Ehlers-Danlos Syndrome: A Multidisciplinary Approach

Ehlers-Danlos Syndrome: A Multidisciplinary Approach

Author: J.W.G. Jacobs

Publisher: IOS Press

Published: 2018-08-14

Total Pages: 370

ISBN-13: 1614998787

DOWNLOAD EBOOK

Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.


Crossing the Quality Chasm

Crossing the Quality Chasm

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2001-07-19

Total Pages: 359

ISBN-13: 0309132967

DOWNLOAD EBOOK

Second in a series of publications from the Institute of Medicine's Quality of Health Care in America project Today's health care providers have more research findings and more technology available to them than ever before. Yet recent reports have raised serious doubts about the quality of health care in America. Crossing the Quality Chasm makes an urgent call for fundamental change to close the quality gap. This book recommends a sweeping redesign of the American health care system and provides overarching principles for specific direction for policymakers, health care leaders, clinicians, regulators, purchasers, and others. In this comprehensive volume the committee offers: A set of performance expectations for the 21st century health care system. A set of 10 new rules to guide patient-clinician relationships. A suggested organizing framework to better align the incentives inherent in payment and accountability with improvements in quality. Key steps to promote evidence-based practice and strengthen clinical information systems. Analyzing health care organizations as complex systems, Crossing the Quality Chasm also documents the causes of the quality gap, identifies current practices that impede quality care, and explores how systems approaches can be used to implement change.


Data Analytics and Applications of the Wearable Sensors in Healthcare

Data Analytics and Applications of the Wearable Sensors in Healthcare

Author: Shabbir Syed-Abdul

Publisher: MDPI

Published: 2020-06-17

Total Pages: 498

ISBN-13: 3039363506

DOWNLOAD EBOOK

This book provides a collection of comprehensive research articles on data analytics and applications of wearable devices in healthcare. This Special Issue presents 28 research studies from 137 authors representing 37 institutions from 19 countries. To facilitate the understanding of the research articles, we have organized the book to show various aspects covered in this field, such as eHealth, technology-integrated research, prediction models, rehabilitation studies, prototype systems, community health studies, ergonomics design systems, technology acceptance model evaluation studies, telemonitoring systems, warning systems, application of sensors in sports studies, clinical systems, feasibility studies, geographical location based systems, tracking systems, observational studies, risk assessment studies, human activity recognition systems, impact measurement systems, and a systematic review. We would like to take this opportunity to invite high quality research articles for our next Special Issue entitled “Digital Health and Smart Sensors for Better Management of Cancer and Chronic Diseases” as a part of Sensors journal.


Evidence-based Medicine

Evidence-based Medicine

Author: Sharon E. Straus

Publisher: Elsevier Masson

Published: 2005

Total Pages: 306

ISBN-13: 9782842997731

DOWNLOAD EBOOK

The accompanying CD-ROM contains clinical examples, critical appraisals and background papers.


Munro's Statistical Methods for Health Care Research

Munro's Statistical Methods for Health Care Research

Author: Stacey Beth Plichta

Publisher: Lippincott Williams & Wilkins

Published: 2012

Total Pages: 567

ISBN-13: 9781451115611

DOWNLOAD EBOOK

This work provides a foundation in the statistics portion of nursing. Topics expanded in this edition include reliability analysis, path analysis, measurement error, missing data, and survival analysis.


The Spirit Catches You and You Fall Down

The Spirit Catches You and You Fall Down

Author: Anne Fadiman

Publisher: Macmillan

Published: 2012-04-24

Total Pages: 370

ISBN-13: 0374533407

DOWNLOAD EBOOK

Winner of the National Book Critics Circle Award for Nonfiction, this brilliantly reported and beautifully crafted book explores the clash between a medical center in California and a Laotian refugee family over their care of a child.


Dying in America

Dying in America

Author: Institute of Medicine

Publisher: National Academies Press

Published: 2015-03-19

Total Pages: 470

ISBN-13: 0309303133

DOWNLOAD EBOOK

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.


Regulating Aged Care

Regulating Aged Care

Author: John Braithwaite

Publisher: Edward Elgar Publishing

Published: 2007-01-01

Total Pages: 385

ISBN-13: 1847206859

DOWNLOAD EBOOK

'Regulating Aged Care is a significant achievement and addresses areas of personal caring which do not usually receive attention. [It] is an important book which draws attention to the central problems of providing care for large numbers of vulnerable people. . . [it] should be required reading on undergraduate and postgraduate courses relating to applied social science, health and medical sociology.' Alison M. Ball, Sociology 'This book provides an impressive evidence base for both theory development and reassessment of policy and practitioner responses in the field.' International Social Security Review 'They have given us a fascinating case study here, rich in detail, and masterfully interpreted against the backdrop of evolving regulatory strategy. It is rare indeed to find this depth of analysis made accessible, laced throughout with humanity, compassion, and humor.' Malcolm Sparrow, Harvard University, US 'This book offers an intelligent and insightful account of the development of nursing home regulation in three countries England, the USA and Australia. But, more than that, it intertwines theory and more than a decade of empirical work to provide a telling and sophisticated explanation of why and how good regulatory intentions often go awry, and what can be done to create systems of regulation which really work to produce improvement.' Kieran Walshe, University of Manchester, UK This book is a major contribution to regulatory theory from three members of the world-class regulatory research group based in Australia. It marks a new development in responsive regulatory theory in which a strengths-based pyramid complements the regulatory pyramid. The authors compare the accomplishments of nursing home regulation in the US, the UK and Australia during the last 20 years and in a longer historical perspective. They find that gaming and ritualism, rather than defiance of regulators, are the greatest challenges for improving safety and quality of life for the elderly in care homes. Regulating Aged Care shows how good regulation and caring professionalism can transcend ritualism. Better regulation is found to be as much about encouragement to expand strengths as incentives to fix problems. The book is underpinned by one of the most ambitious, sustained qualitative and quantitative data collections in both the regulatory literature and the aged care literature. This study provides an impressive evidence base for both theory development and reassessment of policy and practitioner responses in the field. The book will find its readership amongst regulatory scholars in political science, law, socio-legal studies, sociology, economics and public policy. Gerontology and health care scholars and professionals will also find much to reflect upon in the book.


Medical Child Abuse

Medical Child Abuse

Author: Thomas A. Roesler

Publisher:

Published: 2009

Total Pages: 0

ISBN-13: 9781581101362

DOWNLOAD EBOOK

Thomas A. Roesler, MD, FAAP and Carole Jenny, MD, MBA, FAAP make the case that the term Munchausen syndrome by proxy should be retired permanently and replaced with a commonsense appreciation that children can be abused by their parents in the medical environment. Physicians who find themselves providing unnecessary and harmful medical care can see the abuse for what it is, another way parents can harm children. the book offers the first detailed and comprehensive description of treatment for this form of child maltreatment.