In Melanesia, rates of HIV infection are among the highest in the Pacific and increasing rapidly, with grave humanitarian, development, and political implications. There is a great need for social research on HIV/AIDS in the region to provide better insights into the sensitive issues surrounding HIV transmission. This collection, the first book on HIV and AIDS in the Pacific region, gathers together stunning and original accounts of the often surprising ways that people make sense of the AIDS epidemic in various parts of Melanesia. The volume addresses substantive issues concerning AIDS and contemporary sexualities, relations of power, and moralities—themes that provide a powerful backdrop for twenty-first century understandings of the tensions between sexuality, religion, and politics in many parts of the world.
For gay men, the demands of the AIDS epidemic are enormous and unrelenting. Regardless of HIV status, all are called on to maintain vigilant safety with sex, to face down a cultural stigma greater even than homophobia, and to somehow find a way to go forward in a world heavy with loss. As exhaustion and grief threaten to overwhelm the activism and optimism of earlier years, and with new infections on the rise among young gay men, the challenge of finding meaning in a world turned upside down is more than an idle philosophical exercise. It is a matter of psychological and perhaps even physical survival. In this poignant and uncompromising new book, Dr. Steven Schwartzberg offers a ground-breaking perspective on how gay men (and particularly HIV-positive gay men) find ways to rebuild a world of meaning amid the trauma and uncertainty of the AIDS crisis. Eschewing both glib prescriptions for turning tragedy into triumph, and theoretical abstractions, Schwartzberg grounds his insights in his own experiences as a gay man and as a practicing psychotherapist, and in in-depth interviews with nineteen men living with HIV. Ranging in age from twenty-seven to fifty, the men include a construction foreman, a physician, an art historian, a waiter, a librarian, and a licensed massage therapist. With candor, insight, eagerness, and a remarkable ability to share of themselves, they speak eloquently about how HIV has affected their views of the world, their senses of themselves, and how they live their lives. Interweaving the men's stories with observations from his research and clinical practice, Schwartzberg bears witness to the remarkable transformations some men have accomplished, and the anguish of meaninglessness that weighs others down. He strives to uncover why some view HIV as a catalyst for change or growth, while others see it only as punishment. And though he passes no judgment on the coping strategies he describes, Schwartzberg does insist on the vital necessity of balancing somber reality with healing, life-sustaining hope. He argues that men who opt for too much illusion and too little reality risk shoddy self-care and inadequate preparation for the future, while those who find no escape from reality may teeter into rage or suicidal despair. Beautifully written, with piercing awareness of the enormity of the challenges confronting individuals with HIV, this book celebrates the resilience of the human spirit. It is both a keen psychological guide and an elegiac chronicle of what life for many has become. Gently pointing the way to an oasis of growth, strength, and love that exists amid the epidemic's bleak terrain of loss, it is essential reading for people living with HIV, for their friends, families, and the mental health professionals who care for them, and for all gay men grappling with the enormous changes AIDS has brought to a community under siege.
Now an award-winning documentary feature film The search for a “patient zero”—popularly understood to be the first person infected in an epidemic—has been key to media coverage of major infectious disease outbreaks for more than three decades. Yet the term itself did not exist before the emergence of the HIV/AIDS epidemic in the 1980s. How did this idea so swiftly come to exert such a strong grip on the scientific, media, and popular consciousness? In Patient Zero, Richard A. McKay interprets a wealth of archival sources and interviews to demonstrate how this seemingly new concept drew upon centuries-old ideas—and fears—about contagion and social disorder. McKay presents a carefully documented and sensitively written account of the life of Gaétan Dugas, a gay man whose skin cancer diagnosis in 1980 took on very different meanings as the HIV/AIDS epidemic developed—and who received widespread posthumous infamy when he was incorrectly identified as patient zero of the North American outbreak. McKay shows how investigators from the US Centers for Disease Control inadvertently created the term amid their early research into the emerging health crisis; how an ambitious journalist dramatically amplified the idea in his determination to reframe national debates about AIDS; and how many individuals grappled with the notion of patient zero—adopting, challenging and redirecting its powerful meanings—as they tried to make sense of and respond to the first fifteen years of an unfolding epidemic. With important insights for our interconnected age, Patient Zero untangles the complex process by which individuals and groups create meaning and allocate blame when faced with new disease threats. What McKay gives us here is myth-smashing revisionist history at its best.
In Melanesia, rates of HIV infection are among the highest in the Pacific and increasing rapidly, with grave humanitarian, development, and political implications. There is a great need for social research on HIV/AIDS in the region to provide better insights into the sensitive issues surrounding HIV transmission. This collection, the first book on HIV and AIDS in the Pacific region, gathers together stunning and original accounts of the often surprising ways that people make sense of the AIDS epidemic in various parts of Melanesia. The volume addresses substantive issues concerning AIDS and contemporary sexualities, relations of power, and moralities—themes that provide a powerful backdrop for twenty-first century understandings of the tensions between sexuality, religion, and politics in many parts of the world.
Exhaustion and grief threaten to overwhelm the activism and optimism of earlier years. In a world turned upside down, the challenge of finding meaning is more than an idle philosophical exercise. It is a matter of psychological and perhaps even physical survival.
In the face of life-threatening news, how does our view of life change—and what do we do it transform it? Remaking a Life uses the HIV/AIDS epidemic as a lens to understand how women generate radical improvements in their social well being in the face of social stigma and economic disadvantage. Drawing on interviews with nationally recognized AIDS activists as well as over one hundred Chicago-based women living with HIV/AIDS, Celeste Watkins-Hayes takes readers on an uplifting journey through women’s transformative projects, a multidimensional process in which women shift their approach to their physical, social, economic, and political survival, thereby changing their viewpoint of “dying from” AIDS to “living with” it. With an eye towards improving the lives of women, Remaking a Life provides techniques to encourage private, nonprofit, and government agencies to successfully collaborate, and shares policy ideas with the hope of alleviating the injuries of inequality faced by those living with HIV/AIDS everyday.
"The book is a balanced and comprehensive treatment of an important social issue. It is accessible to the general reader and belongs in public as well as academic libraries." -- Religious Studies Review "Painstaking analysis of the knotty ethical problems involved in human-subjects research, and a well-thought-out proposal for a community approach to conducting field trials for an HIV vaccine.... Highly recommended for medical ethicists and anyone concerned about the AIDS epidemic and how HIV research is conducted."Â -- Kirkus Reviews "... a carefully reasoned account of how research for and trial of a preventive vaccine differ from the methods used to discover a therapy."Â -- Booklist "I highly recommend reading this book which I would attest to be a thrilling, ethically challenging, and informative descent into the allopathic solution." -- Ryan Hosken, Bastyr University Library Newsletter "As the scientific effort to produce an efficacious vaccine continues, [Grady's] work provides an ethical compass that will guide us well, regardless of where phase III HIV vaccine trials ultimately occur." -- Journal of the American Medical Association "Highly recommended... " -- AIDS Book Review Journal "A remarkable treatment of a most difficult and complex subject... Grady's book is of special merit because it is simple, readable, and understandable, while conveying in-depth perceptions that are critical to the reader. A useful and essential reference work for those who would engage in the initiative to bring about a resolution of a mighty human health problem." -- Maurice R. Hilleman, Ph.D., D.Sc., Director, Merck Institute for Therapeutic Research "Dr. Grady's important study captures the complexity of the search for an AIDS vaccine with startling clarity. Her insights into the full range of forces that shape our national response to AIDS vaccine development should read like signposts to vaccinologists, AIDS community activists, and most importantly, the Public Health Service. An impressive contribution." -- Derek Hodel, Gay Men's Health Crisis "This book is recommended to medical ethicists, those involved in non-HIV vaccine trials, and all persons involved in HIV vaccine trials, including investigators, sponsors, study subjects and communities at risk." -- Journal of Health Politics, Policy and Law The creation of a vaccine now seems the best hope for controlling AIDS. Yet developing and testing an HIV vaccine raises a host of difficult ethical issues. These concerns are the focus of this timely and important book. Essential reading for everyone interested in ethics and the conduct of HIV vaccine research.
Viewing contemporary history from the perspective of the AIDS crisis, Jennifer Brier provides rich, new understandings of the United States' complex social and political trends in the post-1960s era. Brier describes how AIDS workers--in groups as disparate as the gay and lesbian press, AIDS service organizations, private philanthropies, and the State Department--influenced American politics, especially on issues such as gay and lesbian rights, reproductive health, racial justice, and health care policy, even in the face of the expansion of the New Right. Infectious Ideas places recent social, cultural, and political events in a new light, making an important contribution to our understanding of the United States at the end of the twentieth century.
