"When I grow up I want to be a screwdriver!" A small boy spins down the sidewalk as his mother follows him with her eyes and heart. Nicky has autism. Winner of the ASA Outstanding Literary Work of the Year Award, Just This Side of Normal is a powerful story of a parent's search for understanding in a world that sometimes makes no sense. This book was one of the first autobiographies written by a parent of a child with autism and it continues to inspire both parents and professionals in the autism community.
In 1991, Mark Osteen and his wife, Leslie, were struggling to understand why their son, Cameron, was so different from other kids. At age one, Cam had little interest in toys and was surprisingly fixated on books. He didn’t make baby sounds; he ignored other children. As he grew older, he failed to grasp language, remaining unresponsive even when his parents called his name. When Cam started having screaming anxiety attacks, Mark and Leslie began to grasp that Cam was developmentally delayed. But when Leslie raised the possibility of an autism diagnosis, Mark balked. Autism is so rare, he thought. Might as well worry about being struck by lightning. Since that time, awareness of autism has grown monumentally. Autism has received extensive coverage in the news media, and it has become a popular subject for film, television, and literature, but the disorder is frequently portrayed and perceived as a set of eccentricities that can be corrected with proper treatment. In reality, autism permanently wrecks many children’s chances for typical lives. Plenty of recent bestsellers have described the hardships of autism, but those memoirs usually focus on the recovery of people who overcome some or all of the challenges of the disorder. And while that plot is uplifting, it’s rare in real life, as few autistic children fully recover. The territory of severe autism—of the child who is debilitated by the condition, who will never be cured—has been largely neglected. One of Us: A Family’s Life with Autism tells that story. In this book, Mark Osteen chronicles the experience of raising Cam, whose autism causes him aggression, insomnia, compulsions, and physical sickness. In a powerful, deeply personal narrative, Osteen recounts the struggles he and his wife endured in diagnosing, treating, and understanding Cam’s disability, following the family through the years of medical difficulties and emotional wrangling. One of Us thrusts the reader into the life of a child who exists in his own world and describes the immense hardships faced by those who love and care for him. Leslie and Mark's marriage is sorely tested by their son's condition, and the book follows their progress from denial to acceptance while they fight to save their own relationship. By embracing the little victories of their life with Cam and by learning to love him as he is, Mark takes the reader down a road just as gratifying, and perhaps more moving, than one to recovery. One of Us is not a book about a child who overcomes autism. Instead, it’s the story of a different but equally rare sort of victory—the triumph of love over tremendous adversity.
“Ah Jeeeze, not another book about Autism.” But this one is different! It’s not all rainbows, unicorns and blessings. The Dark Side of Autism puts raising a child with special needs into perspective with no sugar coating of the reality. With firsthand experience raising a nonverbal child with autism and epilepsy, Angela talks openly and honestly about the true challenges parents face raising a child on the spectrum. With contentious opinions and candid observations, The Dark Side of Autism tells the truth about a dark and difficult subject people don’t like to talk about while fostering awareness for this sometimes debilitating and mostly unknown neurological disorder. This offhanded, direct and vulnerable parenting chronicle will give you a new appreciation for the simple things taken for granted with neuro-typical kids like taking a trip to Disneyland, a full night's sleep and haircuts. Angela often says things people only think to themselves in fear of offending someone. Autism has a dark side---it’s learning to cope with the darkness that can lift you up. If you are a parent with a child with special needs this book may read your mind. Angela is spot on with her darkly funny observations in the world of special needs---from the taunting beeping of a short bus to mastering IEPs with a reoccurring “don’t ask, don’t tell” theme. If you know someone, and chances are you do, caring for a child with special needs, you will gain new insight on what it must be like for them. This book can be easily used as a guide to the stupid things NOT to say to a parent with a mentally or physically challenged child---without checking your “foot in the mouth meter” first. The Dark Side of Autism can help you be a kinder, more compassionate friend, parent, spouse and human.
The co-author of "Asperger's and Girls" presents a no-nonsense guide to teaching children with Asperger's or autism the life skills they will need to function as an adult.
Now an award winning motion picture! Imagine being trapped inside a Disney movie and having to learn about life mostly from animated characters dancing across a screen of color. A fantasy? A nightmare? This is the real-life story of Owen Suskind, the son of the Pulitzer Prize-winning journalist Ron Suskind and his wife, Cornelia. An autistic boy who couldn't speak for years, Owen memorized dozens of Disney movies, turned them into a language to express love and loss, kinship, brotherhood.The family was forced to become animated characters, communicating with him in Disney dialogue and song; until they all emerge, together, revealing how, in darkness, we all literally need stories to survive. This edition has been updated with additional material from the Suskind family.
"This book is a message from autistic people to their parents, friends, teachers, coworkers and doctors showing what life is like on the spectrum. It's also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language." With a reporter's eye and an insider's perspective, Eric Garcia shows what it's like to be autistic across America. Garcia began writing about autism because he was frustrated by the media's coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn't look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don't need to be fixed. In We're Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.
In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience—the positive and the negative—as a mother of a now twenty-one-year-old son with severe autism. Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, We Walk directly—and humanly—examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the "quirky geniuses" featured on television shows like The Big Bang Theory and The Good Doctor, We Walk demands that we center our debates about this disorder on those who are most affected by its impacts.
Stagliano reveals how one woman raises three daughters with autism, loses one at Disney World, stays married, has sex, bakes gluten-free, goes broke, and keeps her sense of humor.
The face of autism is changing. And more often than we realize, that face is wearing lipstick. Autism in Heels, an intimate memoir, reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of thirty-five, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, Jennifer exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but--more importantly--as a thoroughly modern woman. Beyond being a memoir, Autism in Heels is a love letter to all women. It’s a conversation starter. A game changer. And a firsthand account of what it is to walk in Jennifer's shoes (especially those iconic red stilettos). Whether it's bad perms or body image, sexuality or self-esteem, Jennifer's is as much a human journey as one on the spectrum. Because autism "looks a bit different in pink," most girls and women who fit the profile are not identified, facing years of avoidable anxiety, eating disorders, volatile relationships, self-harm, and stunted independence. Jennifer has been there, too. Autism in Heels takes that message to the mainstream. From her own struggles and self-discovery, she has built an empire of empowerment, inspiring women the world over to realize they aren't mistakes. They are misunderstood miracles.
This positive, straightforward book offers kids with autism spectrum disorders (ASDs) their own comprehensive resource for both understanding their condition and finding tools to cope with the challenges they face every day. Some children with ASDs are gifted; others struggle academically. Some are more introverted, while others try to be social. Some get "stuck" on things, have limited interests, or experience repeated motor movements like flapping or pacing ("stims"). The Survival Guide for Kids with Autism Spectrum Disorders covers all of these areas, with an emphasis on helping children gain new self-understanding and self-acceptance. Meant to be read with a parent, the book addresses questions ("What’s an ASD?" "Why me?") and provides strategies for communicating, making and keeping friends, and succeeding in school. Body and brain basics highlight symptom management, exercise, diet, hygiene, relaxation, sleep, and toileting. Emphasis is placed on helping kids handle intense emotions and behaviors and get support from family and their team of helpers when needed. The book includes stories from real kids, fact boxes, helpful checklists, resources, and a glossary. Sections for parents offer more detailed information.
