heroic efforts of Mallory and his fellow climbers, setting their significant achievements in sweeping historical context: from Britain’s nineteen-century imperial ambitions to the war that shaped Mallory’s generation. Theirs was a country broken, and the Everest expeditions emerged as a powerful symbol of national redemption and hope. In Davis’s rich exploration, he creates a timeless portrait of these remarkable men and their extraordinary times.
Author: Cynthia S. Henry
Publisher: Jayjo Books
Published: 2000
Total Pages: 0
ISBN-13: 9781891383090
DOWNLOAD EBOOKIllustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Author: Laurie Friedman
Publisher: Darby Creek ™
Published: 2013-08-01
Total Pages: 119
ISBN-13: 1467727407
DOWNLOAD EBOOKMallory is turning 10, and she's planning a super sleepover! To celebrate her tenth birthday, Mallory wants to have the most super sleepover celebration ever! Mallory plans out everything to the last detail. As long as she promises not to let the fun get out of control, her parents agree to letting her friends sleep over. But Mallory’s best friend, Mary Ann, has her own ideas about what a super sleepover party should include. Before Mallory can put a stop to things, uninvited guests show up, a water balloon fight gets out of hand, and a good friend has her feelings hurt. How did a super sleepover turn into such a super mess?
Author: Katherine Paterson
Publisher: HarperCollins
Published: 2008-08-12
Total Pages: 289
ISBN-13: 0547488750
DOWNLOAD EBOOK2013 Laura Ingalls Wilder Award Rosa’s mother is singing again, for the first time since Papa died in an accident in the mills. But instead of filling their cramped tenement apartment with Italian lullabies, Mamma is out on the streets singing union songs, and Rosa is terrified that her mother and older sister, Anna, are endangering their lives by marching against the corrupt mill owners. After all, didn’t Miss Finch tell the class that the strikers are nothing but rabble-rousers—an uneducated, violent mob? Suppose Mamma and Anna are jailed or, worse, killed? What will happen to Rosa and little Ricci? When Rosa is sent to Vermont with other children to live with strangers until the strike is over, she fears she will never see her family again. Then, on the train, a boy begs her to pretend that he is her brother. Alone and far from home, she agrees to protect him . . . even though she suspects that he is hiding some terrible secret. From a beloved, award-winning author, here is a moving story based on real events surrounding an infamous 1912 strike.
Author: Diane Shader Smith
Publisher: Adams Media Corporation
Published: 2005
Total Pages: 272
ISBN-13: 9781593374815
DOWNLOAD EBOOKOffers an inside look at the lives of married women involved in extramarital affairs.
Author: F. R. R. Mallory
Publisher:
Published: 2013-03
Total Pages: 0
ISBN-13: 9781893006485
DOWNLOAD EBOOKThe essential handbook for singles and couples who want to explore domination and submission as a relationship style or fetish in ways that are emotionally sustainable. For anyone who has ever fantasized about consensual kink, S/m, love, kinky sex, and powerful intimate connections beyond the limits of traditional relationships, this groundbreaking handbook explores the unusual potentials that are unique to kink. Experienced kink participant F.R.R. Mallory dispels myths and covers all the complex contradictions integral to maintaining a successful and responsible kink-centric relationship--from honest communication to self-awareness and more. Individuals and their partners will learn how to establish limits, explore psychological edges, and how to define their relationships on their own terms.
Author: Kelsey M Finn
Publisher:
Published: 2020-07-02
Total Pages: 28
ISBN-13:
DOWNLOAD EBOOKThis book tells the story of Jack, a boy who has a genetic condition called Cystic Fibrosis, and his Cystic Fibrosis Superpowers. Cystic Fibrosis affects approximately 1 in every 2,500 people of European ancestry, and also affects people of other ancestries, but less frequently. This book is intended to serve as a way to communicate with children about Cystic Fibrosis, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis.
